Noskcaj86

Yep. And?

Oh and to add we have only been waiting for this appt for 3 and a half years..............

Been there and done that one. And of course it is your fault for the DNA even though you never got the letter!! (Said with heavy sarcasm) For us it was a meeting to talk about the new diagnosis and give as much information as possible the day before the doc stopped work due to cut backs in the dept. Fortunately in our case she was wonderful and knew how long we had waited and struggled and she phoned me at home (and just happened to catch me), told me we had missed the appt. and that...

And still waiting for appt with ADOS which was meant to be this month...

I know! Hi BruceCM

Hello how are you?

If you mean me, I'm well, thanks. How are you?

Lol took me ages to make an account- the forum told me at one point it wouldnt make an account unless i entered my account name and password! how are you? I'm just being nosy and seeing is making new friends on forums is faster and safer than in real life with people who just can't click with the perspective of someone with autism

btw my name is NOT a mik-take of your profile name

Well, that may work in your favour - hope it goes well for you!

yes, i think it might work in our favour, meant i had less to explain to her!

I remember first Paediatricians appointment with our son. There was the Paediatrician and 2 others and myself, husband and son. We talked about things for a while. My son sat on the floor playing with some toys that were there. He didn't interact with anyone. Didn't come and bring me anything. Didn't seem aware of anyone else in the room. Appeared deaf when the paediatrician called his name. And when she placed her hand on his shoulder to gain his attention he got very dis...

Sorry, there's not many people posting here. I guess we've all got 'unanswered questions', too!

Hi Bruce - a lot of people private message on here...

Uh huh?

Diagnosis for ASD that is, hes had other diagnostic tests and all have been negative.

Be patient, it will take longer, but persistance and encouragement, he will be using the toilet.I got despondent, particularly the soiling bit, because he knew I woul clean him up, so I left him 30 mins dirty, then next day 1 hour , then he learn't after 2, then 3 hours how nasty it was.Toilet was the best thing he realised.

Alot of children on the spectrum have toiletting problems.

My own son was out of nappies by age 3. Now he is older he has explained to me that often he does not 'feel' the need for the toilet until the last minute. Also he has no idea if he wants a wee or poo and so can get caught off guard if standing up and then realises he needs to sit down quickly!

So I believe it is tied alot to sensory processing [as all internal sensations are from sensory information being proce...

What's happened - are you ok?

Yea, nothing happened. I just meant hes a danger to himself. He had been walking on the curb, as if it was a tight rope and wouldnt listen to me saying it was dangerous because he was to close to the road and could easilt fall in to the road etc. I kept pulling him away but he went back again. Just worrying he still doesnt recognise danger even when i explain it over and over x

Remember he is only little still and from reading your later posts he IS unaware of danger. I would suggest doing something like holding his hand and walking a ways on the kerb then gently suggesting an alternative "tightrope" if you can find a line on the pavement. Try not to let him know you are feeling tense. That just makes it worse. My son always liked to walk on walls with me holding his hand.

When my son was 3 we had a loft conversion and the builders just could not...

Hello

Hello :-)

What is not working for you and son? How would you like the school to support your son? Can you have contact with a advocate to support you, when you meet with the school?

I would like the school to take his probably ASD more seriously, and to realise that it will be a life long condition and he will need extra support. I just feel they are not taking it seriously enough!

I mean, they tell me hes delayed by 2 years in comparison to his peers in some areas, but hes not getting any extra support?????

Yes that will be interesting! My grandad, his great grandad died in January and he still doesnt seem to understand that either. He was talking about him today as if he was still alive...!

Children on the spectrum find it hard to understand their emotions.

My son told me "I don't know what a happy feeling is".

Sometimes this can be a processing difficulty ie. not processing what is happening in real time, and therefore not connecting emotions to events.

He should be assessed for emotional literacy and a programme put in place.

hes only 4 and a half though, is this not normal for his age? he tells me when hes sad... if hes upset about not getting his own way hesometimes will say "mummy im angry at you" so he has some understanding of his emotions. He says he "happy" and also "not happy". But angry, sad and happy are the only ones he uses.

I do the same as an adult!

Its the same for bedtime, won't go to bed when told and then struggles to get up for school

Yes thats true with bed time here too! Well, that bath time did not end well... he had an accident in the bath and then needed a shower to get clean!

How's it going? Must be a relief to get over that hurdle...it was for us :-)

Its going ok, still having accidents but also making it to the toilet other times without needing to be asked but night time wetting still happening every night so that will prob take a while yet. What age did your son manage to stay dry in the day? Jack is already 18 months later than his older brother was, he was dry without accidents at 3 yrs. x

That's brilliant! :-D

funny how they suddenly get the hang of it after months/years of us trying to teach them with no luck! So pleased!

Yeah!!!

Woohoo!

If only he could have stayd that tiny little perfect bundle in my arms...