sam1414

thankyou all for your words of advice and just to know that someone cares was lovley .r did not go swimming that day had to keep him at home im goin to look at another school next week fingers crossed i know it will be hard for r but he can t go on like this . i have took a week of work sarting sunday so im goin to see what i can do in a week to kick someones ###### !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!in to listening .hopefull his night meds are changing back to normal so we both can get some sleep .bad news on the dla they said my appeal was to late !!!!!!!!!!!!!!!!!! so im back to form filling . on the down side my neighbour is complaining about r behavoiuior affecting her son ,my mum can t cope with r for much longer when im at work .my so called friend said to reece in front of everyone i know u arent normal but i won t have you behaving that way in my house .i could not believe what i was hearing ,my reply was he is normal just special .people are so cruel ,she is my closet friend the one i thought understood thankyou all so much i will let u know what happens in my week off

my son is nine soon to be ten ,he is so special to me but the world outside is harsh to us both he has asd and it seems that no one understands ,even my friends dont really understand .i feel alone in this world that me and r share between us .i ve had another bad day i m exhaused but can t sleep .he is refusing point blank to go to school today ,because its swimming and he is in the big pool just moved up from the little pool ,.he hates it so much .it breaks my heart to watch him struggling every day at school ,he is so far behind but school do nt care they do nt seem to understand .yet again they kept him in school all day with aheadache no matter how many time i tell the school to ring me they do nt ,r says he tells the teacher but he is ignored so he dont say any more ,when he gets home his head is throbbing and he feels sick its a nightmare every day ,we have to go through a ritual to get him to take his medicine which takes ages .im despairing i just so alone i do nt no which way to turn .i m struggling to carry on working ,the csa have nt paid me for 2 years. dla have rejected us again. school is withdrawing some of r s time with special needs teacher and r is struggling more every day .his night time meds have changed so he is refusing to take them i hope there is some light at this dark tunnel we are stuck in i m desoperate for some good news

thankyou for the reply it is nice to know that there is support out there .my son is nine he was diagnosed in feb this year and all i have found is lack of understanding in general .what upset me the most is that the dla stated that he had no extra needs than any other nine year old and that he understood danger . - what i don t understand is how do they make these outrageous statements what person can say my son is like any other child of nine ,i simply do nt understand .i find my son so hard to deal with at times ,how can spiting and swearing at people in the street on an impulse be normal for a nine year old ,he can t explain his actions he does not no why this happens he states he can t help it . the night times are the worst i dread the nightly rountiune which can last for hours ,all i wanted was for the dla to help me to help him . i have rang the dla and after a few very sharp words from myself i am having the decision looked at again i have the opportunity to send in further evidence ,if this fails i will have to go to appeal any tips u have would be gratefully accepted

i have a nine year old son with asd ,i applied for dla some months ago .i was turned down for dla and was told my son just needs the same as any other child who is nine !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!.this is no more than i expected ,do the people who make these deicisions no what asd is like !!!!!!!! obiviously not to have made such a statement.could anybody advise me which course of action to take next ???????????. : i am so angry at the lack of understandin that they can even make such a statement .maybe if they spent 24 hours with us they would change there whole opinion on asd .

my son sleeps badly at nite ,the fallin asleep is the problem we tried melation 2 mg and he within half an hour fell asleep ,he still woke up in the night but he was asleep before 9 pm .it was so strange that i was unsure what to do with myself that nite,i normally spend my evenings tryin to get him to sleep.i thought i had the answer to my prayers but then i noticed a blotchy rash coverin his body ,yes a reaction to melation which lasted for 4 days and made his behaviour even worse.so again its back to the drawin board im back to the nite time battle and left exhauted ,but that one nights peace was priceless

i spent a month fillin in those forms i felt the same way when i sent them offi no i did not put enough in the forms but time and bein exhausted was against me.i hope the person who reads the forms has experinced as first hand or they will not understand

i no exactly how u feel i sometimes think i can t cope ,but there some good days too, it does take a long time to get a diagnosimy son was nine . keep your chin up

i am new to this site ,but have found it very intersting and helpful . my son is age nine throughout his life he has been different . it has taken me so long to get the diagnosis of asd.mostly he was classed as naughty or a rude child ,without his school i would still be struggling .why is this so that no one seems to listen to u he looks ok so nothing is wrong , is the attitude i came across the most . has any one else had these experinces ?