hedders Report post Posted September 17, 2006 my dd was assessed by an ot who suspects sensory inergration disorder, the school (who i have alot of diffculties with) are taking away her iep even though she has reading and writing diffculties they will not put anything else on it, she is 5.5yrs the ot wasnt happy about this but has yet to observe her in school. does she need an iep for sensory intergration disorder? and what should be on it if so? Quote Share this post Link to post Share on other sites
darky Report post Posted September 17, 2006 hi there, first of all, if your child is seeing an OT or other outside agencies, then really that should be enough to have her at school action plus. if she is on school action plus she SHOULD have an iep. the sensory processing may be on her iep when listing her difficulties, but they may not work on the sensory processing as a target on iep, that depends on what targets the school suggest with you, and what her greatest needs are at the time. having said that, when my daughter had a sensory profile done, and the OT did her a sensory diet, this was clipped to her iep. Quote Share this post Link to post Share on other sites
Ian Jordan Report post Posted September 17, 2006 If an OT has diagnosed sensory integration problems you it is critical that you address visual and auditory processing deficits too, (they are almost certainly present) and an integrated response is necessary. These are not tested for routinely and it is unlikely that you will be able to access these through the NHS/LEA. Good luck Quote Share this post Link to post Share on other sites
Karen A Report post Posted September 17, 2006 I was at a meating last Wed.Evidently children in our area can access specialist OT for SIDS but only if it is documented within a statement.Specialists are extremely few and far between.It is worth getting a statutary assessment if there is any way to push for one.Karen Quote Share this post Link to post Share on other sites
snowman Report post Posted September 17, 2006 What Ian Jordan said is very important. My 6 yo son has hfa and sid and we are working on getting him assessed "orthoscopically"(sp?). He's very shy of new people so this may take time. We had an appt with Ian Jordan and I found that I could see faces properly (for the first time in my life) when I looked through a coloured filter. I've always had problems recognising people I'd only met briefly. I had never realised that other people could see a whole face in 1 look - I had to keep rapidly looking at different bits (l eye then r eye then mouth then back to l eye...) to guage expressions. The same applies when I look at a clock face (I had to look at both hands separately until I tried the filter). It also improved reading of fine print and distance/speed judging of traffic. The weird thing is it also affected my perception of fluorescent light flicker, sound, music, balance, pressure, smell, taste and temperature. I will be interested to know if my son sees things as I do and whether other kids on the spectrum do. Re an iep for sid - we home educate as ds was failed by "school action plus" (a misnomer). Its quite easy to put together your own provision at home - "The out of sync child has fun - activities for kids with sensory integration dysfunction" by Carol Stock Kranowitz has lots of ideas which you/school can tailor to your child's requirements. Quote Share this post Link to post Share on other sites
smiley Report post Posted September 18, 2006 my dd was assessed by an ot who suspects sensory inergration disorder, the school (who i have alot of diffculties with) are taking away her iep even though she has reading and writing diffculties they will not put anything else on it, she is 5.5yrs the ot wasnt happy about this but has yet to observe her in school. does she need an iep for sensory intergration disorder? and what should be on it if so? Hi Hedders, My son has SID and although it is not within his IEP, his sensory diet (from OT) is mentioned and stapled to it. I did have to push for this - but i felt the IEP was a worthless document if the SID wasn't know about (it affects so much of his school life..). Some schools have a copule of IEPs running at the same time, one addresing educational difficulties, one addressing SI problems and another addressing social, communication and language problems. It can vary greatly from school to school. Why on earth are they taking away her IEP if she is still having reading and writing difficulties?????? That is ridiculous! I agree if she's having outside help from OT - that would imply (to me...) that she needs to be on school action or school action plus. Have you tried writing to the school with your concerns and forwarding a copy onto the SEN govenor?? That's what worked for me... HTH xxxxxxx Quote Share this post Link to post Share on other sites
bramblebrae Report post Posted September 18, 2006 Hi, Could someone explain what a 'sensory diet' is and how it works please? I'm really curious as I've not seen it mentioned before. thanks Lorraine Quote Share this post Link to post Share on other sites
Tez Report post Posted September 18, 2006 Sensory diets are explained on these websites:- Sensory diet activities Sample sensory diet There are lots of other websites if you just google sensory diet. Quote Share this post Link to post Share on other sites
hedders Report post Posted September 19, 2006 i have written to the school about my concerns, the headteacher says all children have diffculties and some are slow learners. they are taking her iep away because i feel they dont want her assessed by an ed.psy who could say that she might have asd, i have not infromed the school about her ot assessment as i know the head teacher will try and get her discharged. i know that the senco has been doing jigsaw puzzles and other things with my dd without informing me. this is all because when my paed. assessment was sent to the school the headteacher told paed. my dd has no diffculties and now she wont retract it back, as i reported her to the education department. the school may think my case is weak but they are unaware that my younger daughter has repetetive speech and is delayed, sensory issues and repetetive behaviour and is now in the system of being referred to a paed. Quote Share this post Link to post Share on other sites
darky Report post Posted September 19, 2006 hi hev, the same thing happend with my son. the schools senco tried every single trick in the book to NOT have him diagnosed, even to the point of ringing services and telling them they were not needed. my son has a diagnosis without her help thank god. persevere, listen to yourself not them. <'> Quote Share this post Link to post Share on other sites
gladysmay Report post Posted September 21, 2006 (edited) do please press on if you feel your child has real difficulties, I did not have the confidence to do this and spent several frustrating years disputing the inappropriate interventions for my child until he was 18 and I paid for a referral to Prof Baron-Cohen, needless to say he was diagnosed with Aspergers Syndrome and since I had all his school records from day one it was glaringly obvious, best wihses:) Edited September 21, 2006 by gladysmay Quote Share this post Link to post Share on other sites
rainbow queen Report post Posted September 21, 2006 hi hev, the same thing happend with my son. the schools senco tried every single trick in the book to NOT have him diagnosed, even to the point of ringing services and telling them they were not needed. my son has a diagnosis without her help thank god. persevere, listen to yourself not them. <'> hi i was just reading this post and im having similar probs as hedders-----and as you mentioned darky with the senco to-ive really hit a brick wall-and they too are trying to with draw my sons speech therapy-ive just e mailed them demanding that they cant?---is any of this legal? i was basically blackmailed in the head teachers office that if i choose to withdraw my sons---which i have -ive got them in another school on mon-that he can not have his appointment with speech therapist who was going to just do a reassess -and if he still needed her input he would still get a iep-now hes got nothing-and the head teacher told the new school that they have now took him of the speacial needs regestir ---right after our argument i add-without even telling me. is this mess normal affairs in all these matters??? my son still got no dx Quote Share this post Link to post Share on other sites