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soraya

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Posts posted by soraya


  1. A pru is not specialised enough to support a child with special needs, a pru is an alternative education if they can no longer attend a mainstream or a special school, when they do take children with special needs it is really difficult because of the complex issues as you describe, the other children will have diverse issues and require a very different aproach to what your child will, its a case of your son is in the wrong setting, his needs will almost certainly not be met in a pru because there not suited to children with special needs who require a specialist provision, I would strongly recommend that you request a more suitable placement that can meet all his needs including socailly, emotionally.

     

    good luck, it must be really frustrating on you because he will no daught bring all his difficulties home and that we all know what happens there.

     

    JsMum

    Hi JS mun, as l have said in my reply to Hev, there is no local school which can take Nick, he cannot attend mainstream and the only special school is 1 1/2 hours each way on a mini bus which Nick did for 2 years and then just jumped off, causing a risk to himself and the other children, the LEA tried a taxi and he jumped out of that!! This is an independant PRU and the staff are lovely, we have had a chat tonight and Nick says he is going to try to be more tolerant of the other kids, he knows he cant stay at home for ever and he wants to go to college so l am hoping he will be better tommorow :pray::pray:


  2. soraya the lea really wanted me to send steve to a pru but in no way would it have been suitable for steve.

    i really feel for you cos like you we pin so much hopes on the new schools working out,sorry if youve already said but is it a residential school nicks at now?

    Hi Hev, No its not a residential school, the trouble would be getting him there, he used to jump out of the minibus taking him to his special school, which is why he has to go locally and this school is just round the corner from home. He really needs a residential school which meets his needs but he has said no way would he sleep away from home and he would just run away!! The LEA have said they will only send a child to a residential school if he is willing to go, and also that no school will take a child who dosent want to be there. We have no other option but the PRU round the corner, Nick has been at home for 18 months and we both need time away from each other, if he stays at home he just does his on line lessons for 2 hours, and then just lazes around the house, he has put on loads of weight and now has big issues about the way he looks. When is life going to get easier? :wallbash::wallbash:


  3. Well things are not going so well with the new school, they are starting him gradually but things have gone wrong every day.On the first day he walked out as one of the other kids annoyed him, on the second day he punched another child because he says he hit him first, and today he was going to go swimming but one of the boys said he would drown Nick at the pool, so he walked out and phoned me to collect him!! Nick says he didnt do anything to make this boy say this, but one one the teachers said Nick had been making comments all morning to the other kids. The thing is this school is a PRU and l dont know if they really understand Aspergers, they say they do but l am not so sure, Nick just cant seem to ignore the other kids, he just reacts badley when others say hurtfull things, although Nick is the master of saying hurtfull things!!! Feeling really down today, cant stop crying, was hoping this school would sort him out, but l dont think its going to work out.Nick is 15 in Sept and l think time has run out for him :crying::crying:


  4. Well done Hev for saying no, it is so hard to to this when you are afraid of what they might do. Nick gets very angry and violent when l say no, but l am trying to stick to it at the moment and it is very challenging to say the least. At least we may be able to help those of you who do give in for a bit of peace, it is not worth it!!!!!!!!!!!!! Steve and Nick are both big lads and at 15 very strong, it is much harder to say no when they are teenagers, so all of you with younger kids, dont give in!!!!!!!!!!

    Sorry Hev l am rambling, glad everything turned out ok in the end :thumbs::thumbs:


  5. Thanks everyone for your kindness, we see the consultant next week and he will go into more detail about what the MRI did show so we will take it from there.Had some nice pinot grigio last night, and even better Nick went away with his uncle on an overnight fishing trip :thumbs::thumbs: I had a lovely day today, l rang my mum and sister and we had a girlie day, we went to the garden centre and spent a fortune on plants for hanging baskets, had lunch out and more wine!!. Mum is 80 and after having the tumour scare with DS2 it really makes you appriciate life, and so we had a lovely day together and remembered our childhood, we thanked mum for giving us such a good childhood and l suppose we just appreciated each other. Sorry i am going on a bit and getting rather soppy!! Life usually focus on Nick so much it was really nice to go out and not worry about him. :):)


  6. Well it looks like it is good news as the radiologist said to me that she didnt see anything abnormal, although she said she wasnt really allowed to tell me as she would get into trouble, but she could see how worried we were. Its a huge relief, but we still have to find out whats giving him pain, but at least there is no tumor. Thanks for all your hugs and best wishes, l am going to have a few glasses of vino tonight!!!


  7. My ds2 has been having pain in his calf muscle for a few months, he wnt to the docs today and they found a lump in the muscle which could be a tumor, he is now being reffered to

    a consultant for a scan. I am so worried and he is very scarred. I just get one son sorted with school, and feel positive and then this happens. I feel very low tonight :(:(


  8. Hi Flora, yes it is only round the corner, Nick can walk there which is great. It is an independant school, it only takes 11 boys and is very small, they do lessons every morning and activities in the afternoons. They do a lot of work on social skills and managing behaviours, the other boys are pretty bad, a lot of them are in care and have a lot of issues,but Nick can be pretty bad also!! Yes Nick has been out of school for over a year, and l am so angry with the LEA for not suggesting this school a year ago as Nicks problems have always been over travel, and this school is on our doorstep :wallbash::wallbash: I only discovered it at a meeting of the local autistic sociey when another mum said how good it was!!!Anyway must look to the future now, and at last l will be able to be a lady that lunches, freedom awaits!! :lol::lol:


  9. Please please dont give in, my Nick is totally obssesed over fishing and is always wanting new equipment, l have tended to give in over the years thinking he has no friends and fishing keeps him happy, l have used a lot of my DLA for him for fishing equipment, over the last few years and l regret it big time as he expects it all the time now and we have huge arguments and now he is 14 and 13stone, he can be very scary!! If he gets very anxious about things, he always gets obbsessive so there must be a link. Stay strong and dont make the same mistakes as me >:D<<'> >:D<<'>

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