JenRose Report post Posted November 1, 2006 We saw a specialist health visitor, a physio and an OT. Health visitor got my goat straightaway as she obviously hadnt read DD,s notes where our usual Paed agrees with us that she is ASD and started poo poohing everything we said with things like "it could be learned behaviour from her brother and she,s not used to interacting with children because her brother has AS, to which i hit back erm well she,s in full time nursery and has been for over 10 months and "she,s too clingy, its an attention thing and she should be asleep throughout the night, if she wants to scratch her face and head bang then let her, she,s not going to kill herself I cant believe that last statement, now people can call us soft but i know its not an attention thing she,s genuinely frightened on her own at night in the day all she wants to do is sit on my knee and play with my hair and all she wants to do at nursery is be carried around by her jey worker - learned behavviour FGS. Oh and when we told her that she wears Peltor Ear Defenders when she is in a noisy environment she said that is not a good thing and that she has to get used to noisy environments. After about 10 mins she said to me "i can tell by the look on your face that you are thinking that im talking absolute rubbish arent you?" So i laughed and told her that i have been through so many professionals with DS and i know what my daughter has and that i also know she has a job to do blah blah and at the end of it she asked me to come and speak to a support group she has running on how to parent kids with an ASD. So she needs to make her mind up, either she thinks im talking out of my backside or she sees me as some kind of authority, oh its a long road ahead and we,ve not even met the Developmental Paed yet, hope thats not going to be like today. We are back there next week to see Ed Psych, Paed and SALT. Quote Share this post Link to post Share on other sites
Bagpuss Report post Posted November 1, 2006 JenRose, really sorry to read about today <'> You must feel as if your banging your head against a brick wall. Hope next week is more positive! Take care Quote Share this post Link to post Share on other sites
Bullet Report post Posted November 1, 2006 It must be so exasperating for you . Could you go with a list of how she differs from her brother? Quote Share this post Link to post Share on other sites
butterfingersbimbo Report post Posted November 1, 2006 oh no......i didnt know that hv's can dx autism? last i knew you needed to see a dr for that? hopefully when you have your next appointment you wont feel like you are i think bullet has had a good idea about looking for differences between your daughter and your son. then that cant be learned behaviour can it. i remember going to the cdc with el when she was little....its a difficult process. good luck and hang on in there! Quote Share this post Link to post Share on other sites
ullean's mum Report post Posted November 1, 2006 Hi jen rose, stick to your guns and don't listen to any professionals who tell you it is copied behaviour,our youngfst dd has just been given her diagnosis and it only took 6 months because professionals realised that having 2 already diagnosed i was in no mood to mess about and waste time ,took us 15 yrs to get our oldest diagnosed and 6 yrs for our youngest son. Quote Share this post Link to post Share on other sites
JenRose Report post Posted November 1, 2006 ulleans mum- i think thats what happened towards the end of the consultation with the HV, she knew she was wasting her time trying to tell me the 100s of different things that R could have and it not be an ASD and she even started saying that me and Dave were an inspiration to her!!! Its the paediatrician im dreading seeing, ive been told by a couple of parents that she,s quite arrogant and doesnt like anyone telling her her job which is not what i intend to do at all, im going to listen to what she says and then ill hit her with my experience!!! Surely they cant overlook what we are saying about R, as M has AS as i do myself and my cousin has it and possibly my dad. I hope not because then we,ll have to go private again and we just dont have the money at the moment. Quote Share this post Link to post Share on other sites
ullean's mum Report post Posted November 1, 2006 Hi Jen rose,We had 15 yrs of paed telling us our eldest son did not have AS ,when cahms did the diagnosis at 15 yrs the same paed sat there and agreed with them that he did have AS,no apology for what he had put us through for all those yrs. But i had 15 yrs of pent up anger to let loose on him ,and did so . I realised you have to grow a really tough skin to be able to come through the whole experience and still have your sanity in tact. good luck and hope everything goes well for you and yours,feel free to pm me if you want to talk further. Quote Share this post Link to post Share on other sites
