jomica Report post Posted April 14, 2008 (edited) DS has just turned 11. He has HFA, a non-verbal learning disability and some fine motor problems being addressed by OT. He's had DLA since he turned five at least, which has been reviewed every couple of years. He usually gets middle rate for care and lower for mobility. He was reviewed again for DLA in March and has been assessed as receiving the same rates. This time he's going to get them "indefinitely". I was surprised (though not at all upset!) by it being given on an indefinite basis. Is this usual? Does it just mean that they've finally seen the light and realised that he will always have autism! Edited April 14, 2008 by jomica Quote Share this post Link to post Share on other sites
purplehaze Report post Posted April 14, 2008 I claim DLA for my 14 yr old ASD son and will get it until he is 16 when he can claim it himself or I can claim it again on his behalf. So yes it is fairly normal once they realise your child's problems are not going away. Quote Share this post Link to post Share on other sites
jomica Report post Posted April 14, 2008 Thanks, I wondered if that might be the case. I won't miss filling in those horrible forms every couple of years. This year we did it online and, having got it almost complete, took a well-earned break for Christmas. When we came back to review, edit and press "send" in the new year it had automatically archived itself and we could no longer access it. I phoned up the DLA techies who were unable to help, other than to say I'd just have to start again. I wonder if they know how soul destroying that is?!! Quote Share this post Link to post Share on other sites
justamum Report post Posted April 14, 2008 you may be sent a reivew every so often just to check that nothing has changed for the worse. Quote Share this post Link to post Share on other sites
smiley Report post Posted April 14, 2008 From what i gather - it's not the norm. But my son is nine now, and was awarded DLA until he's 16 last year. Quote Share this post Link to post Share on other sites
jomica Report post Posted April 17, 2008 From what i gather - it's not the norm. But my son is nine now, and was awarded DLA until he's 16 last year. Hi Smiley Did it say "16" on the letter? Mine just says "indefinitely", which I would assume to mean longer than that? Has anyone else had an "indefinite" ruling on DLA? Thanks, Quote Share this post Link to post Share on other sites
florrie Report post Posted April 17, 2008 I just renewed my son's and asked for it indefinitly and they awarded it. I think that means you don't have to renew it. This is such a relief now. I didn't even have a specialist or a GP on our side either, as most professionals do not think it is a disability. He does have considerable difficulties though but I reckon if he had specific intervention appropriate for him he would not have needed it. Quote Share this post Link to post Share on other sites
ellisisamazing Report post Posted April 17, 2008 My son is five and on renewal of DLA last year, it was reissued till July 2018, when he reaches 16 years! Quote Share this post Link to post Share on other sites
jomica Report post Posted April 17, 2008 Thanks - perhaps they're getting wise to the fact that they're wasting everyone's time by insisting on renewing DLA every couple of years. We can only hope!! Quote Share this post Link to post Share on other sites
