onlycrazygal

hi all, you guys are something else, thank you for caring , bit tired from today, bit bedraggled but ok.....bless you guys!!!! went to court today to face an application for an interim care order..... luckily its been transfered now to manchester magistrates on the grounds of complexity and is scheduled for thursday morning. i flagged up that a barbara j wishes to advocate for my son but they have arranged a cafcass officer to see con wednesday morning . i do wonder wether this cafcass officer has experience of aspergers children but we will see....as he can quite easily misinterprete what ppl say.... its been suggested that maybe the care proceedings and judicial review coming up about cons education/assessment can be merged as this may be dealt with in the high courts..... they are now focusing on the two doctors involved that have conflicting views, one saying my son is fine and the other saying he is far from fine. i guess from my point of view im frustrated as this farce has dragged on long enough to the detriment of my sons mental health, i feel his problems that need treatment have been neglected for so long now its having an affect on his psychological state. they need to stop ruddy attacking me and finding a way to remove him from me and get my son real help before its too late.... hugs, paula <'> <'> <'>

I dont believe it.... im in the administrative court in london friday taking LEA to task for refusing to assess my son.... got phone call today the local authority have served papers on my sol and will be sending me the same tomorrow, theyve started care proceedings....theyre going to court monday for a date......i have to go their too...... My heads spinning , i havent done anything wrong we went to the dietician as they requested, the LEA inspector came out was more than satified i was teaching him adequately ...... weve done nothing wrong......theyre doing this purposely im sure, they know i get easily overwhelmed , for gods sake , why dont they just leave me alone..... i wonder if they are trying to throw me in a tizz for fridays court date , i dont know.... scary stuff!!! hugs, paula

I dont believe it.... im in the administrative court in london friday taking LEA to task for refusing to assess my son.... got phone call today the local authority have served papers on my sol and will be sending me the same tomorrow, theyve started care proceedings....theyre going to court monday for a date......i have to go their too...... My heads spinning , i havent done anything wrong we went to the dietician as they requested, the LEA inspector came out was more than satified i was teaching him adequately ...... weve done nothing wrong......theyre doing this purposely im sure, they know i get easily overwhelmed , for gods sake , why dont they just leave me alone..... i wonder if they are trying to throw me in a tizz for fridays court date , i dont know.... scary stuff!!! hugs, paula

ts mom thanks for that , hes just had his boff chopped, (sorry his hair cut lol) what a palava lol anyway i can see his face now, job well done phyewwww .... hugs, paula

hi i have to go to administrative court in london on friday, i just wonder has anyone any experience of this as i havent a clue what to expect.... thanks, paula

I wonder do s anyone elses kids besides the high pitch screeches an screams come out with repetitive comments over and over..... our bean must say Az (his older bro) is a puff about 50 times a day hes been saying it for about 12mnths though Az is understanding its gettin on his nerves, i mean bean will shout me , no matter what im doing sayin muuuuuum, i say what ? he says aarons a puff i say ok bean..... doing my swede in..... is this part and parcel or should i tell him off ? im wondering if its part of tourettes but not sure, hugs, paula

im rhesus negative, so is my mother and brother.......i suspect both of my boys will be too ..... interesting ...... hugs, paula

hi all, i know some of you have positive experiences regarding parenting partnership and thats great. but i feel i must warn people and remind them who exactly they work for......the LEA. At present an injunction has been served on the pp officer that i was working with as all information i divulged as confidential was promptly relayed back to the social services... please always bear in mind that their has been a merge between these two powers and confidentiality must be maintained regardless of what professional you may work with..... if i could turn back time i would most certainly have requested a written contract of confidentiality before breathing a word, although they do openly advertise their service as CONFIDENTIAL and INDEPENDANT.... It does no harm to act with an air of caution with these people..... thanks, hugs, paula

meeeee, funny ??? lol just thought id get my jesters hat on then...lol sorry not been around for a while guys, had a dieticians appointment earlier in the week, took our bean.... this lady was i have to say really nice, she looked at our diet sheet we had filled in , her conclusion being that cons eating habits are very restricted to certain foods eg. soft stuff, food with no bits in it.... she said it would be silly at this stage to start worrying about putting him on a low calorie diet as the food he eats isnt anywhere near varied enough.... said i need to concentrate on very slowly re-introducing foods that con doesnt like starting with say a pea size of something. she said i must go at connahs pace, as if i have a choice .... soooooo now i can tell ronnie the black pineapple (ss) that he WONT be put on a healthy diet so she can simply wait until he fails....she was bankin on this so she could then remove him on the understanding i couldnt control him, placing him with foster carers where she says no isnt an option...... imean who da fluff would remove a child from their home for failing a diet hmmm..... hugs, paula

ok by now you guys know how much i cherish my son yeah......so plz dont think im trying to make fun of him im not..... i just really need to know if any other aspie s do these things..... my sons a big lad 11 tomorrow 5ft 2 13 stone, size 6 feet , you get the picture..... he avoids clothin g at all costs so at the moment 70% of the time hes butt naked. thing is wherever i am or what ever im doing he will seek me out , tap me on the shoulder or shout mum an as soon as i turn around, hes there dancing across the room in his oversized pinkness doing what i can only describe as ballet dancing leaps and twirls an starjumps finished off quite often by an over stretched grin..... thing is he do s it over and over and over and over and over and over.....etc ive laughed it off , didnt have much of a choice have you ever seen 13st of naked flesh trying to do a piroette i love him to bits, but tell him as much as i love his little displays, enough is enough, besides , i really dont want to see his dingle dangling everywhere all the time but he wont stop.... he must think my my head s in permenent swivel mode......this has been ongoing for months....HEEEEEEEELP hugs, paula

guys, i needed a miracle.... i found out my son had gone to one of the few FII /MSBP camhs units in the country, a certain female doctor, defends the label at conferences across the country , writes books, journals, guidance for other consultants.....and worked at the very same camhs unit my son went to...... yep i needed a miracle, a lovely lady from awares forum offered help, id had a few offers wasnt sure how serious she was to be perfectly honest. anyway luckily enough i decided to give her a ring anyhow...... i hadnt a clue who barbara jacobs was ??? so when she asked me if i knew who she was i sheepishly declined. when she told me she was a journalist,writer,broadcaster,and lecturer on the autistic spectrum in the uk and usa my jaw dropped. she has written me the most superb letter for the social services, telling them that my family is part of her research for her fast track phD, that she was studying multi model and multi agency provision. also she would be guided by her supervisor and close personal friend tony ATT**** ....... she is now my autism advisor, and invites the ss to contact her , the letter is lengthy and detailed and she makes suggestions as to how they may conduct themselves when clearly my son has aspergers......i cant wait to give it to them. this may well save my son from going into care, i had to share this with you as you have all been so very supportive of me, and i really cannot thank you all enough, youve kept me going. will keep you posted , hugs, <'> <'> <'> paula

hi just thought id touch base with you all.....been busy twirling around contacting anyone basically that can possibly help our situation. i recently learned that theres a certain doc at camhs is well known throughout the country for defending the FII msbp label.....this may spell real trouble for me as she works in the same camhs dept as the camhs doc that said my son is fine. its a nightmare for sure but i know as long as im honest ive nothing to feel bad about ,even if the worst happens..... tired today but godda clean up, i have a visit tomorrow from SW and nurse , she wants to talk to con , WHAT CAN I SAY, CANT WAIT.....im gonna photograph my home before they arrive so they cannot tear me to pieces in reports..... hope your all ok , bye for now.... paula

my feet are as flat as a fluke .....was always pointed out to me as a kid.......and our bean is always complaining about his feet , that they hurt and ache, i always assumed it was his weight but come to think about it he could be flat footed too..... hmmmmmm.....but if you guys think im going to the docs with his tutsies youve another think comin, lol doc will only write down im nuttier than he first thought lol....godda laugh !!!!!! hugs, paula

does anyone know if i am entitled to these records ??? thanks, paula

god im so annoyed, my sol needed all records concerning me and my son held by parenting partnership, g..... sol said just request them we need them asap. i rang her for them and she wont blummin give them to me, said my solicitor must write to her and request them....grrrrrrr this is the lady that heard on 2 occasions from my sons lips all about his problems, promised him she would help him and put him on the at risk register along with the other professionals.... i dont understand this , does she think im actually guilty of fabricating my sons problems ??? crazy.... hugs, paula

this is indeed such a very sad example of two people stuck in an impossible situation. coping for all those years , i can only imagine how weary they both felt/feel.... im struggling against the negative aspect of this as i ask myself how many more people must we read about before something is done and some REAL money is put into place..... im seriously worried about my sons future, and my own too.... this story fills me with anger, what the hell ever happened to humanity and compassion for goodness sake.....its all down to money, no wonder they seek to take my son, the foster carer will recieve aprox �400- 550 per week to care for my son, why cant they give me that money and he would get all the help he could ever need ??? just to touch on what oracle says, msbp is found in aprox 5......yes 5 people in britain per year, so why oh why do we have 22,000 children in care due to msbp related accusations. their is something gravely wrong with the system when the entities that are paid and put into place to protect our children are the very people that abuse our children...... emotional/physical abuse is rife in care and a child doesnt even have to go that far , they just simply have to be defective in their eyes in some way, disabled, blind, mentally retarded , deaf, have learning difficulties you name it..... seems to me if your child isnt perfect and doesnt fit in with the click, they are victimised along with their parents, i too have read other parents horror stories and know better than to try and justify the actions of those in authority that simply do not care.... hugs, paula

forgot to add they want these blood tests done to rule out diabetes because of his weight problem..... and probably to see if im doing anything sinister to him , dunno ive asked them for assistance but they insist i should be able to get him there thats if im in control. hugs, paula

hey thanks for the kind words about the pics, your right noogsey they dont look neglected do they love....lol cats hmmmmmm corrrrr yeah that was when we had tiddy bab and hiccup and budbud, chopsibum and towber.... .lol i dont have all of them now i just have towber and chops both male...... thanks everyone else for your advice, ive tried bribery , tried being firm, always make sure he knows its ok to be scared. its just that in the past eg. when he needed his eyes testin an they had to put drops in it took 3 people including myself to pin him down whilst they put the drops in........it isnt nice guys is it, i felt i had betrayed my sons trust in me, it also felt abusive too he was screamin like his life was being threatened for goodness sake, lol ....... i just dont want to do that again to him ever!!!! am i being too soft ????? hugs, paula

hi i wonder if anyone has any ideas , as part of this mess with the social services they wanted me to take con to hospital for blood tests. the problem being that con has flatly refused despite me offering incentives .... course the ss look upon this as a failure in my parenting, only i see his anxiety as he was up till 6.30am the night before we were due to go.....i dont know what the hell to do to get him their appreciate any ideas thank you hugs, paula

if i may i would just like to emphasise the affect an accusation such as msbp / or fabricating can have on a family..... my son was diagnosed with asthma when he was just 1yr old he was taken into hospital and was on oxygen for best part of a week..... when we moved house and changed doctors i had a few spare inhalers knocking around so wasnt too bothered about asking for a repeat prescription until just recently..... i had gone to see the nurse at the doctors surgery about my sons diet and a referal to a dietician, whilst their i asked for inhalers, dont get me wrong hes almost 11 now and only seems to need them if hes been exercising or has been particularly upset, never the less they are necessary. the nurse said so he has asthma i said well yes he was diagnosed at 1yr old ......she said are you sure ??? once a child is diagnosed with asthma its for life. i said i know, looking at her puzzled . so she wrote on the computer SUSPECTED ASTHMA SAYS MUM........ I dont have inhalers, she didnt give me a prescription but said its on record now in case con ever needs treatment. Excuse me, but if i hadnt been labeled my son would have inhalers in his hand right now. the worst of it is though that the msbp/FII label will never ever be taken off my records, no-one has the power no-one , not even a solicitor, i have it for life. so everytime i go to the doctors with my child, everytime i go about any of my ailments i will be doubted and questioned like im some kind of nutcase. on the 23rd i have the social worker and a school nurse coming to my home, part of the reason is that they want to ask connah if in fact he HAS been suffering tummyaches, headaches, feeling sick, as for the past year i have been telling the doc and requesting a referal as he has had it all of his life and it is no better, he suffers every day with the runs and constipation etc to boot but no-one believes the nutter of a mother you see......MY SON IS SUFFERING AND I CARE ENOUGH TO WANT IT SORTING OUT YET IT MUST BE APPROVED BY OTHERS BEFORE ANYTHING CAN BE REQUESTED....... HUGS, PAULA

could i please ask that members plz plz ....copy and paste the below and send it to their local mps, this could make so much difference to so many childrens and families lives that have been affected by unlawful accusations very much like my own......please spread to other forums , family, friends etc. many many thanks, hugs, paula It is very important that you do this EDM's are powerful political tools and you can make a difference. Dear MP First Issue: Can I ask you please to sign EDM 2688 which relates to Munchausen's Syndrome by Proxy now known as Fabricated and Induced Illness in Children. The Current DfES guidelines operate like a witch hunt whereby parents are required to prove their innocence against allegations that they have hurt their children. There have been a large number of miscarriages of justice in this area with cases like that of Sally Clark and Angela Cannings obtaining a lot of publicity. There have, however, been many other cases with less public profile. Whilst the guidelines continue to require people to prove their innocence there will be continuing injustices. Can I ask you, therefore, to sign the EDM to show your support for the principle that people should be innocent until proven guilty. Second Issue: Can I ask you (also) to sign EDM 2679 about the child protection system. There are a number of difficulties that lie in the area of Child Protection Services. One of these will be resolved by openness in the Family Courts system which will open the process up to scrutiny and was covered by EDM 869 about the Family Courts. A second area lies in the conflict of interest between support and enforcement. This causes considerable difficulties. For example there are cases where women approach Social Services for support in dealing with Domestic Violence from their partner and Social Services start the process of trying to take the children into care. This discourages women from reporting Domestic Violence. EDM 2679 suggests the separation of enforcement and support to remove this conflict and allow people to ask for help without the threat of having their children taken off them. Third issue Can I ask you (also) to sign EDM 2678 about the secret files kept by Professor David Southall. This issue links medical ethics and child protection procedures. There will be a need for a formal inquiry into the history of the issues here as Professor Southall was one of the key proponents of the MSbP thesis. It is, however, important that people are provided with the information that is stored about them. Many people about whom information is stored are unaware of this hence there is a need for the University Hospital of North Staffordshire to tell them that this information exists. MSbP FII http://edmi.parliament.uk/EDMi/EDMDetails....amp;SESSION=875 Separation of enforcement from support http://edmi.parliament.uk/EDMi/EDMDetails....amp;SESSION=875 Secret Medical Files http://edmi.parliament.uk/EDMi/EDMDetails....amp;SESSION=875

couldnt sleep , came on here coz i knew id not been on an you guys would be wondering if all was well...... i had to take a breather , i know you understand, ive just been gigglin my head off at you lot breakin the rules above here.... im ok, got a couple of contacts , and hey, no fear im on the phone tomorrow you guys are great!!! i wish icould respond to everyone just know your words of support are read and appreciated oh well better trot back upstairs get some sleep, its people like you that keep people like me going, thank you.... god bless!!! paula <'>

i really do thank you guys from the bottom of my heart for your support, you are indeed an awsome bunch. it appears my case is now even more complex, when my son was 6-7 his behaviour problems were chronic. At the same time however my eldest had been diagnosed with panic attacks , anxiety and ocd, myself and con went along to see a dr k that was treating my eldest. as the first session progressed questions were raised not only about my eldest but about the impact of cons behaviour on the family, course i answered the questions honestly and as we were about to leave dr k commented on how he thought con had a seperation anxiety disorder but said he was checking a few things out though first. upon my return this dr k s attitude had changed the conversation had turned into my parenting skills lacking a certain gusto and he gave me a leaflet on positive parenting. we went afterwards with my eldest an i explained to dr k that although i respected his views i was having dire problems now getting my son con to go to school as well as the truck load of other problems i had with him. dr k said, con why wont you go to school ??? con said coz no-one will play with me and everyone calls me names. dr k said, really and what is it that they call you con ?? con said, they call me fat ..... dr k said, do you think your fat con ??? con said, no.... then dr k rose from his seat and led con into another room and weighed him.... they returned with a piece of paper with a graph on it , dr k , laid it on the table in front of con, and with his pen drew a cross upon it , which showed con his weight. he said ok con now then most 7yr olds are here, and you are right up here, in fact you are almost double the weight a 7 yr old should really be..... at this point i was beginning to feel very uncomfortable. dr k said, so con it seems you were wrong, and your friends were right , you are overweight...... now then what should you do to stop your school chums calling you names ??? hmmmm..... what would make them want to play with you again ??? hmmmm...... ok i will tell you, you need to lose weight, do you agree ??? our con nodded..... your mum needs to put you on a diet , though i must say i think it will take about a year for you to get it off.....you need to lose weight no ifs buts or maybe s im afraid. its all up to you, if you want to have friends and not get called this is what you must do ok.....im not joking either look at that graph, would you like to take it with you.... i looked across at con at that point and must be honest i wanted to cry for him..... i was very suprised he hadnt crumbled as i would have done . call me protective but i didnt like the way this doctor treated my son, i believe their are ways and means of pointing things out to children and his manner quite frankly left me quite disgusted........THIS DR has now come onto the scene claiming he assessed con and found absolutely nothing wrong with him of course he is the camhs doctors collegue..... so now they are saying that 2 doctors have assessed my son finding nothing, then dr m comes along and diagnoses him with aspergers tourettes add odd within the home enviroment and sensory integration disorder which i truely believe. now we have this lady in scotland whom i must stress wasnt dragged into this by me......never the less her wavery watery hasnt seen all the video , but cant really confirm anything .....doesnt ruddy help as now my solicitor says when care proceedings start (absolutely anytime now) he is obligated to divulge her lack of findings to the local authority which means.........3 docs nil 1 doc 1 my maths tell me ive not a hope in hell ........im so angery and frustrated i could scream. hugs guys , bless, <'> paula

just had call off doctor, she says she didnt watch all of the video , but from what she saw she couldnt really confirm a diagnosis of tourettes , she said she couldnt really just from a video anyway. she recommended we sought a tourettes specialist was sorry she couldnt help etc etc etc .....bit deflated but ok i thought she would really come through for me......though i must admit its always been so hard to catch cons tics on cam as through school / camhs even at home he represses them and slinks off to the toilets to release them. think its due to the fact he was bullied so much when they first started at school that he will do anything to conceal them now. its pretty typical of ts kids to do this so im told but it doesnt make a clear dx very easy as i cant exactly catch him in the toilet ...... ok, (in the process of picking myself back up guys) big hugs to all, you have all been awsome bless!!! paula <'>

hey, you guys are awesome , florrie will pm you love just wanted to update you all..... ok , when con was diagnosed with aspergers/ tourettes, the consultant though very good and very reputable wasnt a tourettes specialist, although he felt upon his knoledge of con and family school history and a hour video he had viewed, his view was that con had tourettes. now the consultant knowing this diagnosed him, as con fit the criteria /diagnostics for tourettes syndrome and this has been documented in the report. knowing this would be in conflict with the camhs doc that said he was fine and didnt have any mental/developmental disorders, and also knowing that the social services and or court could simply view it as one docs view against another docs opinion..... phyeeew!!!.....sooooo cons consultant decided to send all documentation off to a very well known T.S. specialist in scotland, to make 100% sure of his findings. She is a very busy lady but after waiting 4 months i can now confirm that she has been trying to get hold of me . GULP!!! Her secetary has told me to ring her tomorrow morning as she will be in her office and needs to speak to me after viewing the tape. This could be the icing on the ruddy cake so ta speak as far as anyone is concerned as no-one will qualm the word of this lady shes the top of her field. im beside myself guys, i cant wait for the morning , my sol doesnt even know .........ive no fingernails left lol even if she said con hasnt got tourettes she can confirm that he most certainly do s have aspergers......as the two do often get confused with each other.... ahhhhhhhhhhh i dont know what to do with myself, hope you followed this....... hugs, paula <'> <'> <'>