Jadzia Dax

I don't mind her being in her bedroom as it is as safe as we can make it but my biggest issue is that she runs off after every meal & every essential activity outside the bedrrom has become a battle ground (bathing for example). It has been a horrendous weekend (Hubbie & I are now stressed at each other & he needs to do some work today from home!) My daughter's special school are very supportive (SALT, Behaviour specialist ect advising) but they wonder if as she is 10yrs old if her behaviour is hormone driven. She is also becoming more challenging at school and in general avtivities that she loved she is now difficult with. The chanting is a bit like a reception age child going over their day at school so it is sometimes nice to listen and find out what she does at school (other than telling me when asked what she has had for dinner she rarely tells me things). The issue here, for me is the loudness, frequency and repetition but it would be maybe more tolerable if not coupled with the bedroom issue. Thanks for giving me some feedback, its nice to let off steam sometimes to others who know what it's like.

Thanks,Trekster. Do you know what areas (roughly) are North Somerset rather than Bath, my geography is not good and as yet I don't really know this part of the UK at all. Living in this part of the UK would mean we were closer to family in North Devon and South Wales and may be able to see them more often as they have all now moved out of Kent for various reasons.

Has anyone else had a problem with their child not wanting to leave their bedroom? How did you solve it? My daughter will come out for a brief time to eat ect but then has to go straight back again. Food is eaten at break neck speed, bathroom is used only if she is reassured she'll be able to go back to Bedroom afterwards but she wants the door open so that she can see her room. It is driving us MAD! We are using visual timetables with her which now include a bedroom time but she is not co operating, we have today removed her dolls so that she has the incentive to work along her timetable to get to bedroom time and have her dolls back-no luck she did token craft activity then returned to her room and won't be coaxed out! Whilst in her bedroom she chants/shouts random phrases over and over (during the night as well as daytime!) Any ideas anyone please?

Thank you, are either of you close to Bath/Bristol? I've found some information on the Fosse Way special school which seems to specialise in ASD and provide support to all the local schools including I've been told a youth club. There is also a boys Secondary School called Beechen Cliff School which sounds ( looked online & I also spoke to SEN manager) similar to my sons Grammar School. ASD provision/support is poor/patchy in Kent so maybe I'm going to find the same thing in other Counties?

Hi sorry,haven't posted for some time things have been a bit hectic for various reasons but we are now thinking of moving. Does anyone live in Bath/Somerset? What are ASD services and support like? I'm thinking about my 10yrs old Daughter and her long term options (currently at Severe,complex and profound Special school). I've seen some information on an NAS/Local Authority supported living scheme in Bath does anyone have any experience of this? My son is 12 and at Grammar School but has no friends, he doesn't really 'fit into' the local community and is too high functioning for many of the 'special' activities in the area. I'm hoping he will go to University so does anyone have experience of support for youing people with Aspergers living in the area (both at University and in the local community)? Any advice/suggestions would be great thanks Jadzia

I'm in the process of looking for a 'new' special school for my daughter because her existing one has changed from a school for children with, moderate learning difficulties with classes for ASD pupils to, a school for behaviour and learning problems and autistic tendencies. My daughter is now socially isolated and witnessing fighting in the playground and hearing bad language! In my local area there is curently no Primary Provision for children like my daughter so as far as the LEA are concerned she either stays where she is or tries mainstream (the lattter is not an option because her language skills are so poor and mainstream isn't being properly resourced). I'm having to look at private options in the hopes that the LEA will pay but this is not going to be easy! This thread has therefore made for interesting reading.

Hi Originally South London but now in Kent.

Hi My daughter can be very aggressive and I can end up with large bruises (I do get slightly anemic once a month which doesn't help but once GP found this I now take a supplement which helps). I was advised by her school to show her any injuries and use her no kick/pinch/bite (which ever applies) pecs card and we then progressed to getting her to 'say' sorry and stroke the injuried limb once she was calm. Not knowing the age or ability of your child it is difficult to advise on if it was too late to show your child the bruise later in the day but with my daughter I would remind her about the incident and show her what she did. It is easy to become a 'punch bag' for our children and to feel that because they 'can't help it' that we shouldn't make a fuss but they still need to learn that this sort of response is unacceptable. Hope this helps Jadzia

Quick word of warning when using velcro, I used the very heavy duty type (for hanging tools ect according to the ads) for fixing up net curtains (a friend had sewn velcro on one side for me). My daughter managed to partially remove it from the wall and wrap it around her head ! I came into her bedroom one morning to find her hanging from the window sill and had to cut it out of her hair! (Funny from a visual point of view now but scary at the time).

I haven't heard of this term either and I don't feel it is helpful for this TA to use jargon. Are they trying to impress with their 'knowledge', I've encountered a few like this in the past. Perhaps you could ask where the TA got this term from. If this term had been used by a qualified health professional I'd give it more credence but as it is being used by someone employed to support your child I'd take it with a pinch of salt. As someone here also suggested extra training in ASD would also be helpful for this TA.

teeth

Are you are Stargate SG1 fan by any chance? (nice to meet another sci-fi fan)

Hi Has every one seen this document? It proposes that all children with asd going to start school will either go into mainstream or a unit attached to a designated main stream school and does not allow for the fact that this may not be appropriate (so no special school provision)! I'm not computer literate enough to include a copy or link on this post but a copy of the document for your KCC area can be obtained from the Kent Autistic Trust contact details can be found at www.kentautistic.com. They will also be able to provide details of your nearest consultation meeting which are starting very soon. Jadzia

Hi Thanks for your comments everyone. I hope you don't mind but I've added those of you who have daughters to my friends list so that I've have to you to hand for questions later on. (I'm dreading my daughter reaching puberty and I'd be very grateful for any advice that you can give me) I don't know if any Dad's post on this site but may be my questions around this topic might be better as direct messages.

I'm new to this forum so I don't know your previous details but I did have an educational psycologist question my son's diagnosis once (Her Boss was part of the team who made the diagnosis!) I used the book by Lorna Wing 'The Autistic Spectrum' and showed her which groups my son fitted into (there are various sub sections, the aloof group,passive group, active but odd ect). I also highlighted illustrations throughout the book that demonstrated that my son had asd. I've found it is always useful to take information with you to meetings because it shows you've done some research and probably know what your talking about. Good Luck