madmumof5

Hi welcome to the asd forum. I am on the border of Doncaster and Rotherham ,I have 5 children and 1 grandson.My 11 yr old son has just been dx with adhd and I think my 3 yr old daughter may well have it too. As he has only just been dx I havent joined any local support groups and due to our location I wasnt sure whether to go for Doncaster or Rotherham.He is currently under DRI as we have only just moved here but at our last appt the consultant did mention referring us to RDGH at a later date. He is in mainstream school and despite my worries he has settled in very well .I had an 8 year battle to get him dx and I actually thought he had aspergers althugh they havent ruled it out they are just dealing with the adhd for now Viv xx

Thanks there might have been one ,I have voted this year I can remember that much but everything else seems to have been blotted out by my battles with the hospital and DLA , I feel like I'm on a roundabout and cant get off

Thanks ,my mp has just died (although she retired in may) so I'm not sure who her replacement is .I got my refusal letter this morning ,I can see why they have refused it due to the school form that the head filled in .I am waiting for the deputy to ring me as she is the one who I have been dealing with but they didnt write to her *rolls eyes* I am worried about going to a tribunal as I will either loose my temper completely and let rip or I will just cry through it all Its just another battle I can do without right now

Hmm not sure why its misssed off the other quote but I think the poster means that this is what the benefits people have said when they turned down her DLA application as its what they have said to me about my 10 year old. Funny how he is the only child in the whole of the juniors who has to wear nappy pants and yet they still think he's an average 10 year old I have appealed but I'm not holding my breath and I have no fight left in me to go to tribunal ,7 years of fighting for help has worn me out and I cant do it anymore

Oh dear you really are having it bad ,not sure what PDA is so cant help there but I have to say my DP finds it very hard to undertsand why ds2 is like he is and gets cross with him rather than trying to undertsand why he is doing something (I do wonder if Dp has aspergers tho ) its like a battlezone most days . I have just realised I quote the wrong post *blush* I was going to say that Elliot chews his cuffs too and I have now refused to buy him more sweaters I just keep buying cheap ones from Matalan and sewing them up ,He has also chewed the top rail of the wooden bunk beds *shock*

Thankyou

Yet again we have been turned down ,I have asked for a copy of the hospital letter and an appeal form .TBH I dont know if i have the strength to fight them even tho I know we deserve it and DS2 needs it what with this and the so called specialists at the hospital I have had it all knocked out of me

HI sorry to hijack the thread but do you know how to go about getting one.I have only got a downstairs bathroom and toilet and my 10 year old has toilet problems (poo not wee tho) the council have modernised simliar houses and put upstairs loos in but havent done ours and its a nightmare ,I just dont know where to start

Lord of the Rings is my sons obsession and has been for the past 3 or 4 years,before that it was The Lion King

Thanks ,it just seems a constant battle ,do they think we do this for fun trying to dowhats best for our children?? I guess they dont have AS kids

well my claim for ds2 has been refused even tho the bits I did fill in (I filled it in online and sent it instead of saving it ,I meant to go back and fill some parts in with more info) show he needs more care than the average 10 year old. They are saying its not an hour or more when it blatently is ,I have spent 7 years fighting to prove he has a problem I really dont have any fight left in me to appeal against this ,dont knowwhy i even bothered applying

They do a book which lists all the toilets http://radar-shop.org.uk/Detail.aspx?id=1 I just spotted it when I was ordering two more keys as DS2 has lost ours so I ordered one for my bag and a spare one just in case!!

My DS2 was about 2 1/2 -3 when I first realised there was something different about him.He was finally dx with aspergers last wednesday and I am still in shock despite the fact that I figured he had got it no one else 'official' had agreed with me so far!!

DS was only referred when I mentioned I had read that there may be links between Aspergers and his bowel problems ,they werent aware of any links apparently, I told them they should google more ;0) I get the feeling they are doing it to prove me wrong more than anything :0( My DS's school dont have any concerns with him as they have far worse behaved 'normal' children there to deal with (thats probably not the right way to put it but you know what I mean ) the school nurse was supposed to be helping me by doing something in January ,it is now June and I'm still waiting, I think its not a problem to them as they dont have to live with it .I am at my wits end tbh

I have been trying for nearly 6/7 years to get someone to take me seriously about DS2. He was 3 when i first shared my concerns with the HV and GP but as nursery had no concerns I was told it was a clash of personalities Finally someone listened to me 2 years ago and we had a meeting last year with a specialist peadiatrician,I was then told I would be sent another appointment which I got last week and its 2 days short of a year since the last one. TBH i'm not expecting anything , I think they will fob me off but we'll see Viv xx