call me jaded
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Posts posted by call me jaded
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Have you thought about having them in separate schools HH? Might remove some of the stress from big bruv and to be frank the current school sound clueless about T.
You're doing great. Keeping him off was the right thing.
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Last year on mainland Spain the Euro has made a significant impact on the supermarket shop. Tesco comes out cheaper now and that was never the case. I recall Menorca being 'more expensive' way back, but still cheap. Do what the Spanish do: eat at home and go out for coffee and icecream.
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We self-cater. That takes away a lot of the stress and allows you to eat out when possible or eat at home. We also hire a car (a people carrier - like you, 4 kids plus Grandma). Sometimes send Grandma and a couple of kids in a taxi from the airport because of luggage.
For some reason Minorca popped into my head when reading your post. I haven't been there for 20 years, but it's really suitable for families. There's only one main road across the island, so you can't really get lost navigating to your resort. I would choose a resort near Cuidadella because that's a lovely town to wander around or one of the resorts at the bottom right corner of the island, the name of which escapes me right now.
The other thing that's fairly low cost is driving to the South of France and self-catering there. Pierre et Vacances have apartments/villas of a reasonable standard.
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My son's hair sample was 'positive' as per the Amy Holmes study, so he wasn't excreting toxins and because of his 'leaky gut' they had crossed the blood brain barrier to sit in the fatty depsoits of his brain. That's the theory in a nutshell. We are using Andy Cutler's protocol ALA/DMSA, supplementing with multi-vits and minerals and monitoring progress with ARI's ATEC scoring. No negatives whatsoever. Quite a few gains in concentration span and general good humour.
I'm no bio-chemist, just a mum.
Totally agree with the food craving thing. I will get an urge to eat broccoli and other odd things. When pregnant I ate oranges 3 or 4 at a time. Saunas really help. Mr jaded (coeliac) uses them to get over dietary infringements.
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The problem with the autoimmune link is that you have to tiptoe around the MMR question. The average GP believes the MRR/autism connection has been discredited. Won't go into that discussion right now, I've been stirring enough on here.
Theresa Binstock has summarised a lot of the research here:
http://www.autismwebsite.com/ari/dan/scien...foundations.htm
The Vijay Singh stuff is interesting but that's about the dreaded MMR.
In my own family virtually all have hayfever, lots of them have allergies, eczema, rheumatoid arthritis, diabetes, my husband's family have coeliac/stomach cancer. Three of the six of us are off gluten and dairy. So numerous immune dysfunction indicators there.
You could search both The Lancet and the BMJ and see what comes up.
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We had portage from age 2, then a year at an LEA special needs nursery 3 days a week, then primary special school from 3 1/2, now a NAS secondary placement. No fights or battles. Obviously his needs are severe.
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Hold firm, you can do it, you're nearly there. That's all I have time for right now.
Try to enjoy that bath!
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This is an emotive subject for sure.
FWIW I don't like the DAN! name either. However when you look at the people in the Think Tank, these are the people who are doing really brilliant research into autism. Much of the research is published in peer reviewed journals. Many of the doctors are also parents Rimland, Amy Holmes, Geoff Bradstreet, Teresa Binstock to name a few. It's complex and we haven't got anywhere near the whole picture yet.
I also think that where you or your child is on the spectrum influences how you look at this.
I have an extremely low functioning child trapped inside a body that isn't working. He is non-verbal, profoundly dyspraxic, probably dyslexic, has sensory processing difficulties (especially auditory), a visual thinker with a wicked sense of humour who struggles daily in an extremely supportive special school.
Of course I am going to do what I can to make that better, and if administering an over-the-counter supplement is going to do that (which is all chelation is) then I'm going to try it.
Mind you, it took me three years of reading medical research before I got to that point.
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Anybody wanting to know more could have a look at the DAN! Spring 2005 which is available online.
Perhaps have a look at David Kirby (author of 'Evidence of Harm') or for methyl B12 Neubrander's presentation (though the video presentations from parents that he shows are hard to hear clearly, he is quite witty).
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Following a discussion on another thread about mercury in tuna fish.
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Yes they are breaking the law. Every child over 5 is entitled to a full time place in education. They are also supposed to give you a list of special schools too. Have they done this?
Make an appointment to see the NAS school. They are used to children with complex needs. They will be able to give you an indication of whether they think they can meet your son's needs - they will come and see him after you have been to the school. Also go and see a couple of other schools so that you have something to measure the NAS school against. IPSEA will support you with the statementing process.
Your Parent Partnership are supposed to give impartial advice. Some are more independent than others. Parent support groups are good too, but do bear in mind that what was a negative experience for one parent may not be the case for all. It's good to hear a variety of opinions.
Lastly, trust your own judgement. You are the expert in your child.
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I've heard it can do, scooby.
I've always worked on the principle that anything that produces a change of some sort (positive or negative) is in general a good thing, because it's showing that something is not quite right and can be changed. Then the trick is to turn the negative around into a positive or to make the positive even better. Obviously some things produce such a negative reaction that you stop immediately.
Efalex and Omega 3 are similar products, so it could be that the dose is too high. Or there may be something in either formula which is disagreeing with your son. Or it could be that the combination is disagreeing with him.
So I would (perhaps) stop the Omega 3 for a couple of weeks and observe.
I used to keep a diary for my son. I wrote down what he ate, what time he slept, his general mood and irritability factor, bowel movements, how school found him, etc, etc. See what happens for a while and whether you can identify a pattern.
If that's not helping, then perhaps change the type of Omega 3 your giving. Alex Richardson suggests in some of her research that it is omega 3 in the form of EPA that is the least challenging for children who may have compromised metabolism. Eye Q has EPA in this form and also comes in liquid form (can add it to a yoghurty type pudding).
Aaaannyhoo, change one thing at a time and give it time to settle, especially if there are other things going on that change routine. Our children are all different and what works for one will not work for another so there is nothing for it but to try.
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Seminars on Food intolerences, including Natasha Campbell-McBride, Patrick Holford and Johnathon Brostoff
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My son has arthritic joints on hands and feet and I'm pretty sure it's connected to the immune system dysfunction he was suffering. We have made great progress by taking gluten and casein out of the diet and stuffing him with anti-oxidants (cranberry juice for eg). He is now hardly ever ill - he didn't get a single cold over the winter. When he was small it was one cold after the other and never really recovering from any of them, followed by bouts of vomiting, now also gone.
The diet's not really that hard once you have found 10 or so basic dishes, although the first week's shop was a nightmare and my boy took a long time to show real benefit (3 months for gluten to come out of his system). We've been doing it 3 years.
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It never rains but it pours.
What is the school's method of teaching reading? Look up the Clackmannanshire research for teaching reading with synthetic phonics. It seems to reach more children than the current National Literacy Scheme or whatever it's called. More specifically it seems to reach visual thinkers such as boys with dyslexia.
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Some lovely back-peddling there! I'd be pleased with that. Of course you will be doing no such thing as removing the original from your records.
On the minutes. Were your concerns, etc noted? I would be tempted to write a short letter to draw attention to where this is recorded.
Save your energies for the statement. This is a legally enforceable document and where your priorities lie, IMHO.
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GMC and other links on Patient Confidentiality here:
http://www.prs-ltsn.leeds.ac.uk/ethics/doc...dentiality.html
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Just wondering whether to order this. If anyone has read it, would you let me know what you thought?
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The Medical Research Council (boo hiss) is supposedly investigating the link between gut and the developing child, which I would assume is looking at familial traits.
Not sure how linking works on this forum, but here you go:
http://www.mrc.ac.uk/index/public-interest...search_fora.htm
Nice idea, but I've not seen any research that has actually been funded. The word is that they have not had any robust proposals.
Jaded
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I have found that it's worth phoning Sunderland when you get test results. If you're lucky you get Paul Shattock and he will tell you more than what they can put on the formal results.
My GP/Paed were unsupportive at first but now acknowledge what a difference it has made and generally encourage parents to try.
Jaded
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'Scuse me for butting in. But are you having investigations done? Don't want to 'dis' a professional but I have found that dealing with the underlying problem has been more productive in the long run.
Have a look at Brainchild nutritionals or the Kirkman's stuff for suitable supplements. Sounds like he would [/i]really benefit from removing gluten, and, ummm, soya is number three (after gluten and dairy) on the list of allergens.
BW
Jaded
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Hello
I'm new here but have been doing GFCF for 3 or more years.
For us it makes a tremendous difference. So much so that since my son got hold of some gluten loaded custard creams two weeks ago, he has been somewhat challenging, to put it mildly.
It takes an awful long time for the gluten to come out of the body and my son had some withdrawal, so for three months we weren't too sure that what we were doing was right and nearly gave up. If it hadn't been for the immediate improvement in bowel movements, I'm not sure we would have persisted.
The successes I see in my son are:
? increased attention
? reduced aggression
? fewer bouts of sickness
? faster recovery after illness
? formed and less smelly bowel motions
? the permanent runny nose is now dry!
? weight gain
? he does not appear to be in pain. [Looking at old photos I realise he was in permanent discomfort if not pain]
? interested in his surroundings [He is an active member of our family now, not just observing from the perimeter]
? most importantly, he is happier
Oh, and we no longer get night sweats. My husband feels so great on this diet that he sticks to it all the time (coeliac in his family). We're also into Eye Q.
Anybody want to ask me, I'll tell you what works for us.
Jaded.
chewing
in General Discussion
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Though we had lots of success with OT, this wasn't one of them. What worked for us was using a mineral supplement. I believe the technical term for mouthing/eating non food items is 'pica' and it's probably connected to zinc deficiency (more broccoli, then).