scotopic sensitivity syndrome

[PinkSapphireAngel]

My 8 year old ds was tested for Dyslexia and was instead diagnosed with SPLD (Whatever that is meant to be) and they refered him to optometrist at hospital as when he tries to read the text it moves all over the place and when he walks down stairs etc things seem to move so he cannot judge depth etc.

 

He has slight astigmatism so has glasses but hospital said this was not the problem and are not worried about his actual sight.

They disagreed with LEA coloured overlay assessment (LEA said double aqua overlays were only one that helped SLIGHTLY) hospital say NONE of the overlays help at all.

 

OT who also refered to hospital are saying they think he has definately got some sort of visual problem and dyslexia is more about planning difficulties which he does not have.

 

When OT refered him to the hospital they did say to me if the hospital caould not see the problem we would need to see a specialist privately.

 

Not sure what to think or do!

[Flora]

PSA you should read Ian Jordans website about Visual Dyslexia. Luke has exactly those problems that you described with words moving and doubling etc.

 

It's visualdyslexia.co. and I cant remember if it's co.uk or com

 

 

Lauren

[PinkSapphireAngel]

Thanks its.com btw.

Am just having a read now

[PinkSapphireAngel]

OMG that sounds so much like Daniel

[Ian Jordan]

Anyone that wants information e mail me on IanJordan@visualdyslexia.com

 

3 books available by email - all are free and I am happy to send

 

Signs symptoms and assessment

(this is a basic booklet that will let you know symptoms that can be addressed)

 

Vision linked stress syndrome - how to recognise and screen

(this booklet lets parents and teachers understand basic principals in detecting problems - does your child have a problem?)

 

The Circle of underachievement

(this is a reasonably comprehensive background book - 150 pages)

 

Be aware - hospitals are usually unaware of how to address problems

Irlen is 1st generation of assessment

Colorimetry 2nd

Orthoscopics 3rd - the best by far ( I am biased but it is true)

 

And there is a big difference between what is possible in each system -

[PinkSapphireAngel]

I have emailed you, thank you so much <'>

Why can't more people be as helpful as you (LEAs for example)

[darky]

you have just described my son. spld - specific learning difficulties ie dyslexia. my son was seen by occupational therapist who said he had "severe visual perceptual difficulties" educational pyscologist said the same. i had a private dyslexia specialist assess him and she said he has a significant visual impairment and he is moderate to severe dyslexia. he had his eyes tested by opthalmologist, his eyes are not the problem, its the processing problem from the eye to the brain. he was tested for coloured overlays, none helped. soon i am going to take him to a dyslexia specialist who specialises in eye testing dyslexic kids. looking at how the eyes work together etc. it came as a bit of a shock after just having him dx with asperger syndrome!

[PinkSapphireAngel]

So he could well still have dyslexia then?

from everything I have read it fits my son.

Its all so confusing.

I did contact Dyslexia institute and they said they do not assess untill 12 to 18 months after LEA have.

[darky]

well unless what i have been told is incorrect! but what you have described is uncannily like my sons story. what alerted me to my son was his constant avoidence of books. when i got him reading (school homework) he complained "reading is boring, reading is hard, i dont like these books they are rubbish, everything jumps arround and goes fuzzy" i could see him physicaly squinting trying to follow the text and he frequently rubs his eyes, so often he would loose his place and get frustated. school never picked up a bean.

[Ian Jordan]

VERY IMPORTANT

 

understand what may be problem before spending money and / or getting inappropriate assessments

 

Dyslexia is very complex and very often misunderstood even by professionals

 

You need to Know (this is VERY simplified)

 

Is it an input problem - is vision OK

is visual processing OK

is hearing OK

is auditory processing OK

is proprioception input OK

is vestibular function input OK

 

Next stage

is internal processing OK

is memory input / storage / access OK

is sequencing OK

is sensory integration OK

is speech and language OK

is pattern recognition OK

is spatial awareness OK

is action planning OK

is facial and emotion recognition OK

is brain arousal level OK

 

Output is output speech and language OK (and feedback)

is movement OK (and feedback)

is balance OK

 

iF any aren't correct - the right person must be consulted - don't hold your breath though - the NHS are poor in virtually all cases - LEAs usually have no idea where to start

 

Good luck and arm youself with knowledge

[lotty]

HI I AM DYSLEXIC AND THE SCOTOPIC SENSITIVITY IS CALLED ERLENS SYNDROME or irlans

Edited May 23, 2006 by lotty

[darky]

VERY IMPORTANT

 

understand what may be problem before spending money and / or getting inappropriate assessments

 

Dyslexia is very complex and very often misunderstood even by professionals

 

You need to Know (this is VERY simplified)

 

Is it an input problem - is vision OK

is visual processing OK

is hearing OK

is auditory processing OK

is proprioception input OK

is vestibular function input OK

 

Next stage

is internal processing OK

is memory input / storage / access OK

is sequencing OK

is sensory integration OK

is speech and language OK

is pattern recognition OK

is spatial awareness OK

is action planning OK

is facial and emotion recognition OK

is brain arousal level OK

 

Output is output speech and language OK (and feedback)

is movement OK (and feedback)

is balance OK

 

iF any aren't correct - the right person must be consulted - don't hold your breath though - the NHS are poor in virtually all cases - LEAs usually have no idea where to start

 

Good luck and arm youself with knowledge

 

 

im even more confused now! are you saying that if any of the above are not correct then its not dyslexia?

[Ian Jordan]

If any of the above are present than you may present symptoms which some people might define as dyslexia

 

Dyslexia does not have a definitive definition - there are many. Education tends towards language deficits, OTs praxis problems, psychologists will say that it is difference between performance and ability, others will say it is an auditory processing problem, others will think it is a visual problem.....

 

me - I think it is all / any!

 

.

[kirstie]

Interesting!

My eldest sons Ed Psyche always said Jamie had auditory processing problems. He is currently being assessed for Dyscalculia.

[Ian Jordan]

try covering one eye when doing maths - if it helps then you will need more advice. This usually will work if there is motor control problems e.g. poor handwriting / gait difficulties.

DO NOT ASSUME THAT EDUCATIONALISTS / PSYCHOLOGISTS HAVE THE ANSWER - the causes of problems are often physical and treatable,.

 

 

Interesting!

My eldest sons Ed Psyche always said Jamie had auditory processing problems. He is currently being assessed for Dyscalculia.