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Hi all, I am mum to Jackson who is 8. Very long story short me and hubby noticed signs in him from the age of 18 months. He is in year 4 and gets excluded a lot. He has violent outbursts, he swears, his logic is black and white, he is never wrong, he has few friends, he talks incessantly about his interests but never takes an interest in anyone else, he blurs fiction and reality, he is ridiculously clever and hilariously funny. I could go on and on, there is so much more to him but I am trying to keep this brief. So after battling for 4 years (since he was 4 and started school) we now have a date for his ASD assessment- 1st March! He will have an ADOS assessment in school then we go along to an assessment that will last 3-4 hours. We get a diagnosis on the day I believe. so can anyone help me with how this all goes? What to expect, what sort of things I should tell them? I’m so worried I will leave something important out that could make all the difference. I am also worried Jackson will be having a ‘good day’ and they won’t see what he’s like on his bad days. I would really appreciate some help and advice so I don’t waste what I think will be our only chance to get him diagnosed. We need help and support that we don’t get from the school because ‘he isn’t diagnosed’ so I am panicking they just won’t understand how difficult our every day lives are. Tha is so much x
Hi everyone, Its been an exhausting road but I pushed for an assessment at 22. Waited for 2 years no problem at all as I ccould keep checking where I am on the list. Have now had the assessment but the report could take as long as may. How do I cope with waiting without obsessing and it taking over my life? ??
Hi I have joined up as I need a bit of help with the assessment process for my brother. He's 27 and until recently was living independently but has just moved back in with my mother as he wasn't coping. We all realised he may have Aspergers about 2 years ago. This is where we are so far. We went to the GP who referred us for an initial assessment with a psychiatrist. They have referred him for a full assessment in London. However we have now waited a year and heard nothing. What do you recommend we do at this point? He is struggling and we think his support allowance may stop soon as the doctor is being awkward. My mum can't keep him at hers for long as it's a one bed flat. Are there any other living arrangements we could consider? We are in Kent. Thank you in advance Sarah Broadstairs, Kent
Hi people, Have you had difficulty in the past few years getting assessment; help; counselling, or anything ASD related, in the Suffolk, and especially Bury St Edmunds area? Do you think the area lacks ASD resources? If so, I really need your help. I’m a professional counsellor/psychotherapist in private practice with over 25 years’ experience. I work mainly from The Human Givens perspective (Look up caetextia!) and am also certified to use the 3Di assessment tool in clinic. Approximately half of my time is spent working with ASD related cases. I am in the process of setting up a new clinic near Bury St Edmunds in Suffolk. In order to do this I have to apply to the local planning authority for change of use of the existing building to use it as a clinic. I approached a couple of the better-known ASD charities, and the Local Authority ASD-services to ask them for some written support to use in my application to the St Edmundsbury planning office: specifically to show that there was a need for a wider choice of resources for all people affected by ASD and related issues (meaning partners/parents/children as well as those directly on the spectrum) in the Bury/Suffolk area. To my astonishment, I was told that that there was no need for private clinics because all ASD in the area was completely covered; that nobody had to wait unduly for assessment; that the NHS, CAMHS, SENCO, dealt with it all; etc., etc. My reaction? Probably the same as yours: Shock and disbelief: then laughter. I deal daily with people who tell me the exact opposite! So please, if you’ve suffered delays, setbacks, refusal to assess; whatever, then this is your opportunity to let the Local Authority (and, sadly/surprisingly, those charities) know the reality. It would really help our case if you could give a brief outline of what the issues were/are. Feel free to PM me if you prefer. There is a degree of urgency here. Thanks very much for taking the time to read this. My kindest regards to you all in your endeavours. Bluebottle, D.Hyp., HG.Dip.P., MA(PsychT).