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A and A

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  1. Hi just about ready to apply for mobility component for our 5 yr old son who has asd with severe developmental delay and he is mentally impaired with behavioural problems he also wears pedro boots to aid ankle stability as he is hypermobile in all four limbs and has low postural tone in both legs and has physiotherapy exercises done daily at school under the request of his physiotherapist, Liam also has a blue badge for parking the car and he can only walk very short distances and then gets tired and has to be pushed in a buggy which we have a appointment next month to get him a major elite buggy through the local authority and Liam gets top rate care component has any else been successful in getting top rate mobility. Many Thanks A and A
  2. hi we have a 4 yr old child with asd who for safety reasons has his mattress on the floor as he falls out of his bed when on the frame and when we tried with bed rails he went over the top of them, what we are looking for is something to put around the head of the bed and along the side to stop him banging his head and legs on the wall while he is asleep as this then wakes him up and it takes 2hrs to get him back to sleep again, looking forward to any solutions to this problem. A and A
  3. hi there yes Liam doesn't understand what is going on which not sure if that is a good or bad thing bless him, we will make sure that the venflon is removed hubby and I have also agreed that if we feel Liam is not well enough to go home they we want him admitted to hospital for a night as its difficult as he never shows any signs of being in pain and as he doesn't talk we are kind of in the dark with that one as well thanks for the advice xx Anna
  4. Hi thanks for that Liam has to be on the ward for 9am and he has visited the ward already and we have been told to take any fave toys and blankets that he has so he has familiar things around him from home so iggle piggle and makka pakka are coming as well and they have their hospital id bands on their wrists already . Anna
  5. hi there Liam goes in on the 25th of august all help very much appreciated Anna
  6. hi there I took Liam to the day surgery unit yesterday and we met the staff and spent time on the ward and discussed any worries that I had and Liam was given an oxygen mask as a visual prompt for when he goes to the unit, they were really friendly and helpful with both of us, not sure on how to do a social story sorry if that sounds stupid as head is swimming at the moment and confused about many things. Anna A and A
  7. Hi all we are parents to a non speaking 4 year old boy who has autism and severe global developmental delay he is due to go to hospital in day surgery to have a tooth taken out and this is his first general anaesthetic and I am really worried about him and hate the thought of watching them put out little man to sleep have any other parents been through the same kind of situation. A and A (Anna)
  8. Just looking for some real answers. Partly genetic is a cop out. More like we don't really have a clue what the cause is, so we'll cross our fingers and hope it's genetic. After all autism is a name given to a group of symptoms, many illnesses share similar symptoms. Lumping them all together and not doing any further investigations will mean some will be wrongly diagnosed and forgotten about, when there could be some real help out there for them. The Autistic spectrum needs to be broken up, if they really wan't to find some answers.
  9. They used to think like that until some bright spark thought it would be a good idea to class everybody who doesn't quite fit the norm as AS, and then add it all together into a spectrum. Sadly those that would have been diagnosed with Autism originally are being forgotten, as we are now over run with thousands Aspies!
  10. I use to be like that, but you know what i grew up and got over it. I suggest you do the same. Stop looking for excuses. Every one has different personalities. More likely your at one end of the personality spectrum rather than the autistic one.
  11. It will just mean more and more people will be lumped into the autistic spectrum, because the authorities don't wan't to spend the time and money investigating the real causes of a lot of these problems. Your on the autistic spectrum, nothing we can do about it, it's genetic, no point in further investigations.
  12. I think the obsession of the authorities to just pursue the Genetic cause, is preventing those, that with further investigation could have there problems lessoned or even for prevention of some ASD cases. Once your symptoms have been labelled as ASD, that's it, no further investigations. We are relying totally on some ones observations to diagnose very young children of ASD, then doing nothing more. I find it unbelievable that they assume that nothing can be done or further medical investigation is not required for these very young children. This is criminal , especially for those children who regress.
  13. The society the big cooperation's and their chums in government have created, is suppressing everyone's individuality and creativity, not just those with autism. At school we'ere told we need to get good exam results so we can get a good job and work for someone else. They definitely don't want us to be imaginative, inventive or creative, as someone with freedom of thought might actually challenge this system and society they've created.
  14. I've found that most people are more accepting and sympathetic of disability and bad behavior when the child is young, people seem to even take an interest in the child. As the child gets older i think the sympathy disappears and they will try and avoid contact with older children, teenagers and adults with disabilities.
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