Jump to content
  • Announcements

    • Kris

      Depression, Mental Health and Crisis Support   06/04/2017

      Depression, Mental Health and Crisis Support   Depression and other mental health difficulties are common amongst people on the autistic spectrum and their carers.   People who are affected by general mental health difficulties are encouraged to receive and share information, support and advice with other forum members, though it is important to point out that this exchange of information is generally based on personal experience and opinions, and is not a substitute for professional medical help.   There is a list of sources of mental health support here: <a href="http://www.asd-forum.org.uk/forum/index.php?showtopic=18801" target="_blank">Mental Health Resources link</a>   People may experience a more serious crisis with their mental health and need urgent medical assistance and advice. However well intentioned, this is not an area of support that the forum can or should be attempting to offer and we would urge members who are feeling at risk of self-harm or suicide to contact either their own GP/health centre, or if out of hours contact NHS Direct on 0845 4647 or to call emergency services 999.   We want to reassure members that they have our full support in offering and seeking advice and information on general mental health issues. Members asking for information in order to help a person in their care are seeking to empower both themselves and those they represent, and we would naturally welcome any such dialogue on the forum.   However, any posts which are deemed to contain inference of personal intent to self-harm and/or suicide will be removed from the forum and that person will be contacted via the pm system with advice on where to seek appropriate help.   In addition to the post being removed, if a forum member is deemed to indicate an immediate risk to themselves, and are unable to be contacted via the pm system, the moderating team will take steps to ensure that person's safety. This may involve breaking previous confidentiality agreements and/or contacting the emergency services on that person's behalf.   Sometimes posts referring to self-harm do not indicate an immediate risk, but they may contain material which others find inappropriate or distressing. This type of post will also be removed from the public forum at the moderator's/administrator's discretion, considering the forum user base as a whole.   If any member receives a PM indicating an immediate risk and is not in a position (or does not want) to intervene, they should forward the PM to the moderating team, who will deal with the disclosure in accordance with the above guidelines.   We trust all members will appreciate the reasoning behind these guidelines, and our intention to urge any member struggling with suicidal feelings to seek and receive approproiate support from trained and experienced professional resources.   The forum guidelines have been updated to reflect the above.   Regards,   The mod/admin team
Anthony01

Adult Diagnosis, what next?

Recommended Posts

Hi, I could use a little advice.

AS runs in my family and I have been aware that I am very symptomatic for many years and my father who is AS has told me so, but I have never gone for a professional diagnosis, but recently I decided to get diagnosed as I am getting married next year and we are thinking of starting a family. I thought perhaps an official diagnosis would help my new in-laws understand me better and I thought it would be useful to have access to AS support groups, especially as I may become a parent. Perhaps more importantly, it has been praying on my mind recently that perhaps I should get an official diagnosis just for my own peace of mind.

 

A few weeks ago I approached my GP about seeking a professional diagnosis and she seemed to be very supportive by the idea and wrote a referral. Since then my GP has left to work at another surgery. I received a letter on Friday last week asking me to attend my local surgery to meet the new GP, so I made an appointment and went yesterday.

 

The new GP told me that the local Mental Health team had replied saying they would not see me because there is no treatment for Aspergers Syndrome. He went on to firmly suggest that I should not push this any further as it would undoubtedly affect me future employment prospects. When I mentioned reasonable adjustments he laughed and said that I would have to get an interview first and that would be unlikely with an AS diagnosis.

He told me that he believed I was just socially awkward and perhaps should consider seeing the surgeries Counsellor to help with that and to learn how to interpret facial expressions and body language better. He suggested that if I could go privately if I really wanted a diagnosis, but said that a private diagnosis doesn’t hold much sway with him, because if you pay someone £150, of course they will say you have what you want them to say and any future care would have to go through him.

 

I'm actually suprised at how upset I am over this confrontation with my GP. He felt he was incredibly dismissive about a condition that I have lived with all of my life. I really don’t know what to do or where to turn next.

 

Anthony

Share this post


Link to post
Share on other sites

Is it were me I would book to see a different GP at the surgery and also put in a complaint the PALS as all that sounds so dismissive to me!

 

My DP has decided not to pursue his dx as it has taken 8 months and 3 attempts at CBT type assessments to get nowhere and he is fed up of his GP not listening to him (or him getting in a muddle with what his GP has actually said) I would prefer him to keep on with getting the right assessment, but he is an adult and makes his own choices.

 

DP has not had trouble getting a new job, he changed last November and was very upfront about the likelihood of him having AS and his new employers thought nothing of it! Where I work they employ a whole factory of people with disabilities from limb loss to downs, ASD and all sorts too.

Share this post


Link to post
Share on other sites
florrie   

Hi Anthony, I know how you feel unfortunately I also had a lot of this sort of treatment from doctors and am now too traumatised to see them. They put me into therapy for years when I have a communication disorder, and gave me SSRI which I had a bad reaction too, and left me worse off. They ruined my life and now I have severe social phobia too.

 

I think if you can you should complain about disability discrimination if you do not get anywhere with a new GP

 

I had to go privately too and I've been dx three times now once by a world class professor whose research created the asd criteria, but apparently the idots at the mental health team who have no knowledge or experience of understanding asd or what it is still do not accept dx.

 

You are entitled by law to a full proper assessment to a specialist in ASD, it is your human right to have that. The mental health team do not do proper professional assessments, you are entitled to be referred to a specialist who does this such as CLASS. I'm so fed up with hearing stories of GPs who are so arrogant and think they are beyond the law.

Edited by florrie

Share this post


Link to post
Share on other sites
trekster   

Well said Florrie, we had to pester my doctor for 18months before i got diagnosed.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now


×