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Hello everyone, this is my first post and not sure what to say really or where to start. I am a female in my mid 50s, diagnosed with OCD four years ago but having watched that Chris Packham programme last week, and done some Googling since, I am pretty certain that I am an aspie. So much of what he said rang a bell, a loud one, with me. I was pronounced as "gifted" as a child, had a reading age of 12+ at age 7 and ever since I can remember, have had seriously heavy duty obsessions. I can remember basically living in my own world (my own never ending adventures in a serialised tv programme which I refused to miss - ever). My parents used to organise outings etc and stuff for us to do, but told me on many occasions that as I never showed any emotion, they could never tell if I was having a good time. I was pretty well behaved at school although, especially when younger, played up a bit if I thought rules were childish or stupid, hence my parents weren't strangers to the head's office. My obsessions have varied over the years and have included rock stars and actors, for whom I have gone to great lengths to follow their careers (and in one case, actually get to know as I was seeing him so often) but, without exception, each one has taken centre stage in my life and, when not required to think about work etc, occupied the remainder of my thoughts and my number one priority. I have always felt a bit "different", a bit out of step with the world, but have managed to make and keep friends and get married to a very understanding man who just accepts my idiosyncrasies. I find comfort in eating the same things all the time, learn routes and stick to them when driving (even when it would make more sense to go another way) and find animals much easier company than humans. I struggle to maintain eye contact when talking to people, hate small talk (which I find boring and pointless), like being on my own a lot, in fact I need to be on my own a lot. I get lost in hotels and restaurants a lot, feel sometimes that my public interactions in shops and what not are, well, not the norm (whatever that is) as I tend to make off the wall comments that others find, well, odd. I also talk to myself, out loud, and do the rehearse thing if I need to tell someone news. I am not sure what all the above adds up to, but if I am aspie then many things make more sense than they did and I find comfort in the fact that this may explain why I am like I am and help me in the future to worry less about being who I am and trying to fit in. So, there you are, that's it for now.
Hello everyone, My name is Tiffany Victoria Horan, I'm twenty five years old. I'm British and although I was born in the UK, I grew up in the United Arab Emirates. I now live in Warsaw, Poland and I have also lived in Taiwan. Due to the nature of my hectic (third culture kid) upbringing (different countries, different schools, etc.) it took a very long time for anyone, including myself, to understand what was 'wrong' with me. I began seeing a psychiatrist and psychologist here in Warsaw after a number of 'incidents' occurred at university and work. Everything was so clear to them that after a couple of months I was diagnosed with Asperger Syndrome. It was twenty five years worth of explanations in a single sentence. However, receiving a diagnosis later on can be difficult as there may already be significant damage caused, for example, spending my entire life in a state of confusion and frustration caused me to develop PNES. I take medication for anxiety. I'm interested in art, philosophy and technology.
Hi all, I’m new to this forum and joined because I wanted to communicate with - and possibly meet - women of a similar age to me (mid fifties) with Aspergers. I have a couple of male friends, who I can confide in, but no female friends, just a few colleagues and acquaintances. It would really be something for me to have a female friend I could trust and be myself with – something I think most women take for granted. I suppose I’m a typical Aspie: I love science, sci-fi and animals, and have, I've been told, ‘the social skills of a wombat’ (although that’s probably unfair to wombats). I’m in my mid-50s and pass as more or less normal, albeit as a shy, anxious type, but I am SO tired of trying to fit in, and beating myself up every time I commit a social faux-pas. Gxx
Hi there. I am hoping someone can help with a query about my daughter. Sorry this is so long, but wanted to give a full picture. Instigated by the school at age 6 we went for an ADHD assessment. They said she didn’t have it and recommended an ASC assessment - we never received an appointment. Aged 10 her Year 6 primary teacher said she thought she had "inattentive ADHD" and recommended we went for assessment. After seeing a paediatrician, information from the school and a Connors questionnaire we were referred to CAMHS. CAMHS do a consultation clinic where they first see if you are right for assessment. Our first appointment was four months following the referral in the consultation clinic. Three appointments later the CAMHS practitioner referred us for an assessment. That was in April and the actual assessment was 6 months later in October 2012. Followed by some psychometric tests. I have only just been given the feedback, another five months later. The report they sent me even had the wrong name in four sections! The psychometric tests were not included in the report, that was separate, and they had made their decision based on the assessment day in October. They say that she does not warrant a diagnosis. That’s it, goodbye. No plan of action, no further help, nothing. The assessment only had a clinical psychologist and speech and language therapist in the room with my child. We were in a separate room with another psychologist answering the questions they ask. They did not carry out a school observation or contact high school for information. No OT or specific SLT report was carried out. They said she does not have a diagnosis as she did well in the individual assessment. Although the primary school report had backed up everything I said, and said even more, they said that is discounted as she was okay on the individual assessment. I did point out that obviously with 1:1 attention in a calm, quiet room she would do better, but life isn't lived like that! From everything I have read I think she has aspergers. She fits the profile. I have also read that the diagnostic criteria they use is often too much based on a boys profile, which is different from a girls. They used ICD10 for this assessment. I have another child who is attaining his school levels, has friends, doesn’t display the same behaviours etc, so I would say it wasn’t my parenting skills that were the issue. Does this sound correct to you in your experience of getting assessed? Many thanks for any thoughts/ideas on this, or your experiences/opinion. I am thinking that I should ask for reassessment? Do any of you think she does sound to have problems in the ASC category or am I totally thinking incorrectly? My daughter presents with the following problems (these are just some of them): * Special interest in dogs and everything dog related. Constantly asks for me to buy a dog - but will not touch, stroke, even hold the lead for a real dog. * Special interest in health and safety - creates posters and talks for the family. Asked for a meeting to go over a fire escape plan she had created. * Had friends in primary school, mostly from the year below. Entered high school and has made no friends. Sits alone at lunch and breaks. Previous friends no longer seem interested in visiting. * Problems with self care (only just started brushing her own hair, can't put in a bobble), has to be forced to wash and brush teeth. * Constipation problems - doesn’t seem to have time or forgets to go to toilet, or take medication unless I prompt her * Forgets homework, forgets what she is telling you sometimes half way through a conversation * Attended activity for three years once a week and didn’t know the name of any children there * No eye contact with anyone, even parents, or even on computer on Skype to grandparents will look down * Attention problems - described by teacher as in a world of her own * Still wants to play with babyish toys and to run and skip around * Learning difficulties - despite average IQ has been found to be working four years behind peers in reading and spelling. Also behind in maths. Only topic that excels in is ICT. * Never bothers calling for friends. Likes it if people call for her but won't think to make first contact, or will ask if she can and then forget. * Immature * Fear of being "a teenager" since she was about 9. Still scared to grow up. * Believes in the tooth fairy, even though I told her it wasn’t real (on entering high school). Believes in Santa and the Easter bunny. * Will fix a funny smile on her face sometimes. Rarely will say anything is wrong with her. * Doesn’t understand sarcasm. Quite often has to have saying explained to her. * No interest in fashion, make up, hair. Will throw on any clothes, ones that don’t match, hair unbrushed, teeth unbrushed and want to go out. * Eats with fingers. Will shell each garden pea on plate and split in two before eating. Makes food into parcels. Primary school reported that: *Over imaginative and 'in her own little world', quite frequently talking to herself and making other strange noises. * In assemblies noted some bizarre behaviours for a child of her age * Inattentiveness is the biggest problem, followed by an immaturity not matched by her peers * Likes to share drawings at inappropriate times * Very excitable about things she has done but cannot talk about things learned in lessons * Fiddling in class, not listening or looking up * Gets excitable and jumps up and down waving arms which is noticeable * Starts a conversation and then peters off becoming inaudible unless prompted * Playground friends are few, quite frequently on her own playing out a situation * Cuts in on conversations and talks aloud in class/assembly * Throwing and catching a ball uncoordinated * Writing gets larger with less conversation * Imaginative play interferes with listening and learning * Very worried at a change in routine, e.g. new class * Struggles even on 1:1 basis * Often out of seat and moving around classroom * Always has hold of a comfort object * Tendency to become "fixated" on certain objects resulting in her seeming in a "dream world" * Stroking hair, staring at objects because "they're so beautiful" and stroking a feather for extended periods of time