board Report post Posted August 26, 2005 how do you know Quote Share this post Link to post Share on other sites
bevalee Report post Posted August 26, 2005 Hi Board Nice to meet you! Welcome to the forum! Quote Share this post Link to post Share on other sites
oracle Report post Posted August 26, 2005 how do you know That you have a child with AS or perhaps AS youself? Can you expand a little please. Welcome Carole Quote Share this post Link to post Share on other sites
Suze Report post Posted August 26, 2005 Well someone mentioned the word to me as a way of explaining depression and behaviours in my son.Others checked him out, watched him, studied him and a physch DX him.But if your worried about yourself or someone close to you take a good look at this forum its great ...there are parents on here and alot of us parents are on the spectrum also, so advice can come from all angles. Quote Share this post Link to post Share on other sites
board Report post Posted August 27, 2005 hello my name is jill not to well my self sarcoidosis fms cfs sorry i have 5 children i was asking about my little girl i got 4 boys so just though girls were diffrent but can know see there is something wrong the school as allso said there is something wrong this is some of the thing they wrote she confuse the chronological relationshipsbetween people and objects will watch others working on the computer but rarely works there herself enjoys listening to stories and looking at books she participates when we read big books and during group reading but she recognises very few words out she of context although she has recently been given a word grid for precision learning she forms very few letters correctly and often writes her name backwards she has a deep speaking voice and usually prefaces comments with umm umm she did once try to tell a story to class she can count to 100 as a member of the class but dose not understand the concepts of numbers above 6 she is still unable to write numerals correctly she has had practical experience of measuring weighing volume and money as well as addition and subtraction but she has needed considerable support she is very shy and quiet and frequently stands on the outside of the group watching what is going on she never volunteers to attempt activities and lacks confidence and esteem she will sit at the office drawing for a considerable length of time she would benefit from being observed carefully so that we may ascertain to what extent she understands what we ask of her she as problems with communicate with other children and adults it takes her a long time to trust anybody she allso has bad mood swings and crys for no reasen you ask her whats the matter and she say she dose not know and food is a big thing she will only eat sertin things and still in nappies at night here is just a few of the things what do you think she is 5 years 9 months old thank you jill Quote Share this post Link to post Share on other sites
Suze Report post Posted August 27, 2005 Hi Jill it,s very difficult to say from your post what is the matter with your daughter.Sometimes schools pick up first on problems..this was the case with my son.Your correct...your daughter does need to be observed in the classroom.An eduactional physchologist should do this.I would go to your local library and get a few books on ASD/AS... I did some reading early on and it gave me a clearer picture , also helped to explain certain behaviours.Also get out some books on special needs they,ll explain what help your daughter should have at school.I,d have meeting with the school to see a way forward and also visit your GP they can help for referrals to SALT, pead, and child development clinics.Good luck.. Quote Share this post Link to post Share on other sites
Zemanski Report post Posted August 28, 2005 Hi Jill, my dad has sarcoidosis, he's pretty ill with it just now and on heavy steroids - he gets worse under stress and having a child with different needs to worry about is very stressful. <'> I agree with Suze - you need to take your worries to the GP and ask for a referral, probably to Child and Adolescent Mental Health services (CAMHS). They have specialist paediatric consultants who are able to diagnose a whole range of things and can refer your daughter on to specialist services such as Speech and Language Therapy or Occupational Therapy. Speak to the Senco at your daugter's school about seeing the educational psychologist - this is the person who can best start the ball rolling on sorting out your daughter's particular needs in school. Make sure you get an appointment to see the EP yourself (sometimes schools 'forget' to invite parents) and take a list of things you want to discuss - any worries or things you think are unusual about her - so you don't get flustered and forget things. good luck Zemanski Quote Share this post Link to post Share on other sites
