OPooh Report post Posted January 4, 2006 We've took a long time to get this far. People change their mind whether my son has asperger's all the time. We moved to a new area and when he started his new school (aged 7) and when I went in, about bullying, they suggested to me that he had some form of ASD. THEY did. ASD had not been suggested since he was assessed at 2 years and 9 months and ruled out due to his "imaginative play" - I think he merely acted out what he saw on tv but that's another issue. Well the school kept saying the ed psych was seeing him - but funding made it a long wait. Finally I thought my ds was seeing the ed psych and it wasn't - it was a specialist teacher. She observed him and decided that he HADN'T got it. But then she spoke to us and about what he is like and said oh yes he has. Confused or what. Then she said did we want a medical diagnosis.....so we said yes. We got refered to the paedatrician and she observed him, asked him questions etc, and seemed to indicate that she also thought he did. But warned us of the dangers of "labelling" She asked if he'd seen the ed psych and I said no. The school had said he didn't need them (his downfalls are mainly keeping his temper and making social relationships). The paedatrician basically said what I felt and that was that they didn't care because he has a high IQ and so is getting them the grades. The paed said that my ds would be seen by the ed psych and SALT (she noticed he didn't understand her a lot when she was not being literal and/or using idioms). Happy that everything was progressing and finally we started to accept that he did have it. THEN the SENCO said that the ed psych didn't think that my ds does have it. Aaaaagh I'm so confused. SALT pulled up quiet a few "features" of aspergers in their report but said they couldn't help him any further. We have meeting with ed psych next week - but I'm all confused. I don't know what to say and am being to feel like it's our bad parenting. So anyway I wondered what everyone or anyone makes of this please. Thanks for reading. Quote Share this post Link to post Share on other sites
LizC Report post Posted January 4, 2006 Hi what sort of 'imaginative play' does he do. you see my son matthew has AS and he can play games with his bro/sis but it is usually over exagerated, like it has to have a super hero in it. so I would rule out aspergers completely. My grandad also had AS but he was still about to make up stories.. I was also warned about the labelling, but I thought, people are always going to use labels, no matter what. I was getting sick of him being labelled as naughty! I wanted his diagnosis so we could help our son and help others to understand what we go through every day! (Not that every does though!) Quote Share this post Link to post Share on other sites
LizC Report post Posted January 4, 2006 oh yes and they don't like to diagnose Aspergers till at least 5. my ds turned 5 in July, but they did start to assess before he turned 5. Quote Share this post Link to post Share on other sites
OPooh Report post Posted January 4, 2006 He just turned 9 too. Erm he tend to play with very strict rules and finds it difficult to play with others. Whatever he plays he does the same thing over and over again. He can't have motorised toys because he has to push them around etc. Quote Share this post Link to post Share on other sites
ceecee Report post Posted January 4, 2006 Just to add I strongly suspect that I have mild a.S. and I have no problems with imagination as far as playing as a child.I even had an imaginary friend as a child.I loved to write stories and peoms as a child and still do now as an adult.My stories were often read out to the rest of the class because they were well above average for my age. What I fall down in is my ability to imagine how somewone might be feeling or why they are acting in a certain way. So it is possible to have a good imagination in lots of areas and still have A.S. I believe this topic has been discussed on here before.Hope this helps. Quote Share this post Link to post Share on other sites
Suze Report post Posted January 4, 2006 Your situation has really frustrated me , all this worry over labelling is all well and good, but if your son is on the spectrum surely you need to know.Regardless of wether he is doing well at school.Things can change and who is to know if there may come a time when your son needs access to services that could be beneficial to him.The teenage years can be difficult who knows how your son will cope then.I hope I have,nt appeared too negative but it sounds like you and your son have been given the run around, and surely there must come a time when your worries and questions need an answer one way or the other.Best wishes Suzex. Quote Share this post Link to post Share on other sites
adamsmum Report post Posted January 4, 2006 (edited) kieran makes up storys the teacher said he's good at it but he gets to carryed away he will then think it's true then he gets obsesed. He also dresses up but he's got to be batman and he gets verry angary if you call him by his own name when dressed up is this commen Edited January 4, 2006 by adamsmum Quote Share this post Link to post Share on other sites
Suze Report post Posted January 4, 2006 .................just re-read your post...........sounds like the pead who is at the top of the chain to give a dx believes your son is on the spectrum.So when you meet with the ed physch who is less convinced prepare a list of your worries/concerns and your sons behaviours. Quote Share this post Link to post Share on other sites
madmooch Report post Posted January 4, 2006 Doesn't a "label" give you the support and help you are entitled too and most importantly peace of mind! Madmooch Quote Share this post Link to post Share on other sites
OPooh Report post Posted January 4, 2006 Thanks for all your replies. I never thought of the paed being above the ed psych. My ds already has so many troubles and feels like no-one likes him. I just want them to help him - or at least tell us even if his worries are due to as so we can help him. Quote Share this post Link to post Share on other sites
kirstie Report post Posted January 4, 2006 Opooh, <'> Seems you are being given a bit of a runaround. The only one i think who can truly diagnose your son is the Paed, anyone else doesn't really have much business saying they don't THINK he does have AS They're not being very helpful. I always wonder why people say it's unhelpful to give our kids a 'label'. I can't think of anything further from the truth (in my experience anyway) . Lewis's diagnosis helped me in so many ways, to understand him, to bond with him and access the all important supports for him. Finally doors started to open and he has come such a long way (and we have as a family too) ,He was diagnosed at 4.5. Lewis also has a great imagination, and will play for hours on end with the latest figure he is fixed on. He also likes to be superheroes! Sometimes he will be re-enacting what he's seen on TV but moastly he gets lost into his own world. Not such a bad place to be sometimes!! I hope you get the help and support your Son needs and deserves. Quote Share this post Link to post Share on other sites
