Jump to content
  • Announcements

    • Kris

      Depression, Mental Health and Crisis Support   06/04/2017

      Depression, Mental Health and Crisis Support   Depression and other mental health difficulties are common amongst people on the autistic spectrum and their carers.   People who are affected by general mental health difficulties are encouraged to receive and share information, support and advice with other forum members, though it is important to point out that this exchange of information is generally based on personal experience and opinions, and is not a substitute for professional medical help.   There is a list of sources of mental health support here: <a href="http://www.asd-forum.org.uk/forum/index.php?showtopic=18801" target="_blank">Mental Health Resources link</a>   People may experience a more serious crisis with their mental health and need urgent medical assistance and advice. However well intentioned, this is not an area of support that the forum can or should be attempting to offer and we would urge members who are feeling at risk of self-harm or suicide to contact either their own GP/health centre, or if out of hours contact NHS Direct on 0845 4647 or to call emergency services 999.   We want to reassure members that they have our full support in offering and seeking advice and information on general mental health issues. Members asking for information in order to help a person in their care are seeking to empower both themselves and those they represent, and we would naturally welcome any such dialogue on the forum.   However, any posts which are deemed to contain inference of personal intent to self-harm and/or suicide will be removed from the forum and that person will be contacted via the pm system with advice on where to seek appropriate help.   In addition to the post being removed, if a forum member is deemed to indicate an immediate risk to themselves, and are unable to be contacted via the pm system, the moderating team will take steps to ensure that person's safety. This may involve breaking previous confidentiality agreements and/or contacting the emergency services on that person's behalf.   Sometimes posts referring to self-harm do not indicate an immediate risk, but they may contain material which others find inappropriate or distressing. This type of post will also be removed from the public forum at the moderator's/administrator's discretion, considering the forum user base as a whole.   If any member receives a PM indicating an immediate risk and is not in a position (or does not want) to intervene, they should forward the PM to the moderating team, who will deal with the disclosure in accordance with the above guidelines.   We trust all members will appreciate the reasoning behind these guidelines, and our intention to urge any member struggling with suicidal feelings to seek and receive approproiate support from trained and experienced professional resources.   The forum guidelines have been updated to reflect the above.   Regards,   The mod/admin team

sky

Members
  • Content count

    52
  • Joined

  • Last visited

1 Follower

About sky

  • Rank
    Scafell Pike

Profile Information

  • Gender
    Female
  • Location
    plymouth
  • Interests
    music, reading, walking
  1. quiet rooms

    Hi,i haven't been on here for a while but i am confused and would like some thoughts..... I have a severely autistic boy of nearly 15-non verbal apart from sonme echolalia.He goes to a special school .He has a "green " room which is used for transitions -in between different tasks-which he can get out of(so i'm told-there are 2 flat d-ring locks inside the door),is padded and has sensory toys inside.There is also a "quiet" room leading off the classroom which is bare(not padded)which is used if it is felt my son is a threat to others and if he lashes out. He has become more aggressive recently and less happy to go to school,also more withdrawn.I have written in his book that i feel so9 much use of the "quiet"room could be adding to his aggression as he is lashing out as he can't communicate his feelings-then put in his "room",comimg out to lash out again,and so on. I would appreciate any thoughts /guidance on this. Thanks so much.
  2. hi -didnt catch programme but will try to now as i can agree with what you have said about meds-as i feel as i was put in the position of having to try meds for my boy as school couldnt cope with him(opposite of mum you quoted from programme). he is off them again ,now,as developed severe dystonic jerks-and i can honestly say ,iam relieved ,as he is no different at all at home with no meds- it is his anxiety at school that poses the "need" for them.he is also fine at his respite day centre,where he will even attempt going in a canoe and rock climbing!of course,medsmight be the answer and help in some situations when all else has been tried -but ,with my son ,i dont feel its the way forward .
  3. Arapiprazole

    hi kkaren-dont think i did get last reply-hopefully arapiprazole will be a success for your matt .medications are a worry tho due to the side effects-i think my joe must be susceptible as this is the second med that has caused jerks- even on a small dose.still on 0.25ml at the moment and jerks have stopped-remains to be seen whether anxiety will be alleviated on the smaller dose .J
  4. Arapiprazole

  5. Home education due to school phobia

    hi denise- have been reading all your posts with interest- such an uplifting story! my son is 13 and is suffering extreme anxiety at school . camhs are involved and have worked with the school ,who, in their defence have done loads to try to address the problem. They have allocated a male one to one ,provided him with a chill out room ,and built lots of physical activity into his timetable. As there was still anxiety he has been prescribed risperdal,1ml, which worked a dream for a month, then he developed severe muscle jerks, The psych.reduced to 0.25 ml-the jeks have mostly gone now[happily]butthe anxiety and subsequent aggression at school has returned.He isnt aggressive at home,where his anxiety is obviously reduced.I might also mention that he is now doubly incontinent,when he had been continent since age 5!i work part time ,but keep toying with the idea of giving up work and going the same rote as yourself- but it is so scary.I too,am fed up with every moring facing the prospect of another days full of bad tales about my son. I forgot to say that this was the 2nd med that has been tried,both with same side effect.any thoughts and advice would be SO appreciated -thanks
  6. Weekend Breaks from Melatonin?

    hi- yes , my son has just been given it again and i was told the same thing. think maybe a break from it increases its efficiency?
  7. Arapiprazole

    hi karen-not really- as joes anxiety is worse at school and theysaw no difference.joe also gets aggressive due to his anxiety-as i said,at school, and in outdoor situations where there are lots of people,noise,etc.took him to emergency doctor at camhs when his jerks got really bad -hence reduction in risperdal . doc said he needs lots of physical activity -which i can agree with -but parks etc are no good as there are obviously other children(vulnerableones too)which stresses him out.did you find the anxiety got worse with onset of puberty?
  8. Arapiprazole

    hi karen- my 13 yr old had this prescribed-1ml daily -but had to comeoff it due to muscle jerks . he is now on risperdal, but has just had this reduced from 1ml to 0.25ml daily for the same reason . he ,too, is extremely anxious, but the muscle jerks have made him even more so! i too would like some thoughts on medication from any others here who have been in similar situation
  9. muscle jerks

    hi has anyone else on here had experience with involuntary muscle spasms-like electric shocks? joe ,13, is on 1ml risperdal daily . he started to have "twitches" before the meds were started- he has been on them a month and everything was great until a few days ago when they have definately worsened.when he gets them he gets angry and can lash out. so worried- any thoughts please?
  10. Arapiprazole

    hi again - have appt to see camhs doctor next week about meds. my son desperately needs help with his anxiety and as i said before- abilify wasnt a success. he is underweight so perhaps weight gain wont be so much of a problem - it is so worrying . are there any other alternatives ,does anyone know??
  11. Arapiprazole

    hi- my 13 yr old son was on this for a short while but had to be taken off it as he developed muscle jerks(dont want to scare you ,as everyones different)- however when we stopped it we noticed how much brighter he was again. he too has asd ,depression and high anxiety- doctor bis now going to try risperidone!!!
  12. Melatonin

    hi-i agree with tally and lyndon- my boy is on the slow release melatonin 2mg-i have to crush them . i was told that tho not ideal- it only prevents the slow release from working but wont do any harm. seems to work ok for him anyway .
  13. beginning to doubt myself

    thanks again for reply. i have to admit i am a bit naive about the schools obligations as,up to now, have put my trust in them.Just dug out j statement ,and section 4 quotes "a special school for pupils wiyh severe learning difficulties" in section 3 , it highlights the need for TEACHH.The class he was in formerly WAS a TEACHH class and the teacher really knew her stuff. the class he is in now obviously caters for the rest as a whole -tho have set up a separate desk for him which he seems not to use a lot as he uses his "quiet room" a LOT during the day .i feel helpless, as obviously cant see whats going on in the day to raise his anxiety. the quiet room is another issue.....he has started to tear his clothes on a daily basis - again something not encountered at home. also ,stripped off once and was tearing his pad . this is all very worrying
×