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A question I often ask is 'Why am I so lucky?' Now I'm not trying to sound like arrogant person who looks down on those who've had a hard life (although I prefer not to hear such stories from people as it overload me with being upset) but all things considered compared to the stories that I have heard on this and other sites plus in real life and in books (about Autism) on the whole I've had an easy life. Consider this... When I was nine years old I was diagnosed with HFA, and then later AS after the condition became better known among professionals and teachers. This was I may add due to my (back then) violent outbursts towards other kids in school when I felt that they had cheesed me off or had broken the school rules, like some kind of superhero would with criminals. When I was ten I went to an Autistic school which at the time I hated due to the abundance of LFA kids there, however I do have fund memories of the trips my class (I was in when became the AS class) would make to museums, stately homes, the library, the cafes, nature trails and best of all Summer Camp. All things considered I was a lot better off there in my early teenage years than in a so called 'normal' school as I (and others) weren't picked on and would learn in a relatively stress free environment. Later I went to a school for kids who had been in hospital for a long time, were in Special Ed or quite a few other reason that I can't think of right now. There we did mainstream school work and exams. However the school was quite small so we only attended half of the day, and so many of us would (with the consent of our parents) study subjects of interest rather than the whole curriculum, all spread out over the week, while some of the rest was done as part of our homework. Later when I was sixteen I left home (of my own choice) and went to a group home down south for a number of years, before moving on. I would have left earlier if I could but the sad truth was that was all lacked the kind of opportunities such as supported living and outreach support (rather than care) at that time, so I told myself that it was 'better than nothing'. When I left I went to a rest-bite unit for a while until they could find somewhere more permanent, which they did. As it stands I was an only child, come from a loving home where my dad earned quite a large wage before retiring and you could say I had the perfect childhood. I have known other people who's home situations were very much the same (ie loving family and lots of money) but they had been sent to mainstream schools (in some cases even after being diagnosed) where they got bullied or when they became adults had no support, barring family. I also read that it is a lot harder to get diagnosed with ASD or AS when you are an adult (or sometimes with children) nowadays, partly I think this is due to some people cheating the benefit system and so they had to make it harder for them to get 'free money' (which is what benefits are when you boil it down) or other kinds of special treatment. So why am I so lucky, while others in the exact same situation as me aren't .
How much of you is ASD and of you much of is you upbringing, possible internationalization or your own personality? Consider this... I knew a man in his mid thirties has got AS likes to play video games on his X-Box One. All is well and good, however he spends all day in his room, doesn't tidy up after himself, hardly speaks to anyone and tries to act like a 'badass' (from one of his fave games) which sadly makes him look like a dickhead, if you pardon me saying so. He also hardly washes, sees women as sex objects (as in living sex dolls, not just people who only exist to have sex with) fancy's Japanese school girls (not just the henti mind, I'm talking about photos and videos of real people) At present (to the best of my knowledge) he still attends a day center (I've long since stopped attending) for those who are lower functioning, which he started going to when he was 17 or 18. Please bear in mind that this is someone with more or less the same kind of AS as Bill Gates, attending a day center (granted he could have been forced to go by his mum, but he could get himself a flat with the benefits he's on) Also I might add that he spends all day sitting at his X-Box in a little room (which was where the phones used to be kept) where he is separate from everyone else and has taken it over as his own 'work space'. If he is traveling in a car with someone he will insist on the staff flipping a coin to see who goes in the front seat. Also he was VERY spoiled as a boy as his mum saw him as 'special' due to his conditions (he has epilepsy as well as AS) and be very controlling towards his 'friends'. The main question I am asking is this... How much of Autism is pure Autism and how much of it due to the differences in treatment which sometimes happen when a kid get diagnosed? Or indeed how much of it is due to spending much of your adult life 'cut off' from the outside world (be it in care homes and day centres) I'll put out some more info about Phil (that is his name) when I get the time.
Hi, my Son is about to leave his school this July. The social worker has put out my Sons needs and a few people have come back saying they can meet his needs (called SEWIC). I've seen some of the providers but the one I want is pricy but will meet his needs. I'm still waiting and am very anxious, my Son is anxious as he doesn't know what happens after school comes to an end. Anyone going through this or any feedback?