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trekster

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Posts posted by trekster

  2. Posted · Report reply

    Thank you all. For the hugs and the understanding.

     

    trekster, thanks for the insight, she get praise for everything, but maybe no more than my other 3, but as, in my eyes, she has achieved more, she gets more of it. (This has at times made the others resentful, ie "we don't get a prize for doing that")

     

    They can get praise for things they do right with their daughter. Yes my sisters been resentful of me as well.

    I encourage them all to be individuals.

     

    Thats a good idea then adjustments for what they can and cant do are easier to implement. If you can spend quality time with each child in turn doing something that kid does. It might help with the resentfulness.

    She doesn't eat alot, she smells everything I try to put in her food, I tried slipping a few different tonics in her food and drink. She knows and refuses.

    She has never had any kind of medication, even paracetamol, she smells it. (even calpol in strawberry jelly and neurofen in orange jelly)

     

    You could ask for an OT referral for her severe sensory issues. Sounds like she has a strong gag reflex so her body thinks shes going to choke which is why she spits out the medicine.

    I'll certainly try the gluten free and dairy free thing. (Can you get dairy free chocolate spread??)

     

    Yes and to me it tastes the same, ask for "gluten free" section of your local supermarket. Sainsburys are the best, followed by Morrisons (get my easter eggs from them), then tescos. See the diets section of this site so you can contact parents who are on it. Im on it and resisted the stuff for 10 years because i couldn't face it.

    What is ODD? Excuse my ignorance, please.

     

    Oppositional Defiance Disorder,

     

    * Frequent and/or extreme temper tantrums

    * Tendency to be easily annoyed by others

    * Blatant refusal to comply with household or school rules

    * Takes argumentative stance with adults

    * Rude, uncooperative and confrontational attitude

    * Use of mean-spirited language when upset

    * Deliberate attempts to upset and annoy others

    * Frequent bursts of anger or resentful attitude

    * Tendency to place blame on others

    * Outward and belligerent defiance

    * Revengeful attitude

     

    http://www.kidsbehaviour.co.uk/Oppositiona...isorderODD.html

     

    Hard to tell what is an autisitc meltdown and what is ODD though. i'm no expert but i know a parent with an ODD kid so i will ask him for further information if you are still stuck.

     

    Alexis

     

    PS was worried you would be angry at me for the way i replied.

     

  5. Posted · Report reply

    My university, keen to ensure equality and diversity and that I didn't feel I was missing out have internally managed to screw up the payment of my grant so I don't know what's happening in much the same way students with Government loans don't. :angry: They have the money from the funding body (and are getting interest on it :angry:), they're just unable to press the right buttons on their computers to transfer the right amount to my bank account. It's so nice of my university to make me feel included in this way. :wallbash:

     

    i would complain either to the welfare officer, disability officer or someone high up. Make sure you get the interest from the grant when it arrives.

  6. Posted · Report reply

    Nope still not sorted. Got the student loan part but not the maintenance grant or fee loan yet, hoping it will be sorted soon though :pray:

     

    Hope the student loan part will be enough to keep you going until the other bits come through. Pleased to see you back online mate :thumbs:

     

    Alexis

  7. Posted · Report reply

    Hello

     

    A college that can negotiate my needs with me as well as my carers is the best. Has he asked for a support person to be with him at break/lunchtimes? Is there somewhere he can hang out that's safe during the break-times? is there anything he can take natural or otherwise for his anxiety?

     

    What about trying to find another autistic/asperger student he could stick with, strength in numbers comes to mind here.

     

    Alexis

  9. Posted · Report reply

    What university were you attending? i asked the disability officer to put me in touch with "autistics who wanted to meet other autistics". i met Fiona who i only knew for 2 years as she sadly died from cancer whilst at university. i was her only friend and that meant a lot to her and me.

     

    Is there a local NAS social group you could attend? Maybe you will be able to find other students there that happen to be at your university.

    Im at the university of birmigham but thats distance education only.

     

    hope you find some autistic academics you can gell with.

     

    Alexis

  10. Posted · Report reply

    Some kids react really badly to the chemicals used to clean the schools. If they are benzoate based i would suspect this to be a cause. i am normally very well functioning and able to access constructive ways of dealing with my anxiety, but prolonged exposure to benzoate and im a little monster.

     

    Could he be in pain and not able to communicate that pain?

     

    Could it be severe sensory overload? (dinning halls made me want to run away and scream due to all the background chattering).

     

    Have you tried addressing the possibility that his anger could be related to depression? Prolonged episodes of anger in me are actually depression and taurine, 5htp and being gluten free addresses this.

     

    Alexis

  11. Posted · Report reply

    If it helps athestar i believe you could be asperger. You can apply for DLA without a diagnosis but you have to be able to describe your difficulties in a way thy can understand. Mine was picked up age 16 (about 14 years ago) for me that was late as i was severely depressed and unable to function mentally. Now 2 years ago i moved into my own housing association flat.

     

    If you can its better to get diagnosed with ASD or autism since aspergers doesn't fit any learning disability or mental health criterion. At least thats my experience. Good luck and dont give up, see if you can find a local NAS branch if possible and ask them for help if you need it.

     

    Alexis

  12. Posted · Report reply

    Hello

     

    i couldn't cope without my support person in class, in fact i couldn't cope before i had access to a support person (they didn't admit i had aspergers til age 16). It could be that we have problems accessing our memories. Ask to see his school books instead that hes written in.

     

    i hope you resolve your situation soon.

     

    Alexis

  13. Posted · Report reply

    Hi peaches . :)

    .I do not have any ideas as it appears that the school and yourself have already done most of the things I would have suggested.

    However I did want to let you know that you are not alone.We had similar situations whilst on holiday.Even though Ben had been positive about trips and we had prepared he was very anxious at the last minute.It feels very sad when I know the activity is something Ben would enjoy.

    Karen.

     

    i wish i could get over this issue as some of our social club members tend to back out at the last minute for the holidays i organise.

  14. Posted · Report reply

    A few ideas

     

    "Social Stories" by Carol Grey.

     

    A pictorial or written timetable of how the school trip is going to happen?

     

    That a teaching assistant accompanies him on the school trip.

     

    That he can ring you if there is a problem with the school trip.

     

    Possibility of going to get him if the trip gets too much.

     

    Possibility of taking him to the place hes visiting the week before and let him ask questions about the place.

    Then you can write it all down for him so he can refer to it if he gets stuck.

     

    Definitely a routine thing, with me the sensory overload was a bit much but i just about managed a trip in maths

    about 2 years ago age 28! So it affects us older folk as well.

     

    Alexis

  16. Posted · Report reply

    As if you are describing my son, Bluefish! He also repeats dialogues from his favourite films , even the body movements of the characters.

    I also think repetition gives him some sense of security.

     

    Danaxxx

     

    Or it could be that he cant remember who he's told what? i used to be like that but when my memory improved due to milk withdrawal i was much better.

    Many of my autistic friends also have poor memories and ive noticed a correlation between poor memory and repetition.

     

    Alexis

  17. Posted · Report reply

    My son Glen who is 15 and is severely autistic, is and always has been very repetitive, are there many autistic kids that are similar? Sometimes Glen is less repetitive than others, at the moment it has increased again. It's always the same things that he says, food items as Glen is obsessed with food. Glen will continually repeat the food items he thinks he is getting today or tomorrow, particularly deserts and breakfasts. Glen is also more repetitive in anxious situations, i.e. School. It would be interesting to hear back from parents with their experiences of their kids being repetitive.

     

    Sorry not a parent but i can describe the repetition issue in my aspergers.

     

    Yes we like repetition because spontaneity is something that's easier for us to remember. As for selectively eating he might need the gluten and dairy free diet if that is mainly what he's having. Have you tried supplements for anxiety? b6 and magnesium can help, gaba, taurine and b12 (if he frequently forgets whats happening or has language recall problems).

     

    Alexis

     

     

  18. Posted · Report reply

    Hello

     

    i went through a stage of hating my sister. i think it was to do with the fact that she had things i couldn't achieve.

     

    How do people react when she does something that's not so easy for autistics? such as remembers her manners? or waits her turn? or asks for something?

    Does she get praise for things she does that come automatically to other siblings? Does she feel she getting into trouble more than her other siblings.

     

    Its nothing to do with being treated the same its to do with being treated according to your needs. i grew up not knowing i was autistic and was shouted at and smacked for every thing i did wrong. It made me not trust my parents. Normalising us tends to make us rebel, normal sucks and we just want to be accepted for who we are.

     

    Sounds to me like she could benefit from going gluten and dairy free and having some supplements in her diet. She could have been born with a conduct disorder such as ODD.

  22. Posted · Report reply

    I would be very wary of chelation.

     

    Bluntly there is no peer-reviewed eveidence that it works and there are concerns about it's safety inclusing a British child that died in America a couple of years ago. I would not put my child at risk in that way.

     

    Simon

     

    i have been chelating for nearly 2 years now. There are some forms of chelation that are unsafe such as IVs and others that are much safer such as AC protocol. PM me for details of this list as its on email not BB.

     

    DMSA, ALA or DMPS are known as safer methods of chelation.

     

    Alexis

  23. Posted · Edited by trekster · Report reply

    Was wondering if my reading from right to left (ie upside down better than the right way up) could be corrected using this therapy?

    i live near Bristol and need some help getting some color therapy contacts.

     

    Also if anyone knows a driver that will permanently put my screen upside down on my PC i will be grateful for your help.

     

    Alexis

  25. Posted · Edited by trekster · Report reply

    i found it greatly helped my ME. i made the mistake of not cutting out the msg or the aspartame and did better after i did this.

    i had to include b6, mag, cal, milk thistle, b12 and a few other supplements as well as the diet. They often appear after going

    gf/cf since the addiction tends to hide them at the time.

     

    i hope you can try again sometime. ive been on it about 4 years now and im still improving.

     

    Alexis

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