Kimdim Report post Posted February 9, 2009 (edited) Hi My name i Kim and i have two boys Callum who is 12 and a half and Cameron who is eleven. I live in Scotland. Callum has dyspraxia low muscle tone hypermobile joints. There is also 'something else' going on with him as well. He has loads of sensory issues consantly neds to put things in his mouth has to touch everything etc also hand flaps sometimes as well. Im waiting to get him reassessed by the child paed in our area. We receive DLA for him up until last March it was low rate mobility middle rate care then they sent us a letter saying he didnt requie it any more due to a report the headmaster put in we went to tribunal in October nd got it back to but they put it down to low and low but by this point i was fed up of fighting so acepted it. I was speaking to a girl at our local Carers centre and she said that we should get high rate care for him but im not sure she said she woud help fill in the forms with me when they came back in ive never had any help to fill them in before, ive always done it myself so im going to get some help this time though i would be happy if we got middle rate back. He is at a mainstream school with support and seems to be coping just now just dont know what next year will bring. Sorry for rambling on. Hope to speak soon. Edited February 9, 2009 by Kimdim Quote Share this post Link to post Share on other sites
smiley1590 Report post Posted February 9, 2009 i have dyspraxia which i was officially diagnosed with first whic most people are! i also later on was diagnosed as having aspergers you son could have AS/autism so this needs to be looked into,researched and checked out! ii get middle rate DLA well my mum does and taht with both medical conditions i suffer with! i would get your doctor or your peadtrician who will re assess your son to help with filling in DLA form as you need to put down the negative effects dyspraxia brings him so put worse case situation of how makes him be or feel! hand falpping very common with autistics not dyspraxics as much and sensory probs are also more autism so i hope this helps with this information and hope you get the answers for your son needs and wants! don't take no for answer carry on fightin through which your doing you sound fantastic! does you son not like change in routine...? gets upset easily ...? doesnt like loud noises gets anxious ...? gets obssessed with certain objects and carry this around him or needs it to comfort him! how old was your son when diagnosed with dyspraxia...? who noticed his differences...? does he not like socialising with his peer gorup but seeks comfort and reassurance from adults around...? does he have speech,communication and language delay...? does anyone else your family have AS/Autism/dyspraxia...? try and prepare for another diagnosis as this could be likely read up on info with AS/autism and see the signs matches your son like the NAS website! Quote Share this post Link to post Share on other sites
smiley1590 Report post Posted February 9, 2009 my parents and family once believed like you saying 'something else' was 'hidden away' now i know thats was the aspergers part of me thats explains the other missing half of me alot people explain it that way you have many want to find out and why and discover other medical conditions linked closely like autism! does your son not make eye contact...? have difficulty concentrating ...? low self-esteem more than just dyspraxia affects of and wid diff con.! keep insisting and banging on doors that you want an official diagnosis that what my parents had to do with my dyspraxia diagnosis so you might have to with the aspergers/autism is he more ADHD,ODD,PDDNOS? take care KLXxXx Quote Share this post Link to post Share on other sites
Karen A Report post Posted February 9, 2009 Hi kimdim Welcome to the Forum. I have Ben who is 10.Ben obtained a dyspraxia dx three years ago.He also has Social Communication Difficulties which CAMHS were convinced would not warrent an AS dx.Ben was reassesed by a CAMHS psychchiatrist last year and was dx AS after all.....so it is not unkown. There are several parents on the Forum who have children who have AS and dyspraxia and some adults who have a dyspraxia dx but who think they may also have AS.Karen. Quote Share this post Link to post Share on other sites
Kimdim Report post Posted February 9, 2009 He doesnt like change in routine either he doesnt get on with kids his own age he prefers younger children or adults his speech is really bad despite speech therapy. Callum was diagnosed at 4 and a half originally the nursery spotted the signs and told us that there was a problem he also needs to have his tv up louder than normal and im forever telling him to turn it down. His sef esteem was awful a few months ago i actually taped him on my moble phone what he was saying it was so bad. There was a child psychologist coming to see him and i wrote down what Callum was saying and ive kept it he now is going to start see ing him once a month which i pushed for as he was here a few weeks ago and that was supposed to be his last appointment erm dont think so. Me ive always been clumsy my mum used to sa i would fall over a straw but ijust get on with it i dont know if i would want assessed for me i know that there is something there but hey its hard enough fighting for Callum without fighting for myself as well. Quote Share this post Link to post Share on other sites
mumtothree Report post Posted February 11, 2009 hello i think i recognise u from somewhere else its me natalie with holly, matthew and samuel welcome i only joined recently after some much needed info i know what a struggle u have had Quote Share this post Link to post Share on other sites
Kimdim Report post Posted February 11, 2009 Hi Natalie great to see you hun have repliedto your other post sending you another hug. Quote Share this post Link to post Share on other sites
Kathryn Report post Posted February 11, 2009 Hi Kim, welcome to the forum. K x Quote Share this post Link to post Share on other sites
