Now that school is just around the corner,

[Tylers-mum]

He's entering into Year2 and has never bar one day spent the whole day there and on the one day he did, he was very tired and miserable.

As most of you know, it's taken me this long to get the school to take him fulltime and he's missed out on so much schooling in Nursery, Reception and then Year1 and I've been so excited at the prospect of having whole days to myself. But now as the days are getting nearer, I'm petrified for my little boy! He's going in fulltime and will be eating meals in school which I've decided that if after 2wks he hasn't eaten well, I'll give him packed lunches. He loves school and is so excited that he's going to be leaving school with the other children which he has never had the opportunity to do before but once that novelty wears off, who knows how he'll be!

It's going to be a LONG day for him 5days a week and now I'm questioning whether me fighting for him to go into school fulltime is such a good idea after all! My poor lad!!!

[karin]

hi tylers-mum dont be too afraid im sure he will get along fine it is always nerveracking when they start school i know its different for him as he is going into yr2 my youngest goes into yr2 this year he is nervous as he says this is my last yr as an infant then i will be in juniors aaaaargh the time has flown so fast my twins go into yr4 another 3yrs they will be in big school aaaargh time flies when yours having fun all we could say to the twins's teachers (they are split up had this done in yr1) if any probs please ring us a home or send a letter then we can sort it out do not let the problems mount up cant offer any more advice hope he gets on okay im sure he will when he makes friends he will forget about you for a little while keep smilin luv karin xxx sending you these <'> <'> <'> <'> <'> <'> hope this helps

[Amanda32]

Hi Tylers-mum

 

It's natural to worry about our kids your only human, im sure he will be just fine at school. He will make friends and will probably have lots to tell you about his day at school. Give it time with him going full-time at school, you haven't done anything wrong your just doing what mother's do. Just let him go and try not to worry I know it's hard but he may surprise you this time as he' a little older.

 

Let me know how he gets on and you take care

 

Amanda <'> <'> <'> <'> <'>

[Guest flutter]

<'> <'>

i suppose we have to let them go and see what happens

i knows how hard it will be

am thinkin of you both

C x

[MelowMeldrew]

School in a few days near 8 weeks of total aggro and poor behaviour, I'll be glad to spend a few hours not worrying what he is up to. Far from needing less supervision now he is older, it seems he needs even more as his confidence to get about increases, his behaviour gets worse. Last summer hols we thought were bad, this summer has been even worse, we are now even more acutely aware what autism means, he really displays no empathy at all with peers or people's feelings, 8 weeks is far too much of a holiday, when he returns to school it's always back to square one after that length of time, so another 6 months to be where he was 2 months ago, he clearly needs organised weekly and supervised events during the holidays AND weekends too, our area has zilch we are now really worried about his future. He's 10 now, but how will we cope with him at 16-17yr old, throwing his own poo at everyone every day ? His bedroom is an open toilet, all we can do is try to contain it. SS umm and ahh, but contribute nothing useful, what are they for ?

[nellie]

MM <'> <'>

 

I do sympathise and understand your concern for the future. Have you considered an ASD specialist residential placement with a 24 hour curriculum. This would give him structure and consistancy in an ASD environment, hopfully teaching him life skills. It may help prepare him for adulthood.

 

Nellie <'>

[lil_me]

I've got similar worries about my son, aswell as my youngest starts school and I know I will cry

 

I think its just a case of wait and see how it goes, and try not to let them sense your concerns as they can pick up on it very easily. Fingers, toes and everything crossed hoping it goes well for him.

 

I don't think I could part with him for him to goto a residential school, I would miss him too much.

[MelowMeldrew]

The issue of residential anything is a huge blow to parental moral of course, you feelpeople are NOT going to understand you have difficulty coping, or even it is a better option for your child, whatever way it goes you will feel guilty I guess. We've agreed to push for semi-residential special education but nothing else, but the LA just won't commit one way or another, you just spend months, at meetings, years even awaiting some sort of decision, which makes it worse. We really will be at a crucuial point in November (The earliest date we are given where they suggest a decision will be made), if it goes against special school, then it's really curtains for helping my son before he leaves education altogether at 16, and he'll be languishing in some poor excuse for a day centre, and this is going to force us to withdraw him as a protest, about the only option we will have left. I'm considering doing it NOW to force the issue, but don't know where I'll stand if I do. I'm also considering using local media and whatever other means are available to force the issue as well, disgracing the local SS and child team, and LEA too, who have been total rubbish, and need someone who knows about children with special needs. I've nothing to lose and my lad has at least something I hope to gain. Of course I could win the lottery and move to where an LEA actually cares about our children, there must be one surely ?

[nellie]

MM,

 

My son is 27, he has moderate learning difficulties, he attended a special school from the age of 8 and was diagnosed with autism at 19.

 

I felt no guilt when my son went into residential care. I was very proud to get him into an ASD specific adult residential placement, he went there when he was 19. As you can imagine it was a struggle getting the funding. He?s been there 8 years now, and I know we made the right decision. There was no way we could have given him the quality of life he has now.

 

Adult care in this country is appalling, but it is better to go for it before the child reaches adulthood and it doesn't usually happen without a ?battle?. It helps if you can get someone to go into ?battle? with, there are volunteers out there who can help. The Princess Royal Trust for Carers is a good place to start.

 

Withdrawing a child as a form of protest rarely works, you just end up letting the authorities off the hook. It can sometimes be a good idea to withdraw a child who is unable to cope with the system but only if you can cope with the child without the system.

 

It's never easy!

 

Nellie <'> <'>