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Isobel

Polycystic Ovarian syndrome and aspergers - a link?

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Isobel   

Me and my mum has always been pondering this. Sexually I am inactive to the point of not being interested in making relationships at all, I even flinch sometimes involuntarily when a work mate just casually pats me on the shoulder. I have never kissed anyone (apart from family cheek kisses) and I will hug people. Is this aspergers all over or can it be connected with my pcos? I have no periods and my weight gains very easily, and I have excess hair on the face.

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Lyndalou   

A family member of mine has Polycystic Ovaries and is married and has a child. Of course, there is a possiblity that she may be on the spectrum but although her physical problems are on-going she has been in this relationship for a number of years and has also had previous boyfriends :) .

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Isobel   

I have been definitely diagnosed with PCOS with a gynaecologist. Will look up turners syndrome though.

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Sexually I am inactive to the point of not being interested in making relationships at all, I even flinch sometimes involuntarily when a work mate just casually pats me on the shoulder. I have never kissed anyone (apart from family cheek kisses) and I will hug people.

 

This very much describes me! There's no concrete answer as to whether it is 'Asperger's all over' because as symptoms of AS, these are things that vary greatly amongst AS sufferers. Some people with AS aren't interested in relationships or sex or any of that - I for one, like you, am definitely not! However some people with AS want nothing more than to find someone to be in a relationship with. Therefore it could be down to AS, it may not be.

 

As far as PCOS goes, I don't know enough about it to know if there are any connections between that and relationships. I know that weight gain, irregular periods and excessive body hair can be symptoms of PCOS, but in my limited knowledge of it, relationship issues are not something I have ever heard associated with it. Plenty of people with PCOS have successful relationships and sometimes even go on to have kids.

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Sharn   

Hi I would say very unlikely to be PCOS , I have it and enjoy relationships . The touch thing is common with AS and hypersensitivity ,some people hate solf touch or sudden touch, but ok with firm touch .Could you speak to your specialist? Hope you get some answers.

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Hi

 

I can see that these traits can be like those on the autistic spectrum. However I also imagine that knowing you have PCOS and having weight difficulties and excess hair could affect your confidence with people and feeling attractive, or feeling that others will find you attractive. You're likely to be harder on yourself than other people are though.

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Munchy   

Hello Isobel

 

This thread caught my eye because I have PCOS and a daughter diagnosed ADHD/Aspergers. It is not your PCOS that makes you feel that way it is your Aspergers. After my daughters diagnosis I looked at myself and I can see Asperger traits in me but I still wanted a relationship and children. Both conditions do have an hereditary link with PCOS being passed down the male line! Sounds silly I know but you need to look at your fathers mother as it is possible she had it and her son increases the risk of his daughter having PCOS. Again Aspergers/Austim has been found to have some genetic links with girls being not so badly affected because for some reason the genetic make up of females in some way protects some of the brains connections which is why you find fewer girls diagnosed or diagnosed later in age. I still wanted relationships and children as PCOS affects the body in a physical way ie: possible facial hair in some due to excess testosterone, missed or delayed periods and weight gain. Weight gain in caused by the condition because it effects how your body reacts to insulin. My one big piece of advice to you would be to follow a lower carb diet, GI or diabetic diet and make sure you get some daily excercise all of these will offset the PCOS to some degree easing your symptoms and regulating your periods. I am speaking from experience as I have the worst form of PCOS and once the weight is on it is so hard to remove.

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Isobel   

Yeah, I've been seen by an endocrinologist who gave me further advice for pcos and I'm under a weight management program run by nhs. I've lost two stones with the help of diet and medication, although the medication Xenical is unavailable at the moment. Unfortunately my father's mother has passed away but I couldn't tell whether she had it or not. She certainly had no trouble socialising and always liked going out to places.

I certainly do get plenty of exercise so I think I'm managing my pcos pretty well.

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laurasd   

I also have PCOS and ASD, and there could easily be a link. I think it may be a hormonal link somewhere in the body.

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