Lesley Report post Posted August 9, 2005 (edited) You have all GOT to get in touch with these people http://www.carercentre.com/ They are part of the Princess Royal Trust for Carers Had my carers assessment this morning: Our sons SEN Early Years placement should have put us in touch with them the day he started there! (2 years ago) She couldn't believe the LEA were 'weighting' the AS diagnosis as it is a medical diagnosis that has nothing to do with how the LEA function She couldn't understand why they wouldn't statement him & her eyes nearly popped out of her head when I told her it was merely ASSESSMENT we were going to tribunal over!!! She says yes we will get DLA continued (due to finish in FEB 06) & also mobility allowance (lower rate) She has just got mobility for a 3 year old at lower rate! Not only that she is coming to fill in the forms for me next week! And she is going to claim for the higher rate until my AS son is 18! And she says if its only granted every 2 years she will fill in the forms every 2 years for us until they get the message And she says if they dont get the message & dont award it she'll take them to tribunal! She'll also do my carers allowance claim, and is sure we can also benefit from higher child tax relief & possibly something off council tax too There are specialist free play schemes for my son where he can go (youth club type thing) where he can go & not worry about his behaviour cos they are all specialist trained - they offer days out in the holidays & hire play centres & stuff to give parents a break They will come to tribunal with us and to all school reviews/meetings/assessments etc! There is a kids carers for carers group where my NT daughter can go that do activities (bit like above, youth club type thing but free & targeted at siblings) that offer specialist support for her There are training schemes on offer for me to retrain profession when I am ready as I am about to finish my job to create 'me' time. Teaching is no good for me any more as I haven't got the planning / marking time at home now hubby is self-dx AS too It is all wonderful wonderful wonderful All our prayers & problems are answered If I need a chat & coffee they'll come round immediately Bit cross that all this was available to me & no-one told me Fancy having someone offering to fill in all my DLA / carers allowance forms! Just ring your local carer centre & ask for a carers assessment! wow wow wow wow wow L xxx Edited August 9, 2005 by nellie Quote Share this post Link to post Share on other sites
hev Report post Posted August 9, 2005 i had my forms filled in with help from them as well,it was so easy with her help as that form is vile!im going to brighton on a coachtrip with them on thursday,for some reason before i thought they only helped elderly carers!i would recomend people to get in touch with them also Quote Share this post Link to post Share on other sites
nellie Report post Posted August 9, 2005 Yes, I agree, The Princess Royal Trust for Carers gives great support to carers. Carole and I are always singing their praises. This is the link to the national website. http://www.carers.org/home/ Quote Share this post Link to post Share on other sites
