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madme

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About madme

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  1. I suffer withn anaphylaxis as does my son. Mine is nuts and animals hair, more recently bananas and avocadoes, My son -grasses. It is vital that you find out the cause- it may be that they have said its a one off- please however ask for a referral to an allergy specialist. I would also suggest that you join the Allergy Uk. They have a useful helpline. With specific regard to your comment I do not know about the increase in symptoms. I do know someone whose son had a very bad reaction to the MMR. Good luck
  2. I think they are a good idea - but then I am biased as our local support group was one of the first to push for this and got a local indepenent chain to try it quite a few yeras ago. They took the idea up and it spread. They are usually much lest expensive than the larger chains.
  3. Just to say my son was originally diagnosed as Hyperkinetic disorder (severe ADHD), ODD, dyspraxia and asperger traits by a specialist panel at age 6. The lead Psych did tell us that he supsected Aspergers but that we should deal firstly with the ADHD and things would become clearer. To be honest we were probably in denial at first. As we went through the statementing process we were very fortunate that the paedaitrician who saw him said that she felt that he would benefit from a proper ASD assessment. At age 8 they removed the ODD label and said that he was Aspergers- again a specialist panel. Now 16 he has benefited from a lot of educational input. Although I don't agree with labelling - unfortunately they are necessary to access education and support. Good luck.
  4. Hi. My son attends Stanbridge earls near Romsey. He is now 16. They offer GCSEs and A levels. They are known as specifically for dyslexia and dyspraxia. My son also has Aspergers and Dyscalculia. They have OT and SALT. I know a parent whose son ( ASD) is very academic and has enjoyed Dulwich College. Good luck

  5. We live SE london. My son is statemented. Attends a boarding school. We looked at lots of schools. I will send a private message.
  6. My teenage son has a dx of aspergers, hyperkinetic disorder (severe adhd), Dyspraxia and dyscalculia. The last two for him have required additional help. i agree that an onsite ot and salt can really help. when he first went to his current school his ot worked on his core sports skills 1-1 which really helped him. he wont ever play rugby for england but he can join in sport lessons now Dyspraxia is a lot more than just being clumsy. it depends on the severity- my son was functioning at a very low level and hence met the requirements for intervention. there are some go6d bo6ks on dyspraxia by dr kirby and dr portwood. good luck
  7. My son took part in that research a few years back. It was fascinating. His eyes were all over the place. He loved its as cool equipment and got paid.
  8. My son has a dual dx of Adhd and Aspergers. He was dx as ADHD and autistic traits and then aspergers a year or so later. He currently takes concerta. There is a good website called adders.org where you will find lots of advice about adhd and medications and lots of other eally useful things. They have a forum. It is trial and error as to which one suits. At 8 concerta didnt but does now. At 7 ritalin was the best fit. Good luck.
  9. What the neuro is suggesting can sometimes be called somataform disorder if there is no physical cause of the symptoms. However this is usually unconscious. I have come across it and they have to exclude any physical cause first and then they would usually refer on to a psch. I cant see how its a neuros job to think up causes like this- sounds rather like that doctor in the munchausens cases- The solicitor who dealt with those cases is really good at this area and may be worth getting some advice if they dont back off. Hope you get this sorted soon.
  10. madme

    maths problems

    My son is 14 Aspergers and also has a diagnosis of dyscalculia. We found that he only actually made any progress once he got that diagnosis and was treated as such. Before that he was given more of the same. Times tables are still hard but he is on track to get a GCSE - something at age 8 I thought impossible. He has a high I Q and I think that his school found it hard to accept the level of his difficulties. Good luck
  11. We had DD (8) 's parent teacher recently. DD has aspergers. No statement. Has an IEP. We feel very frustrated. She is bright and in her previous school was designated gifted and talented. At that school they advised us that it shouldnt be more of the same but a little harder but things that would really stretch her- we were lucky enough to have some input from a specialist G&T outreach teacher in the area. As she is now in a different borough there is none of that but they do have the reports. We were told last year that she was going to be tested to see if in year 3 she was already at level 4. I have never been able to get an answer as to what happened. We have now been told that her an a few other girls are being tested and may be moved to a different teacher for maths. My question is if she can achive a level 4 should she still have to spend every maths lesson going over and over the same things. I accept that they have to ensure that she really can do all the areas required but why can she only go to a little harder work once she has done the same as the others. I'm sure that last year there was more differentiation. She has friends. Two are also quirky like her which helps. She does however come home often very upset as someone as said something and she takes it to heart- eg a quip like you are stupid- she doesnt know how to deal with these situations. She still wants to control everything but is getting a little better. She worries most evenings about what has happened in the playground. She still is far too outright in many situations. eg standing in queues will talk about people. We asked whether they have social skills lessons. We were advised that they don't. We were told that she had no behavioural issues. We tried to point out that we were talking about her difficulties with social interaction. The teacher said that he has had training in Aspergers and that they cant seen any problems. Academically she is fine. Because she isnt running around the school causing chaos as far as they are concerned she is fine. We asked what training the supervisors had and were met with a blank stare. We asked whether they had more focussed play to help social skills- were were told that play was self directed ! Are we asking too much for there to be some sort of social skill intervention? There is a lot of good about the school. We just feel that we are being seen as over protective middle class parents.
  12. There is no difference between someone being injured by a car or a person or indeed an animal. Its about negligence. If you have a large dog and know that it gets frisky around others and decide to take it out without a lead and it then rushes off and knocks someone over causing them injury that person can sue you. (its not quite that stright forward but this is to simplify things) Would they not be covered by the school insurance- on their public liability insurance? only if the injured person can show that the school had failed to take appropriate steps that it could or should have known. Just because you are injured at work doesnt give you the automatic right to compensation.
  13. If your injuries were such that you were never able to work again would that not change your opinion? If you had a car accident which was caused by someone else and suffered an injury would you also not claim?
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