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edith simon

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About edith simon

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    Scafell Pike

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  1. This is really unfair. this is really disregarding a person`s disability.Disability is disability.This term is not understood by lots of people in the society but if it is going to be "personal living" or something then everybody will think that they have got no problems at all,and they do not deserve at all a penny. Nobody knows at the moment about the extrem stressful life of disabled people,confusion,stress that often leads to financial loss too. personal items are lost regulary and needs to be repleced. We often need a taxi as the disabled person just cannot cope in the middle of a shopping or in the surgery. the list is endless .wallpaper is stripped,or carpet is damaged etc. The stress and humiliation of the disabled person and their relatives when being "assessed" /I would call interogation/ and how to make notes of each item where money is spent. who and how will we cope with that kind of more paperwork???????? Yes and the media .......why they do not deal ,address this topic....I wonder..... Best for the next year for everybody. Edith
  2. Interesting my answer was not going through. shortly i repeat. We went her resigned from her job. But we lost and suffered for 3 years. through hell as soc.service and a headteacher made flasa allegations against us as parents. 3 years of fight chi8ldren we nearly taken away. a 10 tyear old autistic ,a 4 year old and a 15 year old. solicitor,court,parents against injustice org ...etc social worker was dismissed ,manager of CDT had a breakdown,headteacher resigned. but nobody can give us baxck the 3 years and the fear in us an in our children eve3n afterwards ans innocent. i fully symphatise who went trhough sg like that. all the best Edith
  3. Sorry I was on antidepressant and I am a parent. i did not understand it well. edith
  4. I think definitely yes as if thre is problem at school you will not get help otherwise. I think if she turned out to be not on ASD then later you can remove it. Edith
  5. That is a very good idea only I have to give all helpers a mobile . I think i will try. thanks a lot Edith
  6. what is this callers preference scheme? how it is available,please? Thanks: Edith
  7. I am wondering how NASA could help us in that matter.My son is 24 and whenever the telephone rings I have to pick it up as it maybe about him even when he is out with a helper. That would be my resting time. however almost every day I receive 1-2 business,marketing research etc phonecallas in spite of the fact that we are out of directory. I become very anxious when telephone rings as it could mean something bad happened to my son.So it disturbs my very limited resting time as I can not settle down again as fear stresses me up. Any parents have this problem? What could we do. all the best Edith
  8. just to add that my son is 24 lives in the community and we experience lots of lots of problems that I would have never thought. MY nephew is 30 and works and lives in the "normal" community" with lots of problems and needs continuous help in spite of higly functioning and having A levels. So I am just searching what would be the best. Thanks for your answers I really appreciate it. Edith
  9. Dear baddad, please read my reply to Caroline. Well I am just thinking what would be the more creative,the best for ASD adults. all the best, Edith
  10. Dear Caroline, I really do not think about isolation with outside world.If you want to be self supportive you have to go otside and keep contact continuosly with outside world on everyday basis as all other people in business. What I mean is to live and work as a group in one place and with freedom naturally provided to go anywhere anytime and wherever yo wish. To live and work together in my opinion would provide security,selfconfidence ,acceptence and opportunity to create new things and not to take up your energy with struggling with everyday non acceptance. thanks for answer anyway, all the best edith
  11. I would like to know your opinions. If there was a chance would you like to live in a village or farm or area where all the people would be on the ASD spectrum. The village/farm/ should be self supportive /so everybody would work something according their capabilities and educations/ if they can/ .I have in my mind like kibuczes in Israel or Emmaus in uk. In Hungary there is something like that unfortunately only till age 21. In France I also saw self supporting small groups 120-150 people for ex alcoholics and ex drog adicts. there are all sorts of industries and jobs in these places as they run,manage their own places and produce their own foods , and not to get bored and being multisided they change the jobs /what is changeable/ on a weekly,monthly basis. obviously married couples live together and others live in sigle or two bedroom rooms. waiting for your responses. all the best, Edith Simon
  12. Dear all, I am just thinking and thinking and thought maybe better to ask other people that having an autistic child how affects your friendships ,official parties from workplace etc. Our son is 23 autism+sld and two other sons. At the time he was diagnosied the "friends" acquantances just slowly but surely started to disappear. I am just wondering whether it is just our fault ....maybe we are not very sociable or have no time or other people are not really want to get involved with a family like us. I feel our family very lonely and the other 2 sons too as they have not had the usual opportunities for sleepovers,parties etc as even at younger age schoolmates discoverde that their brother has got problems with speech,behaviour etc. My husband just lost his job after 25 years with one firm and I just realized that we have no circle of friends or "network" life who would try to help or be interested in us at all. Can you please write how,parties,going out together with other families where there is no diability or how you have time for friends or how you have common interests with your friends. Answer,please. thanks Edith
  13. No dear Emma, it has happened to us as well.greg has never been invited to one party also beavers did not accept him.he has very good begavior. it is sad very sad but unfortunetely it just happens. best wishes, edith
  14. Lactose free yes but isn`t it kasein that causes the problem?? Please answer Edith
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