and heres my diagnosis

[anita81]

im not a happy teddy.it was time for my dianosis today as you might know from my last post.first of all my taxi was late.I DONT DO LATE!!!!got myself all worked up.the doctor i was supposed to seeing sent someone else to see me which i was quite annoyed about.well about an hour and a half of me talking and hhim writing notes,he took the notes to the doctor.5 minutes later he came back and told me the doctor said that i didnt have aspergers but it was only anxiety.he said yes i hhave sensory issues,communication difficultys and social problems, but that has been caused by my shyness,and then offered me anxiety counsilling!im so upset.i know i have anxiety,but who dosent after trying to raise 3 kids single handedly.i now feel i t wasnt worth the effort going.because now ifeel i just dont know who i am.hes made me another appointment for 2 months time.he was even rude to me.he laughed and said because i have sensory issues it dosent mean anything.i cant have a phisical relationship because of these sensory issues,so he asked me if the real reason that i cant have a physical relationship is that i might have been sexualy abused!(which i have not).i dont know where to go from here.do you think i should put up with this diagnosis,or ask for a second opinion?

[Bullet]

I'd ask for a second opinion.

[cmuir]

Gosh I'm so sorry you didn't hear what you perhaps 'wanted' to hear. You know what? ... Specialists don't always get it right! Don't give up if you feel strongly that you've been misdiagnosed.

 

In my son's case, my health visitor, GP and Paediatrician categorically said my son didn't has Aspergers. He does and hearing something that I knew was wrong made me all the more determined. I did so much research (and found this forum) that I knew he has AS. I got a diagnosis for him and my heart and my head tell me it's the right one!

 

You're going to feel like you've had the stuffing knocked out of you, but persevere. Take a bit of time, and ask for another referral/second opinion.

 

In my son's case, I kept a diary over a 9 month period and I'm convinced that was a massive contributory factor to getting a diagnosis. I detailed all the difficulties, tantrums, events ... basically, the most normal things that had the most horrendous outcomes! Might be worth detailing a summary sheet ie with bullet points all the difficulties that you have, how things were for you as a child, how you coped at school, etc.

 

Best wishes

 

Caroline.

[TheNeil]

So basically the doctor diagnosed you via second hand information?If you're AS then you're not AS but I wouldn't be happy being diagnosed (or not) in this way. Who knows if this person really did take the notes to the doctor? Who knows whether he doctor read them properly? Who knows what this 'intermediary' actually wrote down/observed? Was this 'intermediary' even qualified to identify ASDs?

 

I'd definitely be pushing for a second opinion

[tighna]

It is not unheard of for a specialist to offer a mis-diagnosis, and I would suggest you push for a second opinion if it is important to you to be diagnosed.

[nellie]

I agree, I think you should ask for a second opinion.

 

You have the right to ask your GP for a referral to a doctor or medical team with a specialist knowledge of autistic spectrum disorders.

 

This NAS link gives information on diagnosis including Complaints procedure for people unable to get an assessment

 

http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=255

 

The NAS have a helpline and a helpline email service, it might be worth contacting them for advice.

http://www.nas.org.uk/helpline/

 

Helpline Christmas opening hours.

http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=253&a=11999

 

Good luck, keep us posted.

 

Nellie xx

[anita81]

thank you for all of your replies.youve all given me the push to get a second opinion.im gonna ask to see the main doctor this time.ive got an appointment again in 2 months time.i am going to keep a diary too,i think that might help.do you think i should take my mum?she might be able tell them how i was as a child.

[TheNeil]

thank you for all of your replies.youve all given me the push to get a second opinion.im gonna ask to see the main doctor this time.ive got an appointment again in 2 months time.i am going to keep a diary too,i think that might help.do you think i should take my mum?she might be able tell them how i was as a child.

 

I took my mum (and Mrs Ex-Neil) when I went private but I was asked too so I suppose I didn't have any choice. The NHS people didn't ask me to take anyone but they still asked a couple of questions about childhood and that kind of thing.

 

If it was me and I was in your situation, I'd be inclined to take her along with you (if she wants to go of course). Even if they don't ask her any questions, at least it'll be a bit of moral support if nothing else. The diary's also a great idea and I just hope that they're a bit more useful next time.

[Tally]

Your mum's input could be very helpful in proving that you have lifelong symptoms (rather than symptoms with a psychological basis). It would be a really good idea for her to write down as much as she can think of about ways she noticed you were different from other children, from as young as possible. Then you can hand in her notes, or she can use them herself to make sure she doesn't forget anything.

 

I would take up the offer of anxiety counselling, especially as you do feel you have problems with anxiety anyway - it could help. It will also help keep them onside if you don't reject their attempts to help.

 

And I would also pursue a second opinion. You are entitled to one, and failure to diagnose is very common. It may be best to wait until after your next appointment to push for this, unless there is any urgency.

[dooday24]

you should deffinetly get a second opinion that was discusting these people think they r better than us but they r noy good luck love donnaxx <'> <'> <'> <'>

[JenRose]

yes definately get a second opinion.

 

When i got my dx from the NHS, they asked my DH to go with me but he couldnt get the day off work and so he wrote a letter all about me and how i am etc and i also provided them with the telephone number of my friend who i have known since childhood.

 

HTH

[butterfingersbimbo]

good luck with the second opinion! <'> <'> <'>