meemo38

My stepson is almost 13 and has never been imaginitive with toys, or done roll play according to his dad, he has been with us since age 6, and my son then 3 used to play on the floor with cars ect, pretend people, chatting away, and Chris, my stepsonb wpould think he was mad, and ask what he was doing and why was he talking to his toys and himself. my son is 9 now, and we now have a son together who i have watched for aspergers signs, nothing seems aparent yet, he plays, likes other kids, is imaginative ect the only thing when he was smaller that he did was line everything up, apart from that so far we havnt noticed anything else. We watched as we think hubby and his dad also have aspergers, although milder symptons than Chris. Michelle

Have to say the same as last poster about my stepson, he has such an eveil laugh sometimes, and laughs at nothing, just sits laughing to himself, or gets hyper and laughs and screams, then other times he can laugh at things on tv, which arnt that funny, but he thinks they are, i find not saying why you laughing the best thing, as if we ask him he can get very defensive!!! Michelle

Hi guys, not posted in a while as things been hectic, finally getting some recognition that C does have aspergers, and we are currently reading through all the leaflets we should have had a few years ago. Anyway i forgot to remind you all, my program was on today, did anyone see me, it was make me perfect on ITV. Wasnt as bad as i expected it to look, so fairly pleased. Michelle

Hubby scored 25 or 28, cant remember, stepson 33, but think he could have scored a little higher as he sees, getting dressed up once this week as having an interest in how he looks, when in reality he doesnt have an interest really. Michelle

Well i did this test, i have an aspergers stepson, we are having a lot of difficulties at the minute, so thought i would just see what score i got, i take it the higher the score the more aspergers you are, is that right, my score box came up with...you could do better 1 point!!!!! So whats that make me??? Michelle Going to let hubby do it later, when he comes down from his discussion with stepson, who has hit the roof tonight!!!

Whats the supermarket please, bet they dont have any left at that price!!! Michelle

Thanks for that simon, i just checked my form, and rang them, somehow, dont know why but they had put it down as me getting the DLA, not my son, so he is going to get it sorted and send out a new award letter. Thought it seemed strange. Thanks again Michelle

I havnt had SS involved with my aspergers stepson, but i understand were you are coming from, we had a visit this week due to my oldest daughter having some trouble with her friends dad and we reported him to the police, so now the SS are involved, obviously we were a little shocked as our 14 year old hadnt done anything wrong, this man is 36, and was charged with grooming a minor, but all went ok, she is only assigned to us for support, ther mans daughter also has one assigned to her for protection, and is going to be sent back to her mum IF she is able to look after her, so try not to worry, i think they just have this bad reputation!!! Hope all goes well Michelle

I did get �170 a week child tax credits (5 kids, step family and hubby works part time), we have now been awarded DLA middle rate, no mobility, and also carers allowance, they are now paying me �163, does this seem about right as i know the CA is taxable, but also know you get a premium for DLA, not sure how much though, we still have to wait to hear from housing benefit as we did get about �30 a week with that, but its not been sorted yet. Michelle

Not had chance to get on for a while, boy my head is spinning tonight, had 3 solid nights of hyperness with Chris, he is SO loud, even speaking to us he would think we were a million miles away LOL, its so difficult because his idea of playing with his 3 year old brother is throwing himself all over the floor, screaming and shouting, pulling little one about, and then doing things to annoy him and he wont listen when asked to calm it down a little...i am just playing... is all we get ahhh ignore me i am just shattered!!! Michelle

I feel for you, my 14 year old daughter had hers done when she was 7, but she didnt cope well, and wouldnt eat, so had longer in hospital, a little 3 year old had hers done, and was brilliant, my daughter also had all 3 done, but also had grommits the first time when 5. She had her ears pinned back in january, that was really awful for me, she cope brilliantly, my other daughter and son have also had generals. Hopefully you will both be fine, and kids get over things very quickly!!! Michelle

I had them for a week, but refused to let it get me down and stopped taking them, husband has been on them for 2 years, came off for a few months, but has had to go back on them, its his son, my stepson who has aspergers, he lives with us fulltime. Michelle

Chris 12 wants to be a pro fisherman....or anything his dad happens to mention, usually he doesnt think for himself, ie, if his dads say oh i wanted to be an electrician, then thats what he says, and dad wanted to be a plumber, so at the time of mentioning that thats what he wanted to do, but the pro fisherman has come from himself, as he really likes fishing, and watches the programs on sky. As long as he is happy we dont mond to much. Michelle

I havnt had time to read others replies, but we found till this year, Chris is 12 he wouldnt play out in the garden, let alone anywere else!!! Now he does go out, but his friend lives a stones throw away, they often walk to a school sports field nearby, but theres always trouble when he returns, ie, things always happen to him, someone supposedly spat at him outside our house, his dad went out, but they had gone to far by the time he got there, a 5 year old boy just round the corner happened to come up to him, and punch him in the face, for nothing, my other son (9) goes with them as well but things dont happen to him, and noone seems to be able to give a proper recall of what happened, ie if Chris provoked it ect, so his dad has started to make him stay in the garden or outside the house. Its difficult as we as parents can see little ways that he might antagonise other kids, like he often shouts from the car window when i pick him up from school, then doesnt understand why the child he shouted at has a go at him the next day!!! So usually its much harder work letting him out than when he wouldnt go out. Michelle

We have been fighting since my stepson was 61/2, he is 12 now, and still no diagnosis, he was diagnosed ADHD, but we know its not that, later found out the pead wasnt even sure he had it either, but still put him on ritalin, then concerta, it was us who took him off it and tried to get other answers, came to the aspergers diagnosis ourselves, but astill fighting for an official diagnosis. Ed physch and school senco also say aspergers. Michelle

I will be the carer i dont work, i was wondering about whether the offset on housing benefits will change a lot, i know you get extra premium of dla on hous ben, but i dont want to have to claim for it if its only a pound or 2, the forms just arnt worth all the effort, so if its going to drop because of the carers, then i wouldnt bother claiming that, and keep things simple as they are now!!!! If things can ever be simple LOL Michelle

Will it be worth me bothering with the carers allowance, as my hubby only works part time, so its topped up with tax credits, and we get a little housing and council tax benefit, so i guess its swings and roundabouts were thats concerned, i dont want to complicate matters were the applications are concerned you know, dont want different little amounts coming in from different places, also what is the extra amount on the tax credits that we will get??? Michelle

Hi, its not about aspergers or anything to do with autism......its all about and for ME!!!!! Had some surgery already, having a tummy tuck in nov, its about not liking things about yourself, should be aired in january, tiring, but will be worth it Michelle PS had a stylist here today, he was a scream, very gay!!!!

Well hubby had to go alone today to th appeal as i had the film crew here for the TV pogramme i am going to be on, he said he had to answer loads of questions, he thought he would be turned down, but we got middle rate care no mobility, but we dont claim that he has problems for that, he had a welfare rights officer with him, and there was a chap from the DLA dept there, infact the chap from welfare rights told hubby that the DLA man said he hoped we would win while the panel went to make their minds up!!! So we will have it backdated from april and it runs till april 07, and will hopefully get a letter from carers allowance as that was applied for a couple of months back. Next fight on our hands is to get a diagnosis for him!!!! Michelle

W had our appeal today, got middle rate care, but no mobility, but we never put anything to indicate he needed mobility as he is fine walking ect!!!! So we are pleased with the outcome, back dated from april 05 to april 07. Michelle

School saw a different side to my stepson this week, i have been having some ops for the TV program i am going to be on, and whilst at school stepson decided to tell his friend to tell my daughter that there was something wrong with me and he was going to meet a man at the school gates who he didnt know. So she was scared and rang me from her mobile, then told her older sister who also rang me, i reassured them i was ok and for the oldest not to get involved as i spoke to stepson and told him we would discuss what he had done later when he got home with his dad. The next thing i do is get a call from one of the teachers saying she had my oldest and Chris, he was hysterical as she had told him off, and he was petrified of coming home incase he got a telling off and punishment from his dad, by which time the teacher had started asking why he was terrified and if dad had hit him, he obviously replied NO and that he would be banned from the games (xbox ps2 ect). So when i told his dad he fluipped rang school asking why they had been asking if he was hitting his child, i reassured him that this was natural given the apparent state of chris and what he was saying. the teacher rang back but hubby was out, she explained that she didnt think this was the case and she actuallly saw a similarity to an autistic boy she has in her class, she said as soon as i said aspergers it all clicked, then another teacher came along and said there had never been any evidence of this in him, by which time she told her straight that she had infact seen it, and so had the senco teacher that she sent Chris to, this is the said teacher who filled out our DLA form saying there was nothing wrong with him. Anyhow we are quite glad that he had his outburst ins school and they saw what we see, the fact that the teacher asked kloads of questions and explained, but chris still went back to the beginning asking questions and saying the old 'but what if', and other stuff, although we dont want things happening at school we are glad they have now seen a different chris, one were he had no thought to telling his sister that her mum was ill and worrying her, then he realsied what he had done, and was only concerned with the fact that he would be banned off his games for doing so ect ect. We have DLA appeal on the 30th, so hoping that all goes ok for us, we need some help from somewere, its about time, after 6 years of fighting the system!!!! Michelle

Well i recall my stepson saying similar things about how he was going to get a wife/girlfriend when about 7-8, he is still at it now, constantly worrying he wont get a girlfriend, he is 12 now...we keep telling him he will when the time is right, but he always asks how he can go about it LOL. Michelle

Hi, we are having a chap go with hubby from welfare rights, so i am hoping all goes well this time!!!!! Michelle

Yes, same here, but its usually sweatshirts that get lost, or trainers from PE!!!! Michelle

Any hospital programmes, reality or not. LOST, really into this and am tempted to buy the whole series on ebay, sad i know some of the soaps, but dont watch them religiously every night as i dont get time, NEVER watch tv in the daytime as the kids hog it!!!! Michelle