Loui Report post Posted October 1, 2007 Hi Everyone, My name is Loui, and i am a married mom of four beautiful girls. My third child Mia has been recently dignosed with ASD. It has been a horrendous struggle for us as a family. When we first noticed problems with Mia, we assumed that it was because she had hearing problems. She was operated on when she was 13 months old. It didn't make any difference to Mia she still appeared unresponsive to everything around her. After being referred to a family health centre we were told there was nothing wrong and we shouldn't be trying to label our daughter with the " Autistic" label. The health visitor at this health centre must have taken a dislike to us, as she contacted social services claiming we were trying to label Mia with the Austistic label. this was not true, as i worked full time my daughters were with child care, and it was them who came to myself, sharing there concerns about Mia's "strange behaviour" as they called it. It tool my voice away as a parent i was frightened to take ANY of my children to the doctors. After remarrying and moving home, having full support of my husband we resumed trying to find out why Mia was different. Now age 8 , and becoming harder to deal with, finally we got a answer Mia had ASD. Should i have felt relief ?? i felt nothing but anger that it had taken myself and my family 5 years to get the answers to why my daughter was special. She is now on Melatonin 9 mg to deal with her irregular sleep pattern. Still waiting for language therepy, and all that comes with it 8 months later. Still nothing. We have had no choice but to contact the independant case officer and put in a complaint concerning Mia's non dignosis, The struggle to get her statemented even thou she is coping in primary school. Secondary school is soooo great i fear that if she isn't statemented that she again will get lost in the system. I hope this forum will able me to help others and others to help myself. Thanks for reading our story. Quote Share this post Link to post Share on other sites
annie Report post Posted October 1, 2007 Hi Loui , Welcome to the forum.........and thank you for sharing your story. Annie xx Quote Share this post Link to post Share on other sites
wishingwell Report post Posted October 1, 2007 Hi Loui, You are very welcome to the forum, all of us came here hoping to find answers. You will get help, support and hopefully answers here 24/7. Thanks for sharing your story with us. <'> Quote Share this post Link to post Share on other sites
elun1 Report post Posted October 1, 2007 <'> Welcome to the forum. You must feel so hurt and angry on behalf of your whole family for the treatment of your daughter. That is just disgraceful. It's funny how you meet some wonderful professionals along the way yet some are scarily ignorant but still have the power to involve social services. Anyway I hope things start to get easier for you soon Elun xxx Quote Share this post Link to post Share on other sites
pearl Report post Posted October 1, 2007 Big welcome to you Loui <'> Quote Share this post Link to post Share on other sites
Kathryn Report post Posted October 1, 2007 Hi Loui, Welcome to the forum, look forward to getting to know you. K x Quote Share this post Link to post Share on other sites
Loui Report post Posted October 1, 2007 Big welcome to you Loui <'> Thanks everyone for a lovely welcome. At least i can say alot of parents in here no how i feel. I find that people are very ignorant of ASD, and other similar conditions. I believe this site will allow me to vent, chat , and hopefully gain some friends that share the same experiences with their children as i do some times it can be quite lonely. Thanks again for the lovely welcome Quote Share this post Link to post Share on other sites
stressedmumto2 Report post Posted October 1, 2007 Welcome to the forums, keep posting you will get lots of advice <'> Quote Share this post Link to post Share on other sites
