treetree

well they came my heart was bumping nervouse as hell and they were great one lady stayed and played with alicia whilst the other ladyspoke to me in the kitchen she went through the questionair i had to fill in from birth to present and said to me i had a lot to deal with and yes there was problemsi told her i had been on this forum and i should just give her the link because evreything on here describes alicia to a tea but also what i had done the other night and why i didnt think about it before was to record alicia lining up all her misters and moving from room to room to having a reaction to some one knocking them over to what she did and how she reacted and my advice to anyone is to do this as it shows them in a diffrent light to what they might see for 45 mins to an hour the woman who was watching alicia said it was amazing as to what she had seen whilst playing with her was totally diffrewnt to what she had just seen,They also asked me to see what her reaction would be to turning the tv off and she got angry and told them to turn it back on they dropped somthing loud to see what she did with the noises as she covers her ears ,now im totatally relax and feel like a weight has been lifted of my shoulders but they said there was somthing not right and they will let me know next week with the results and to take someone with me as its a lot to take in so well see what happens tere sa

well they are coming to my house today ive woke up my hearts in my mouth beating ten to the dozen ive got an itchy foot i think its my nerves i just hope they listen to me and except that what im telling them is how my daughter is and has been for the past 5 yrs ,my husband bless him knows how stressed i am and has booked us a holiday for the week after i get the results least ive got somthing to look forward to now all ive got to do is keep telling alicia we going away and that s going to be fun all the changes worth it in the end let you know more dinnertime fingers crossed for me thanks for listning teresa thats suppose to be pray

you put a smile on my face then well tomorrow alicia is being assessed at our house im dreading it and am reading all through the posts to see if any thing will jog my memory to anything that she has done the same or simular in the past five years and just about evreything fits i should just give them this to read i might get somewere

was sat watching her play with her misters tonight and decided i was going to record what she was doing eg lining them up putting them in to groups all co-ordinated then linining them up coming from one room to another so i could show the people who are coming to asses her on thurs at our house so they could see what she did evreyday and then i guess after 45 mis they will probably tell me shes a normal 5 year old child well see it really annoys me how they can just judge for that lenght of time and make you feel that its all in your head well at the moment its peaceful so time to chill and go to bed i think ready for what tommorrow brings

alicia will tell me she loves me and i have to give her a kiss and a cuddle when she goes to bed or at school but she wont let me hug her ive just had an inspection today at school for her as they are assesing her at the moment and they have said they suspected asperges and pdla back in march now they dont know if she fits into the autistic catagory she has all the symptoms, obsessions ,routines ,repeating if not done right ,no sense of danger ,split personality ,stares in to space,tantrums ect.....i could go on and on i feel like im just headbanging all the time and they say this after 45mins with her they should try living with it sorry for rambling needed to get it out , <'> so do know how you feel <'> <'> teresa

well up date now they went up to school and spoke to her teacher ,she said they stayed 45 mins and they talked to alicia and spoke to her and said they dindt think she fit in to the autistic catagory but she does need support and that they would have to read up on their notes and speak to me apparently they asked her to get some paper and crayons so she could draw them a picture and alicia just looked blankly at them and saiafter a while that she wasnt allowed and wouldnt get it so mrs moran said its okay you can get some and the woman commented on how strange it was that she wouldnt do it now im even more confused so dont know what to expect thur s

yep we have to that too ,cross at the same place have to walk on the lines while crossing and there is a house that has a wall which is a bit like steps coming down we have to stop there while alicia climbs up and walks down if not theres hell to pay its a nightmare even i find now that the routines are rubbing off on to me i think you get that use to it my eldest daughter gets so annoyed with her as nw it takes over 30 mins to get to school instead of ten

i find with alicia we have to have the same routine in going into class evrey morning eg.. I have to take her inshe wont go in with the teacher /have to kiss her the right way and if done wrong have to repeat over and over again does anyone else have this problem

thanks very nervouse today will find out more from her school teacher later she says shes just as nervouse good thing tho alicias on one so hopefully they will see for them selves just dont want them to think im some over reactive mother you know what i mean will let you know more later thanks

long story on how she has got this far so quick to cut it short was referred in april to child assess ment was told that they thought she had aspergus and pdla and was putting her on the waiting list for thurs morning assesments waiting time two years !!! tthen the six week holidays arrived and basically she was an absolute blomming nightmare i ended up phoning the health visitor crying my eyes out telling her i couldnt cope anymore as she was getting more and more dangerous excuse my spelling ,punt not very good at that but anyway htey referred me again same outcome only been referred to cheetam house for them to send letter to say that just because she had hit 5yrs they should of done more with her instead of passing her on so now this two year waiting list has now become a six weeks so trying to get my head round that as wellas been told by the lady who phoned me to bring someone with me when i go a week on thurs as they more than likly to give me diagnosis and its a lot to take in so for the past two weeks ive been sat watching and observing what she has been doing and how she does things her teacher asked me what they would be doing i havent got a clue i replied so tomorrow should find out abit more of her teacher who thankgod is with me 100% teresa

my daughter is the same hails anything and anything from being two monyhs old she has ecema ,asthma,constipation,heart murmur ,chest infections,meningitis,her legs hurt ,lathargic ect...the list goes on and on shes now five ive lost count of how many times we have been in hospital and she doesnt tell you shes ill or got a tempreture just goes into her own little world

having my daughter assessed tomorrow at school and then assessed at home on thursday does anyone know what happens Ihave to go to the child development a week omn thursday to get results and possibly a diagnosis alicia is five years old thanks

i asked alicia why she lined things up as she was doing her usuall lining up her misters all in a line of ten and then three rows and she replied to make sure ther all safe i just sat there and watched her but if shes happy then im quite happy to let her

i coulndt agree wth you more i might just after say that to someone when they make a comment like that that should shut them up pretty quick

my daughter lines things up all in order they are the little people from happyland if one gets knocked over we have to repeat it all again,she also stacks things in order or in same colour say if we are playing connect four (only the counters tho) but she does this evreyday and sits happily arranging them but if someone interfears all hell lets loose or if they get lost ps she also spins things or swings on the door

my daughter lines things up all in order they are the little people from happyland if one gets knocked over we have to repeat it all again,she also stacks things in order or in same colour say if we are playing connect four (only the counters tho) but she does this evreyday and sits happily arranging them but if someone interfears all hell lets loose or if they get lost

i wish god woulnt that be heaven should of asked family fund try that next year do you know i asked alicia earlier what she would like for christmas "a dora birthday cake and some balloons"was her reply

just bought my son new pram as the old one was alicias ,was going to the shops yest and she asked if she could go in the pram but when music comes on shell start dancing : but it is hard work as when her legs hurt she will sit on the floor and refuse to move which when you have to get to school is a nightmare .It now takes me half an hour maybe longer to what was a ten min walk even worse if cold and raining

im ready for a night out were i can be me and socialise had a tantrum today because smarteenies went of the tv and had to explain why i couldntjust put it bk on need sky digital i think lol

my daughter alicia exactly the same she complains her legs her says i need to take her to the doctors after school dinner when no grownups around she five or if my 18 month old gets out of the pram she will climb in or expect my eldest who is 10 to push the pram while i carry her she also had meningitis in march and as a result drags her leg a little shes being diagnosed at the moment for aspergus and pdla so no your not on your own so dont worry

not as bad as the six weeks god that was a nightmare

ah peace at last ,they all in bed now i can relax had a very intresting conversation about crabs lol ,had quite a good day today mymum came up today she said to me dont you ever sit down it would drive me mad getting up and down all the time she also commented on how vacant alicia was when speaking to her and was quite amused when she was having dinner that alicia had made me take of the kettuchup<speltwrong? only to reapply then we went to the shop and she said i can now understand why you dont go out much its ###### hard work lol im shattered now going to chill out and read some other posts thanks for the link on social stories was great help

hi thanks for the above info ,ive never heard of thease social stories where can i get information for them from thease seem like a really good idear thanks Teresa

cheers dont know how scared ill be when going for results am expecting them to confirm my thoughts thou as know theres something wrong ,but then again ill probably feel relived ha ha been waiting for this for long time ,dont know if having her re assessed has made them push the assesment through quicker but im pleased .

yes you can might take a few weeks to here something but doesnt take to long hope that helps