HELP!!

[SuzyQ]

Hiya guys.

 

Well crunch time has come I have a propsed statement saying DD should stay in mainstream with 20 hours a week...yes a whole 20 hours support!!!!

This seems to be against what CAMHS advise and the ed phsyc person on and seemed against what the school wanted.....I have appealed as the journey....(they didn't think that would be too difficult for a child who cant leave the house on her own....a walk to train station a train journey with one change and then a bus journey!!!! )seemed a little difficult if she had to stay in mainstream!!!

Well the school have said they can cope....they can't....they can.... and now well now they can't and in fact they dont want her back at all.

She is at risk of harming herself and we dont know what mental illness she has as I think camhs are looking into that, she has had the AS diagnosis earlier this year!!

 

So now I have jekyl and hyde who is not at school who is a suicide/ self harm risk and harm to others if the wrong personality is out, sat at home getting no education aged 14!! apparently County panel wont be hearing her case next week so will be a few weeks before they do!!! Camhs have suggested that maybe an in patient assesment is needed the nearest safe place being some 50 miles away...I think this is our only course of action, but it seems there is no support or help, they are telling me these things then sending us home!! god I am ranting and probably none of this makes sense, I just dont know what to do there seems to be no one listening to me!!!

 

Sorry guys rant over!!

[pumpkinpie]

Well they do sound as if they are contradicting themselves dont they - which is good for you in A STRANGE WAY.

Have you spoken to ipsea?What kind of school do you think she needs?

I havent heard f the assessment they are suggesting and it sounds strange to me but then most things do......

[JsMum]

I would concentrate on going to the tribunal panel and collect as much evidence as possible, like Pumpkinpie has asked, do you have a school in mind, her behaviour may be a result because she is totally in the wrong enviroement, given the right support(with what you have said it highly likely she will require full time, even in a spcecial school) the right enviroement and resources to support both AS and mental illnesses could help her most worrying behaviour to subside, when Jay was in mainstream, he developed more serious mental health problems, Its the double edge sord when support isnt adequate and the child begins to breakdown.

 

I really do recommend these services who supported me in person.

 

CONTACT A FAMILY

National Autistic Society Educational Helpline referred us to a telephone contact person who helped us throw the proces.

ACE

NETWORK 81

IPSEA, BRILLIANT KNOWLEDGE, A LIFE SAVER.

 

 

I wonder if there tactics of this other meeting is to try and delay you appealing, remember even if you lodge the appeal keep it running until you have a final statement with amendments to part 2 as you want all her conditions/special needs registered, part 3 with what support and provisions she is to recieve quantified, and specified, and part 4 with the choice of school you want, even if its independant, specialist, residential/day school, if it meets your dauters needs and they can offer a placement then you could have in a specialist school/college.

 

I dont know how the process will be effected if your daughter was admitted to cahms, persumly it would be voluntarly, or would she be sectioned.

 

I personally would keep the appeal running what ever, but it does sound like you need more proffessional support like IPSEA.

 

Im sure she should be recieving more support than 20hrs, is she attending less hours than her peers? what if she harmed herself/others while not under her provision of 20 hrs.

 

J now has a statment and a placement that meets his needs, its great, but I feel its 6 yrs late, this should of happened when he was taking his first step into mainstream primary setting, instead the school he started in 2002 said they could cope, but guess what, they couldnt, they excluded J many times, denied him rights, bullied him to conform, and humiliated and caused additional disorders simply because he wasnt getting the support he needed, he ended up in an gord orful cahms unit, assessed, diagnosed and straight back into the sharks pool, he was turned down for assessment three times, until like your daughter, he was a risk to himself and others, his behaviour was also effecting other childrens education too.

 

Its criminal what is happening to children of todays educated population who have SENs, Its disgusting the way they treat children and parents.

 

Fight, go all the way, dont withdraw from the appeal until you have what you know your daughter needs in her statement.

 

Anytime you need any help, come back and let us know how things are going.

 

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JsMum

 

Edited November 6, 2008 by JsMum

[SuzyQ]

Hi.

thanks for advice, I really am tearing my hair out, Camhs have suggested a school which I have looked up on the internet her current school think that it wouldn't suit and also said it is private so the education authority won't fund it!

 

J's mum you've helped so much, it is a comfort to know I am not alone.

I will keep you posted.

[Clare63]

Hi.

thanks for advice, I really am tearing my hair out, Camhs have suggested a school which I have looked up on the internet her current school think that it wouldn't suit and also said it is private so the education authority won't fund it!

 

J's mum you've helped so much, it is a comfort to know I am not alone.

I will keep you posted.

 

 

Hi Suzy,

 

So sorry to hear all, it makes my blood boil to hear another case of a child's needs not be meet and lack of support for parents/carers.

 

We too in a simular position, my son has been out of school for the whole of Yr 8 and some of Yr 9. Sadly we have to fight long and hard for our kids, its just taken me a year and a month to get my son appropriate education, yes it is private and yes very expensive, but the authority final agreed.

 

Just wanted to wish you luck and encouarge you to keep going, the authority expects us to give in and that's what they want, so never, ever give up !

 

If there is anything I can do to help, swap expereinces etc, I am more than happy to do so. Please feel free to pm me.

 

Clare x x x

Edited November 6, 2008 by Clare63

[teachermum1]

The authority HAS to fund it if it's the only school that can meet her needs.

[Karen A]

Hi.

thanks for advice, I really am tearing my hair out, Camhs have suggested a school which I have looked up on the internet her current school think that it wouldn't suit and also said it is private so the education authority won't fund it!

 

J's mum you've helped so much, it is a comfort to know I am not alone.

I will keep you posted.

 

Hi Suzy.Several teenagers who have carers on the Forum have been placed in Specialist provision [often priory schools] where it has been shown that a 24hour curicullum is needed.It may be a fight but others have got the local authority to fund it.Iam not an expert on the inns and out of which departments fund what but I do know that it can be done via a Statement.If CAMHS are talking about in patient assessment out of area then it is worth perhaps taking a look at the school and seeing if CAMHS will support you in requesting the Local Authority to fund it.

I hope I do not worry you more by saying this....CAMHS would not be suggesting inpatient assessment 50 miles away without good reason.It is very expensive.

If she is considered by CAMHS to be a suicide /self-harm risk then appropriate support needs to be arranged and a longer term plan developed.Karen.

 

[Karen A]

Hi again.I am not an expert.However I think that as CAMHS inpatient provision is funded by the NHS it should not make any difference to the Statement appeal process because they are independent issues.Things might be more complicated if the inpatient assessment unit is private provision out of area that is being funded by CAMHS.....you would need to see what is being suggested in more detail.Karen.

[JsMum]

Ideally the costs could come from a variety of agency, all three if be, so health, Cahms, Social Care, Social Services and LEA for Education, but if its anything like our area soon as a child represents requiring costly provisions they run and bolt, leaving the child without anyones support,

 

My son has been involved with all three agencies and still is, but the chunk of the support will be coming from LEA, I also get a feeling that social services cant wait until he is out of thier hair, I wanted to bolt and run too, from social services until contact a family are informing me more of Jays right under social care, just because he is in a residential school doesnt mean he still doesnt require support, he still comes home weekends and holidays and if anything he may require it more so to keep the consistancy the school has in place when were at home, so were likely to still need Social care support sadly.

 

What Im saying is in todays world the services are jumping responsibility each one saying, oh its cahms, cahms say its LEA they should be meeting his needs, and social services well dont even get me started.

 

There is special schools that will do the CAMHS assessments too, Youngminds would be a good place to start, National Autistic Society have a database of provisions, many say assessment with in there services.

 

It would be much better if she could have her assessment in a provision and service provider that already has some knowledge of Aspergers Syndrome and HFA, that way she wont get inacurate diagnosis.

 

Where ever it is they will have to have some specialism in Autism/AS.

 

Funding is getting a joke, it certainly should be more evened out, and all agencies need to work for the child, instead of seeing who can foot the bill, blurting out oh you can CAMHS and running, her provisions may need to come from all different agencies but provided under one roof.

 

Sad thing thats expensive too.

 

JsMum

 

Edited November 7, 2008 by JsMum

[SuzyQ]

thanks guys,

We have an appointment on Wednesday for another assesment at CAMHS I think this one is to asses if she needs to be an in patient... as its a tier 4 CAMHS not tier 3 which we have been being seen at, not that this really means much to me!!! I have been told by the LEA that her case won't be heard by county panel for another week as we are now asking for specialist provision to be made, but I guess the important thing right now is to work out what going on in her head so we know what her needs are!!

So watch this space.... she is currently sitting and doing a painting by number picture she loves these, she is a very talented artist but has to copy or have it set out for her, my worry is she is 14 and in year 10 so has just started gsce's and a btec art diploma so time for her is of the essence. And of course how long can I work for if she is at home for the next week... I have no support and currently have no one to watch her tuesday, luckily I am off work Monday!!

[SuzyQ]

Hi All,

well what a week!!!

My DD has had some work home from school, she still doesn't know she won't being going back, we are slowly trying to get to that...she is a self harm/suicide risk and also a flight risk so can't just tell her as she is desperate to go to school and learn!! her older sister ( NT 16) thinks it's so unfair that she has to get up in the morning and go to school while her sister doesn't have to ...ha ha ha!!!

We had our assessment at CAMHS to see about an inpatient assesment that was wednesday and at the end of that my DD was offered a place for a two week assessment, so on Monday I have to take her along to go in for two weeks, admitedly the place looks great I wanted to stay there...ha ha ha But it is a worry as it is a strange place, strange people new rules...the one good thing is it is very regimented which she will like, but I am worried. I know in my heart it is what she needs we need to work out what her needs are why she is hearing voices and if she can get help to deal with it, but it still makes me sad and I am still worried.

All the time I have appealed the provisionary statement and I am now awaiting a date when County Panel will look at her case again!!!