pingu

Thanks Karen. We have had a morning to match today. Kieran refused to go to school, managed to get him there at 11.30 and am now in the midst of cleaning YET AGAIN. I swear my fingers are going to fall off before the end of this week. Its Me V's them

Hi Everyone. What a blooming week we've had. where to start??? On the 3rd september kieran had a meltdown about going back to school. he came out in his customary heat bumps his heat bumps increased daily until the doctor diagnosed him with ezema, gave him antibiotics for his infected bits and cream to run on his skin. This didnt work,his skin became more inflamed. then i saw IT. Hopping off jess like it was a flipping taxi service. Jess was curled on my bed with fleas !! But how? i ask myself. she has a collar. is treated with frontline. (put on excactly as directed). All precautions have always been taken. and still they are lodging on her fur like the hitchikers from hell. Anyway to cut a long story short. Kieran was looking terible. so we aired on the side of caution and did a massive mad clean, over the course of 4 days, i washed bedding, curtains, ...anything that could go in the washer. hoovered manically. Bought flea spray, powder, bombs. I felt very enviorementally unfriendly last monday as i fumigated the entire house. Afterward i felt great. i caught the cat and treated her again. (Just in case). Now from monday to this friday, kierans skin settled down, no new spots. excellent. BUT. tonight he is covered again. hes scratched and has blood everywhere and he has lots of new ones which have been gradually building all weekend. He wears only pants mainly in the house, so im at a loss as to how they are clinging to him. Im convinced it is fleas as everyone else (apart from eldest DS) has a couple of nibbles to the lower ankle region. But Kieran is covered litrally from head to toe. I feeeeelll awful. i have no idea what to do next. fumigate again. ??? has anyone else experienced fleas and there bites??????? helppppppppppp Yours hopefully and expenctantly. flea bitten penguin. x

Hi there. I thought i would share this link with you all. My friend Marc is a singer and songwriter, He and Hubby sometimes share some studio time, which is how steve managed to record Kierans song (about the bathplug). Anyway, marc is in the stages of recording this song as part of the 'riversea' project. (a new venture for him) The song is about what is happening in the world, The pictures although sombre reflect what others have to live with, the overall message is for you to decide. Please give it a listen. It really is a beautiful song. http://uk.youtube.com/watch?v=0zuRn_9X9ZE shaz x

If ever i am in doubt about why i am writing my book, i come here. At times when i think its all a waste of time i head for here, and at moments i think who the hell is bothered anywhere, its here i find the answers. we all go through so much, in so many areas of our lives, and here we share that between us with a closeness that i have never experienced anywhere before. You lot keep me going. i just wanted to say thanks for doing that. without you i would have cracked a long time ago. <'> Thank you for everything <'> <'> <'> <'> <'> <'> <'> <'> <'> <'> <'> <'> <'> shaz x

I agree. this sounds familiar. sorry to hear of your bad times jim, i hope you find comfort here. shaz

Many congratulations to all of you "may the force be with you" Ready when you are. shaz

My son is just recovering from the side effects of this drug. Im not meaning to scare you here, but the side effects if you are prone to them are horrible. My son suffered what they called a rare side effect, in that it was picked up during regular blood tests, that his liver was not coping with the drug, this caused him a yellow tinge and he became very depressed, and paronoid. Docs took him off it, only to put him on it when the levels had settled. The next blood test showed he was anemic, and spent 2 months on iron tablets, putting up with constipation as a result. The moods returned, but his face cleared up a treat. The next lot of bloods however showed that his neutrophil levels were dangerously low, and he ended up in hospital. he was very lucky not to get an infection during these weeks as it could have turned very nasty. 2 months on and he is getting stronger, he still needs regular blood tests to make sure everything is getting back to normal. But after all this nothing has been achieved because his acne has come back. He did clear up lovely, so now hes more depressed than ever. He has had long term meds for this problem, and nothing has worked, the one thing that did work nearly killed him and can never be tried again. I hope if you do accept these meds you find it effective and with no side effects. shaz

My adopted cat jess is always bringing us small animals. to date we have had (Lots of) mice. birds, voals, last week she had a pigeon. The poor thing was still alive, but i thought it would die of a heart attack. Anyway its managed to recover with a little help from dr doolittle (shauna) and the hubby. Its now flying to the tree and back. We are ridiculous really, i let the bird out earlier (its recupperating in the playhouse)and got on with the bird sitting duties. Realised i needed a wee and took the chance, there was no sign of the cat so i darted inside, only to find the cat ripping another pigeon to bits on my return. How the hell it managed to fly away is beyond me. Prior to this she had a mouse, and then let it go upstairs in her haste to hide it. I havent seen it for a few weeks so im hoping its managed to escape. She is lovely though. x

<'> It sounds as though it might. have an excellent time. x

Hi Suz. You rant away hun. You obviously feel as though you can't do anything right at the moment. can you speak to your doctor about how the stress and anxiety make your self harming resurface? Or at least ask him to refer you to someone who can help you manage the 'meltdowns'. I sure someone will be along soon to give you some better advice, but for now dont beat yourself up too much. take care. shaz x

<'> Thank you everyone. Im going to take a break and gather my thoughts. <'> shaz x

Hi Guys (and gals). Im still here and i send my love to all. but im also busy trying to get these 'voices' out of my head. I'm having to 'go'back' in life to when K was 3 to write chapter 7. hes now 8 and aged three was not a good time, and to be honest i feel like im loosing the plot a bit and need you guys to tell me to go on. yesterday i was told by the phychologist that we have to prepare for putting K on meds to help with anxieties and sleep, and to b honest its knocked me a bit. so Myworld is bleeeeep right now, and im at the stage of throwing in the towel and leaving it at chapter 1.

Absolutly agree with you minxygal

I was searching for proverbs, and this is the third time i have come across this statement. Im struggling here coz K does have Delayed speech and learning difficulties. so does he have AS? Confused shaz

Hi There. Good point i too find that the ridiculous attitude of teachers can be frustrating. K is also 8 and has the social skills of a 5 year old, so i see where you are comming from. We have similar problems to you. you have my sympathy. shaz

Any sayings at all??

<'> i hope to see you back soon OCG shaz x <'>

Hi all. just come through one of the worst weekends of my life. K has been so difficult to communicate with and the meltdowns over the weekend have been horrendous. School keep changing the goalposts after a promising relationship at the beggining of term, its all gone the shape of a pear. I had a major paddy of my own on sunday pm. i feel mentally tortured presently, so am trying to take my mind of things by throwing myself into 'the book' which leads me to my question. Does anyone know of any sites which have some meaninful autism sayings / proverbs? i have had a snoop round, but cant find any for autism, im sure they are out there, but there hiding Thanks guys (and gals) take care all of you. x <'> shaz

im glad you are feeling better hun. Bad times are sent to see how well you cope. (how i hate that saying) but i suppose its true. i guess we all grow stronger if we have had to struggle to get results. Take care of yourself. shaz x

hi claire thank you. at least now i know im going in the right direction. I woke this morning thinking it was a terrible idea. I thought it didnt make sense, and "who would want to read about our life anyway". I let the cat out at 5.30am and sat staring at the screen til 7 (making my eyes go wonky). reading through what i already had. I hit a piece where i couldnt go on around 10am. whether through emotion or the flashbacks ior the fact i have very little self belief at the moment.. But all of your comments have spurred me on. I am going to finish this now. Thankyou all for giving me the courage. Im eternally grateful for your support. With all my heart Thanks. PS. course you can have a signed copy lol i'll even get kieran to draw "james bond's gun" in it for you. Free of charge. And the you tube link to the video already mentioned is. thats the full ten minute version of kieran 'stimming' this is the only footage we have of him been completly natural. he acts like this at home all the time, constantly stimming (lately) but at school he's as quiet as a mouse. this link is a scaled down version (2 mins or so) with hubbys song (which he wrote for K) playing over the top of the video. Thanks again to everyone for just been here. shaz x

the video was lovely. I have left a comment on you tube. I know how special these moments are. it deserves to be shared. Take care shaz

thank you shortcake and rach. you keep me going strong.

You've got me now. Thankyou for your kind words. Im going to finish this book,(said determined) for all of us. for me, for K, for "the family" and for every single person connected to and affedted by ASD. we are all special. Special breads special. (new proverb) lol. <'>

Thankyou. everyone for your replies. it has given me the will too continue. <'> . I felt really down this morning but you have just cheered me up. with your comments. Sometimes i look my family and think "hell what did i do???" But you're right Lisa i didnt realise it until now, i do have a lovely family. And im proud of them too, shaz x P.S can someone tell me if i would be able to mention this site in the unfolding chapters. ta.

Hi Hun. Thanks for your message. Yes thats K on youtube. Steve wrote the song because it based around all his obbsessions. Hes had it years now and is a proper professional at spinning. I can't ever see him giving it up. Thatnks again. your messages means a lot. shaz