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call me jaded

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Posts posted by call me jaded


  1. I know too much to post on a public forum, but let's just say that if you ask a bunch of lawyers for a remedy it will generally involve a legal battle. I know the PPS at Richmond and they are more than happy to guide parents within the absolute letter of the law, as they're both parents of children with SEN themselves.

     

    ETA: in Richmond the PPS attends the SEN Panel - you'd never get a solicitor in there, no matter what they charge!


  2. The approach we have taken as a family is to deal with one issue at a time. We choose things that are a priority and we think we can do something about. So we wouldn't have a target of dealing with all sensory issues, but we would plan about going swimming (which my son enjoys) and try to extend it from 20 minutes to 40 minutes. One of the things we changed to achieve this was to go earlier when it is less busy. Another was to get a Radar key for the disabled changing rooms.


  3. My own son spent a few months emptying out his room every night by throwing the contents down the stairs. His room now has a bed, a chest of drawers and a TV and nothing else. He gets sensory overload and was awful when out - sitting down in the middle of the road, etc. 'The Out of Sync Child' really helped me get my head around it. He's a lot better now but we still avoid his triggers which are noise and a lot of people, so no supermarkets or cinemas for him!

     

    Our local CAMHS has an ASD parent group.


  4. I think the key is finding the right provision.

     

    Just for info my son went to my borough's own primary special school and the journey was one and a half hours each way. He enjoyed the bus ride immensely though I found it hard to load him up and just wave him off. He normally had a power nap on the way home and was full of ADHHHHHHHD when he got home :)


  5. Hi all, I'm still here in the background, dropping by every now and again to read and catch up with you all. Very busy with a big project which I'll tell you about when it gets off the ground.

     

    Earlier this year I posted about Steven Neary whose father, Mark, had been taken ill with flu and three days respite had turned into a stay of months and months, against both their wishes. Anna Raccoon wrote about it recently.

     

    The good news is, after almost a year, Steven came home for good on Christmas Eve.

     

    Happy new year to you all!


  6. Hindsight is always 20:20. My own son's statement is rubbish because they named the right school and I knew I wouldn't have to fight for the correct support once he was there. I took the gamble that no major changes would occur.

     

    In my LA they have removed all exceptional funding and what's going on in the preschool panel I don't know - no additional support at all from what I can see.


  7. Are they not insured? They seem to be applying 'joint and several liability' BUT you didn't sign a JOINT tenancy with everyone in halls. Property law does apply when the university is landlord too. Maybe speak to Law4All or Shelter to get some good advice.


  8. Halls are usually run by Housing Association type organisations and those are usually charitable organisations. The tenancy agreement that you signed has to tell you who your landlord is. The booking fee is just income for the HA and will be separate to the deposit. The deposit will be mentioned in your tenancy agreement. You did not sign an agreement with all the other tenants in the halls and cannot be held responsible for their actions. The problem is that the landlord has your deposit and won't want to release it. An old, old trick is to cancel the standing order for the rent at the end of the tenancy a month early 'by mistake'. That's why some landlords ask for six weeks rent as a deposit. I wouldn't worry too much about it.


  9. When I had one work with a child in my class it was for most of the day. They came in the morning and observed the child in lessons (not sure what happened at morning break), spoke to me and SENCo at lunch-time, took the child straight after lunch for 1-2-1 tests, then went to see the parents (who lived near to school). Their work and report seemed very comprehensive, but I don't know if this is the norm.

     

     

    That's fairly standard. They get as much info from the people around the child (who can say what happens on a typical day). The questions they ask are very probing IME.


  10. I would let the LA work to the 15 Feb 'deadline' because that will give you a chance to appeal in time for September admissions if necessary. It is normal to have a full set of reports for the new school to have a look at before they can say whether or not they can meet the needs. As they were done recently it shouldn't take too long to update them. Your LA is following good practice so far. The cynical me says that's so they look good if it goes to appeal again.


  11. We have this. I vary between keeping hair short and then letting it grow because it's very curly and hides the patch(es). Changes outside of home mean he's a bit more stressed and so very bald on one side and I shaved it all very short over half term. He usually forgets to do it for a while once shaven. He also eats the hair he plucks out and has been known to pick loose hairs off my collar or shoulders and eat them eeeuuuuuwwwww. I chastise him but he just laughs. It's his guilty pleasure and I drive it underground every now and again, but I know he still does it. Gross.

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