mumtothree

hi was meant to do this last night but fell asleep. at the end of matthews report it states The ADOS assessment was scored by the therapists. The ADOS indicated that Matthew does have difficulties within the 3 areas of social communication, social interaction and social imagination. However it was felt that further information needs to be obtained from Matthew's school, sensory assessment and language assessment before a full diagnosis can be given. CONCLUSION. Although Matthew does have significent communication and interaction difficulties, it was felt that he requires a formal assessment of language and sensory processing difficulties before a definate conclusion can be made. RECOMMENDATIONS. 1. formal speech and language assessment. 2. sensory/motor assessment. 3. pending assessment we request the education department and the school to provide matthew with the same support as would be provided to a child with social communication disorder. going over his report under language and communication they noted that matthew used sentences to comment and answer questions thoroutout the assessment, although these were occasionally difficult to understand or appeared to be out of context. the structures of his language sometimes appeared to be sterotyped. (not sure what they mean by this). his responses to questions were not always approiate although this may have been as a result of a difficulty in understanding (or processing) of language. they went on to say that it was possible to have simple conversation with matthew he did sometimes respond to questions and comments from the therapist inviting questions altough the listener at times had to work hard to maintain the flow of conversation as he did not always reply in the expected way. theres 8 pages of it so just picked up a couple of bits from it.

hello and thank you they feel they r not sure if all his other problems r making the issues he was assessed for worse. ie sensory and not seeing to understand what was being asked of him. the ADOS assessment involved a paed talking to us, and a OT and SALT assessing matthew. i will dig his report out in a bit and put some of the pointers. they felt with the possible sensory and language difficulties where infact making things worse for him. personally for years i have felt hes on the spectrum and we was told we would get a answer at the end of the 3 hours and we didnt. hes awaiting a sensory assessment, he had a motor one but they couldnt see anything obvious but many people have mentioned dyspraxia to us. once he had the OT and SALT do there assessment at school then they go over there findings. we r due to have a re assessment in october (6 months from his last one). i think at school the obessive with the routines etc wasnt noted so im unsure if that is what is putting it on hold. when the kids go to bed i get his report and write a few pointers made. its very frustrating esp with the school who see he has problems with mainly his concentration attention etc but not the full picture

hi there and welcome quite a few things u have mentioned reminds me of my son. the food issues, the clothing, the fixing on to things. how long has he been like this? personally i would go and see your gp and ask to be referred to a community paed. my son is waiting to be diagnosed with autism he dont show many of traits at school, some he does ie covering his ears and has the communication, interaction and imagination difficulties but hes worse at home with obsessions, senstivity etc. in the mean time keep a diary of what u find to be "odd" never know what word to use but what u think isnt quite right. but i would definatly speak to ur gp about ur concerns and ask for a app with the community paed. have the school not picked up on anything? maybe they just have notiched to much 30 kids in a class is hard to pick up all of ther behaviour i feel. hang in there and good luck

not sure if this is normal and i know matthews hearing is fine but the last couple of weeks, we say something but its like its not registering. hes hearing is ok so we know he can hear but its weird and i dont know if its a normal thing. like the other day we was crossing the road, there was a island in the middle so told matthew to stop but he kept walking, 3 times i had to say it b4 it registered. its like hes off with the fairies and not with it all. there r other things to that takes alot of repeating to get him to concentrate on what we r saying. just wondered if anyone has gone through similar

hello i thought i would restart here as its been a while since i posted brief update with matthew, feeling quite alone and frustrated at the mo. matthew had a ADOS assessment in april after seeing the community paed in feb. the ADOS assessment was inconclusive but he had significant difficulties in social communication, social intreaction and social immagination. hes due to be assessed at school by OT and SALT. paed says school and education should provide matthew with same care given to child with autism even though there is no offical dx yet. however school r saying no diagnosis not much they can do. hes on school action plus, 5 hours a week. ive asked again about statementing and been told by senco it would be refused as hes clever. i get told by his teacher come year 1 hes going to struggle but they say while hes numeracy and reading is way above average hes not struggling in those areas so a statement would be refused. im so worried about september. hes also waiting for a sensory assessment, ive neen keeping a diary of all his odd ways. at the mo hes frusttrating us with crying at things, instead of speaking he cries, last few days have been about things being thrown away. hes always sensory seeking, smacking himself, poking things in his eyes. he also keeps finger crossing and i mean hes doing it for hours and hours. all we have to do now is wait for ass at school end of month and see what they find and then bk to the paed to hopefully at long last come away with a diagnosis and then the school cant argue (not hope not)

well we have less time than i thought they have a cancellation for monday morning so i took it

after seeing the paed in feb, we finally have a date for matthew's ADOS assessment its in may so 3 months from beinf refereed to being seen isnt bad i dont think. been told its a 3 hour appointment and will get told the outcome at the end of it. we know hes austic but would be good to find out where on the spectrum, he know hes high functioning. it cant come soon enough. have a new SENCO at school now not met her yet but hes due a IEP and school action plus review in may. anyone have any info on this assessement please

we have similar although matthew only started in september there has been 10+ birthdays which seems everyone but matthew has been invited, it dont help that alot of the parents help out in class so obv see what hes like and dont want him at there party. he says he has no friends, all he plays with is his sister at play time and im worried as september she goes to the juniors so wont see her. it is sad but peoples ignorance is terrible would like to see how easy they find to look after a child with ASD etc

Matthew went bk today woohoo he should of gone bk yesterday but he had an appointment at GOSH so went bk today. new SENCO started yesterday so hoping shes better than the last one

received the report from Matthew comm paed today. Matthew has been referred for ADOS assessment and OT to help with sensory and motor skills and a motor skills workshop. also have writen to the teacher to get a report on how he is at school, the letter states he has a signifcant high score for hyperactivity and high ADHD index. kind of feels ###### having it all in writing, hes sent us copys of everything, letter to his pead, letter to teacher, letter to OT and letter to the team who do the ADOS asssessment. been a pretty panic couple of weeks since diganosis Matthew was diagnosed with inflammatory bowel diease on tuesday so started treatment for that. if info on the ADOS assessment the better please

multi disciplinary assessment apprently there will be alot of people observing him ie OT, SALT, PAED etc

Matthew is 4 years 7 months. he been having problems since he was 9 months old, 1st started with noises and has continued since. hes symptons are poor concentration and behavoiur, poor motor skills, poor eye contact, hand flaps, obsessions, needs routines, senstive to noise (covers his ears), senstive to clothes, doesnt play or talk to his peers at school. very hyperactive the list goes on. yes matthew is at school has been since september. hes only there part time at the mo, hes just going onto school action plus and they r writing up a IEP now. what concerns u about ur dd? how did u get on with ur app?

thank you so much guys tbh im not sure how i feel, guess as things start moving forward with all the app's etc then i guess it will hit home matthew has stopped being sick but poor samuel is still puking but he kept some milk down this morning so fingers crossed, he puked in pur bed last night so at 11pm had to change all the bedding etc, then at 4am puked in his cot so then had to change all that oh the joys hey does anyone have any experience with a MDA?

aw hun how fab he sounds like hes doing well

hello i think i recognise u from somewhere else its me natalie with holly, matthew and samuel welcome i only joined recently after some much needed info i know what a struggle u have had