hev Report post Posted February 26, 2007 i was up mums today and nick phoned me to say social services had called to offer us more respite!!!i hadent called them,apparently the school phoned them since steve was suspended,nick didnt get the persons name so i havent got a clue who to call,maybe they are taking it seriously now,i was just shocked they called us without me chasing them Quote Share this post Link to post Share on other sites
fairynormal Report post Posted February 26, 2007 WOW!! That is unheard of lol!! It makes such a change to hear them actually doing something positive. I hope it has good results for you! Quote Share this post Link to post Share on other sites
Bagpuss Report post Posted February 26, 2007 Yay, really chuffed for you Hev Will it be the same respite, which Steve is enjoying so much? Hope so! Take care x Quote Share this post Link to post Share on other sites
Flora Report post Posted February 26, 2007 Crumbs... you've scared them Hev Hope you get some decent help from that call.... Flo' X Quote Share this post Link to post Share on other sites
Kathryn Report post Posted February 26, 2007 MORE respite?? Amazing! K x Quote Share this post Link to post Share on other sites
Deedee Report post Posted February 27, 2007 Hey Hev have you picked yourself up off the floor yet??You got ANOTHER phonecall.... You must have really ruffled some feathers but good for you I was so pleased to read about Steves respite working so well and I hope they are getting their butts in gear for you at last hun well done for persevering!!!!! Quote Share this post Link to post Share on other sites
smiley Report post Posted February 27, 2007 My first response to your title was 'Whyyyyyy.....what have you done...?' Excellent - really pleased for you mate - chuck some my way - apparently aspergers, dyspraxia, ADD, etc...etc.... don't count as disabilities in my area! Quote Share this post Link to post Share on other sites
Tylers-mum Report post Posted February 27, 2007 Yayy, weldone Hev, glad they are finally coming through for you. Quote Share this post Link to post Share on other sites
butterfingersbimbo Report post Posted February 27, 2007 omg!!! <'> Quote Share this post Link to post Share on other sites
bikergal Report post Posted February 27, 2007 Unbelievable but great!! Quote Share this post Link to post Share on other sites
hev Report post Posted February 27, 2007 well they phoned me back again today theyve offered me another 3 hours a week respite for steve on a sunday how good is that,i got a letter last week to say there was staff shortages so i def wasent expecting that,im very pkeased,theres light at the end of my tunnel after all!! thanks again for helping me through it <'> <'> Quote Share this post Link to post Share on other sites
millyz Report post Posted February 27, 2007 Blimey - that's unheard of!!!! Well done you!!! Now you've got their attention, get as much as you can from them xx Smiley - In our area cerebral palsy, epilepsy, ADHD, heart defects and social/emotional problems don't fit the criteria for Childrens Disability either!! Quote Share this post Link to post Share on other sites
dooday24 Report post Posted February 27, 2007 i bet u r well chuffed hev bet still in shock too. well done love donnaxxx Quote Share this post Link to post Share on other sites
dolly Report post Posted February 27, 2007 (edited) wow someone at ss know how to call out unheard of in my area ! they are usually on annual leave when ever i ring well done Edited February 27, 2007 by dolly Quote Share this post Link to post Share on other sites
fairynormal Report post Posted February 27, 2007 Excellent - really pleased for you mate - chuck some my way - apparently aspergers, dyspraxia, ADD, etc...etc.... don't count as disabilities in my area! It's the same here but things may change! I have contacted my local MP who is on the case. She says she is prepared to go as far as challenging this in parliament as she thinks it is so wrong. She has the executive director of childrens services on the case and he is persoannly investigating our case as we don't fitthe criteria either. I would urge every family in the same position as we are to contact their MP and ask them to look into it. The more people around the country that do it, the more chance there is of change to the system. Quote Share this post Link to post Share on other sites
hev Report post Posted February 28, 2007 i agree fairynormal,i contacted mp and got result,it seems if we mere parents phone for help we are ignored,i think they panic when an mps on the case Quote Share this post Link to post Share on other sites
Deedee Report post Posted February 28, 2007 Just shows how it varies in different areas down here my DS3 with asd etc is on the kids disability register but DS2 scoliosis in a body brace 23 hrs a day,muscle/lig probs,leg troubles and now suspected spina bifida occulta (again..long story..) is not apparently disabled enough to be on there??? Both on low rate mob but DS2 has a blue badge from the council and school transport due to obvious mob probs.. Quote Share this post Link to post Share on other sites
