thebuzzer Report post Posted February 11, 2009 Hi All Haven't been on here for ages, will make time to catch up on everyone's posts. Anyway, just looking for moral support as the LA have until Friday 13th (great date!) to let us know if they are going to issue a statement. I spoke to his caseworker last Friday, she found his file and told me all the reports were in (and so they should be the date they were due was 1/1/09) and that his case hadn't gone in front of the panel as they had a back log. There was a panel sitting this week and that she would make sure they heard his case. I kept calm and told her that they had 6 weeks to sort this out and while they may have a backlog my DS was on part time curriculum and has been since April 08 and that I wasn't happy. She promised to ring me this week with the answer before putting it in writing. So I am ringing tomorrow as I haven't heard anything. I am feeling quite sick about the whole thing, I just know they will turn us down first try as they really are complete (insert you own word of choice here) A friend of mine from the support group I attend has just been diagnosed with Post Traumatic Stress Disorder and panic attacks and depression due to the trauma of fighting our LA for 2 years to get her son who is Aspie/ADHD/OCD/Tourettes... etc and has spent �25k trying to get him the right placement. She kept going all the way and then they pulled out the day before the SENDIST hearing and it is 9 months later that her poor mind and body has had enough! It makes me soooo mad! I know we will end up going to SENDIST if we do get a statment as DS needs full time 1:1 and trying to get the high level of hours from our LA is going to be like So if anyone can offer words of encouragement, just to know I am not alone would be much appreciated! Thanks xx Quote Share this post Link to post Share on other sites
JsMum Report post Posted February 11, 2009 (edited) You have my words of encouragement, and total understanding as from a mum who also fought to get what thier son needed, and yes I worked myself also into the ground, I was totally exhausted and so drained fighting really does take it out of you but if you dont do it the price is even higher so there really is no other choice. You can do it is all I can say to you, some how, some way the strength is there, at times there seems no hope but it is there, its a flicker at times but you do get there in the end, My son was part time for a year and only managed 29 days in a whole year of school and that was even with a statement of full time one to one in the end the LEA agreed to the residential specialist school, even that has had its challenges, you think thats the end, but it isnt, you have to unravel all the locked down feelings and cope with seperation and start to look at your own life, one that was on total hold, because you was fighting every second of the day, writing letters, replying to emails, sending in evidence by recorded post, photocopying, filing reports at 1am and the next day 2am just to ensure you have enough proof to fight the LEA on top of that part time schooling, supporting a child that has extream behaviours and anxiety as well as the ordinary life chores, of shopping, cleaning Ect so it demanding and exhausting at times. When J went to residential school you have all this time to yourself, well I tried very hard not to fall apart, and I did get support, and now I am enjoying my time, and J is settling into his school. Looking back some how you do it, I got a lot of support from the well known members here, and I had contact a family outreach workers, I aproached my MP, GP, charities, school, all that I could to help us ensure J got his needs met. What you can Not do is give up, if you do that then the LEA win and your child pays the price not just as a child but as an Adult too. It tuff because the LEA hope parents do give up, its saves the authority too much money well thats what they think because the cost is soo much more expensive when the child needs more help further down the line and the resources they may need will exceed the amount in the beginning stages of statements ect, There is no daught it is defo hard to keep going, but if you give up, the person it effects the most is our children. JsMum <'> Edited February 11, 2009 by JsMum Quote Share this post Link to post Share on other sites
Kathryn Report post Posted February 12, 2009 I hope you hear something today. The LA MUST stick to the deadline for making a decision. Try not to worry, take it one step at a time. <'> So sorry to hear about your friend. It's appalling what the system puts people through. K x Quote Share this post Link to post Share on other sites
thebuzzer Report post Posted February 12, 2009 Thank you so much for your replies. I have phone the LA this morning and have been told that DS's case is top of list and being heard today. His caseworker will call me later today with the answer. I will give her until 3.30 and then call myself! My stomach is in knots! Deep Breath!!! I will definitely not give up and if need be take them to SENDIST. One of my work colleagues is writing for SENDIST the SALT Good Practice Guidelines (I work with SEBD Key Stage 3) so I have lots of advice to call upon. I will make such a noise if he does not get his statement, picked the wrong mum here! As my husband is always telling me I am a dog with a bone when I want to be and this is one bone I will not be letting go of! Quote Share this post Link to post Share on other sites
pumpkinpie Report post Posted February 12, 2009 Any news Quote Share this post Link to post Share on other sites
Clare63 Report post Posted February 12, 2009 Wanted to give you some words of encouragement having been through the same process myself and feeling that they would say No, (but they didn't) I see you should have heard this afternoon, fingers crossed it was positive, please post on how you got on ... <'> <'> <'> Clare x x x Quote Share this post Link to post Share on other sites
thebuzzer Report post Posted February 12, 2009 Any news Yes!!!! They have agreed to statement DS - relief, now we have just got to make sure the statement is worth the paper it is written on - ding ding round 2!! Thanks for asking! Quote Share this post Link to post Share on other sites
Clare63 Report post Posted February 12, 2009 Excellent news, well done ! Clare x x x Quote Share this post Link to post Share on other sites
