treetree

sorry about caps

Barney,GREAT FIRE OF LONDON AND THE ICE AGE BUT HAVE GONE THROU DEATH AND WASHING HANDS ALL THE TIME

had support woman today whos going to help me i she has told me she will help me in anyway she can and thinks that alicia had slipped through the sysem and thats why its taken so long to get were i am so im really relieved that she has got some reconition and hopefully now things will get better

i know im so pleased hopefully when this all happens at least i know what im dealing with and i then can address it and move forward i asked her teacher to do me a detailed report on what she was like in school as went for dx in nov but they said she didnt quite fit in to the as box but now after hearing them all speak at the school meating the cdc have decided oh yes she does and still think its as and pda with a bit of ada. there now deciding were to have her assesed and are looking at ryegate ,i finally feel like someone believes me after all this time ,i told the lady at cdc that when they come into your house and assess your child for a mere 10 20 mins how can they turn round and actually say i dont quite fit into that box it really annoyed me so i told her to swap places and then let me know lol she declined

after all this time been trying to get a dx the cdc have basically told me that they couldnt come to a firm diagnosis but felt alicia had alot of behaviours on the autistic spectrum which i really am pleased that there saying there is somthing but scince having a meeting at school and going from having no support what so ever iv got people coming out now in all directions now they have decided to go for a statement and there now arranging for alicia to have an assesment so fingers cross i might find out lol and bless her shes got to have an epipen because shes allergic to peanuts

I need help today was a nightmare had to take Alicia to school she complained her legs were hurting her again and could hardly walk ,Lauren had to take the pram from me and push Bradley to school ,so I could carry her my arms hurt and feel dead we were late once again ,I know I carnt keep carrying on like this I need some help have phoned secretary to see if I can push the physio appointment thou still waiting for them to get back to me have phoned the school nurse spoke to the health visitor ,have even spoke to child development for advice feel like crying my eyes out had big meltdown she wouldn?t get dressed because she hadn?t brushed her teeth so we had a tantrum shouting at me screaming don?t know how I diffused it think I went on auto pilot .then coming from school she was fine spoke to a lady who said I might be best doing a self referral for a social worker but not sure if that?s best thing to do as still waiting for a diagnosis oh im so fed up any advice please have thought about a buggy board but not sure on that as she needs to build up her muscles in her legs any one got any advice please

my daughter is 5 have same prob with her i can remember once she had tried to wipe her own bum we had it on the floor on the bath in the bath my freind nearly stood in it and to top it all we couldnt find her knickers ,we search high and low never did find them she has a tear in her bum and is on lactolose movicol sodium pico sulphate and we still have leakages she poohed her self yest at her nans ,its suprising howmany kids with as have thease prob s <'> <'> <'> <'> to you tom might be better teresa

i too can sympathise (i think thats how you spell it)lol my daughter is 5 and she doesnt want to go to school and tells me she wishes she was ababy again so she can stay at home with me all day ,im having a few probs with her at the moment ,in middle of going for a diagnosis for as and ppd but the kids in her class are starting to notice she is diffrent to them and have been bullying her which i have sorted out now .thankfully but her teacher is fab and i do have the school on my side but it does break your heart knowing there unhappy and u have put them in that situation but thats not your fault,when she comes home from school she will cry and then go upstairs and watch tv and just go into her own little world ,i sometimes wish i could swap places with her and see how she feels and copes and what she is thinking , <'> <'> to you i feel the same teresa

163 in progress of going for another diagnosis after having meeting at school with evreyone involved in alicia

sorry not been on had alicia of with stomach bug relief really cause ive not had to listen to it ha but no seriously it was driving me round the bend ,ended up having to tell her teacher she was petrified of big ben,she never wants to go to london because she will catch fire had to explain to her it happened such a long time ago and that the fire isnt ther ,she just believes evreything is so real and happening now i think trying to explain is so hard

alicia has come home from scool today and yes u guessed it shes learning about london,anyway she keeps on going on and on about big ben and that she dosent ever want to go to london as shes scared she will be wiped out by the fire and the bells on big ben will chime that loud it will hurt her ears i had to laugh but now after 4 hours of listing to this its driving me mad , but hey guess it might be a move on from the death obsession ha ha

yes she does she has a website ***************she was really good funny thing about it thou is my partners surname is ****** to lol (edited by Moderator...please use PM facility for giving contact details, thanks!)

hi not posted for a while as been trying to get my head round all sorts of stuff = had a holiday and then with christmas coming up not really had that much time so here i am to fill you in on the latest ,i went to the hospital in nov for hopefully a diagnosis on alicia but didnt quite get that they want to do further assesments on her as they say she dosent quite fit ,but i got really peed off with them as when had the thursday morning assessment previouse to this meeting ,you know the one were they come to your house for an hour and think they know evreything about your child and bla bla bla ,well i mentioned to them that she liked to strip naked and stare at herself in the mirror and would say look at my bum bum shes 5 by hte way and when she had a bath she would touch her self and is always fiddleing with her bits because i felt for a 5 yr old that wasnt normal perhaps it s me i dont know ,well when we went for this diagnosis i found me and my partner been asked if we minded been check ed out by the child protection team as because it was sexuall they had to do this ,we both agreed we didnt mind as we had nothing to hide but god it was awful as we were going away the next day and i was dreaming we were going to get stopped at the airport and all sort of stuff ,so we went away to futerventura for 2 weeks sheer bliss (god we needed this)got the report bk when we came back that all was clear and when we were to go and see the peadatrition in dec they were going to swabs to check for thrush, worms ect .So we went to her appointment and the consultant wasnt their but another doctor was and i mentioned to him all that had happened and he asked me why she went to the child dev so explained why i had had her checked out ect and he has arranged for me to have 1 hour cons with the main pead as he feels i need to see him as soon as so got anappointment in feb . anyway we had booked this clayavoant and went last night hadnt mentioned anything regarding alicia and she told me that i must follow my instincts and to tell people that if i dont push this and keep on fighting then i might regret this for the rest of my life and if nothing does come of this then i will at least had some peace of mind and to keep on fighting and i will get answers in the next 6 months and some good will come of this she told me school are watching now and mention ed disprixia what ever that is but ther are issues and she mentioned that she dindnt sense danger and consequences and god i could of kissed her as this isreally the first bit of poss news ive had and she told me im tired but things will get bettet and oh yeah im going to have another baby in the next twelve months then i could of cried as 3 enough for me well im sorry fo moaning but needed to get that of my chest find it easier to write down and express my self than speak cr*p at speelling and punc but who cares im sure you will understand thanks for listning teresa

my daughter is 5 years old and the latest obsession is about death and she keeps saying to me were not going to die mum are we ,when we go to jesus he mends us dosent he and then were better again arnt we ,has any anybody else been through this and any advice given is much apprieciated thanks Teresa

hi its teresa i know excatly what your going throu i had the same thing today was there for two hours but sadley they coulnt confirm the diagnosis for alicia and said she was a very paticular girl that like to do things in repeated ways ect ect i felt like banging my head against the wall but they havent dismiss there are issues and untill she is older andshowing more signs ect ect they carnt confirm but they did mention asdso now im all confused but hey im going on hols tomorrow so will find an internet cafe to see how you doing dont worry you will be finei know its easier said than done but i was actually alot more calmer today than last week as you probably know from my post im keeping my fingers crossed that you get somewere all the best teresa <'> <'> <'> you was only saying last week you wished it was happening to you well your prays have been answered someone must be watching over you