walking on tiptoes

[laine]

Hi just finised extensive dosier (thats what it feels like) on my boy for the ED PHYSC. Any way i showed it to my 13 year old to have a read through and see what she thought. She read it through and said you havent put in the way he walks on his tip toes. I had forgotten all about the just interested to know if any one elses little darling does this, or is just a C thing.

 

Laine

[Kerre]

Tiptoes hurt.

[laine]

i think hes a budding wayne sleep lol

[Tez]

A always used to walk on his toes. Still does sometimes and he's now 14. It is recognised as something many autistic youngsters do.

[laine]

Thanks Tez i did wonder.

[elun1]

My 4 yr old has walked on tiptoes since he could walk. It's a sensory thing I think

Elunx

[Lynden]

Logan does - well he cruises on his tip toes - he's not walking yet!

 

Lynne

[sue1957]

It think it can be caused by stress, possibly by tension in the "flight or fright" muscles in the leg, one of which is responsible for walking on your toes.

[lil_me]

My son does it less now but always toe walked when he was younger, he still runs on his toes most of the time. Some people with ASD's I have spoken to say its a sensory thing.

[ceecee]

My daughter walked on her toes when she was ill with autistic encephalitus.I think

it is fairly common with kids on the spctrum.She dances on her toes for ballet now and stupidly it still causes me to have flashbacks and to shudder

[laine]

Ceecee. That musst have been awful. I work on a children ward and i have seen children with encephalitis, it really is a horrible illness. Nice to hear she has made a good recovery. I bet she makes a beautiful ballerina.

aine

[ceecee]

Laine

 

Just out of interest have you seen anyone with Autistic encephalitus or just encephalitus.

 

I have never known of any other cases or of anyone recovering completely like she did.Thanks for your help on this one.I have read from an article someone posted on here that it does exsist.

 

 

Yes it was awful.It was after her mmr booster.She was autistic for six months severely and then she made a complete recovery.She is nine now and this happened when she was four.

 

Trouble is it's the flashbacks and the panic attacks.they are lessening but some weeks are worst than otheres.

 

But I know I have nothing to complain about compared to the parents on this forum and my heart goes out to all of them.I've been there I know how difficult and heartbreaking it can be.

 

Yes she loves her dancing, her school and her friends that is her life and she is so lucky to have it.

[laine]

The one child that does spring to my mind had a slight limp and one eye lid drooped. But apart from that a near enough recovery. Considering how serious this illness i think an excellent recovery was made.

 

 

Sorry the type this child had was with chickenpox.

 

Take Care Lainex

[Tylers-mum]

Yep, T did this when he was younger also, lasted about 2yrs I think but he had psyiotherapy (this was pre-dx) and it seems to have worked. The psysio said his muscles were tight on the back of his legs. Hmm!

 

Doesn't do it so much now but he can do.

[Hidden Gem]

http://www.encephalitis.info/

 

The above website is excellent for information for encephalitis.

 

Not really relted to info on this board, although the swelling of the brain, the pressure it places and in turn the various funtions it disrupts could produce very similar symptons to Autism.

 

As you will see from the website, this horrific condition, affects part of the brain, which they show in an a really good diagram.

 

I believe it is quite common - comes in primary and secondary forms, appears to be related to a viral infection.

 

We see something similar at work with forms of dementia - as the blood vessels become damaged and blood supply is cut from the brain - people's behaviour alters dramatically.

 

http://www.encephalitis.info/Professionals...ialWorkers.html

 

This link shows the expected level of support that families should receive, as well as listing some of the behavioural side effects

Edited December 11, 2005 by Hidden Gem

[ceecee]

Hidden Gem

 

Thank you.I will look at that.I believe encephalitus is quite common but I think Autistic encephalitus is quite rare.Certainly the paediatrician who saw my daughter who was nere retirement age said in all his years of working.He personally had never come across another case.However he said that one of his fellow peadiatricians had a case of a little boy who had developed autistic encephalitus but had not yet made a full recovery.Weather he ever did or not I dont know.

 

I think viral infections of the brain are surprisingly not as rare as one would think but Autistic encephalitus is very rare but not unheard of.

 

It was the measels part of the triple vaccination that caused the encephalitus.The specialists worked this out due to how much time delay there was before she began showing autistic symptoms.

 

One of the side effects of measels itself is encephalitus, so guess it makes sense really.

 

Thanks anyway.

[LizK]

My son, now four used to tip toe walk when he was younger. I remember googling it and the first thing that came up was an autism website so I think it is a recognised feature

 

One of the side effects of measels itself is encephalitus, so guess it makes sense really.

 

re autistic encephalitis. Measles or the measles vaccine can cause encephalitiis that can affect lots of different parts of the brain. I guess if the virus affected the part of the brain that is affected in autism then it would give autistic symptoms. Sometimes a person will make a complete recovery from encephalitis sometimes not. It's great that your daughter has done so well. This sort of phenomena is not just restricted to encephalitis but other conditions that affect the brain eg other infections, developmental syndromes, head injuries. If the autistic part of the brain is involved then the person exhibits secondary autistic features though the underlying problem is not autism but another diagnosis

 

Liz x

[ceecee]

Liz

 

Yes your right.At first she was misdiagnosed with something called ''Heller's Syndrome'' which is basically late onset autism which is what they thought.Then once she began to recover which they had not expected the diagnosis was changed to autistic encephalitus with a predicted full recovery but anything left after two years would stay.

 

After two years there was nothing left apart from she can't sing a fast pop song.I have since read that people who have sufferd brain injury and infection for some reason fine it difficult to sing a really fast pop song.

 

In the scheme of things I think it is nothing compared to what could have been.

 

 

I have to say that i am almost certain I have mild aspergers or asperger tendancies so I am not sure if genetically she was at risk.We have dxylexia running on my husbands side of the family and I know there is talk of adding dsylexia to theASD spectrum so I don't know if this helped either.

 

We saw a genetist at the time and they said it was likely genetics played a part but because of personal reasons at that time they couldnt go back through anyone on my father's side of the family including my father.So it was left inconclusive.

 

At the time I didn't know enough about AS to realise I had it.

 

Anyway at the end of the day I thank my lucky stars.

 

We since went on to have a little boy who is now 3 and a half and appers completely N.T.

 

Anyway thanks for your knowledge.It's appreciated.

[elaine1]

tom does that too, he runs on them aswell