Im a newbie:)

[lollypopz]

Hi there

Im new too,im mum to 2 boys,eldest 12 with dx of ADHD.Ds 9 has behavioural probs,he doesnt 'do' change,eg,I visited a shop which I hadnt mentioned and that was it,shoes came off and he stood in the road giving vsign to cars.he has major tantrums&will throw things,headbutt/kick/punch the walls and on occassion bite me if I try to gently hold him to calm himwhich he swears Im hurting him!

he only does part time school because of behaviour and many times he's had to be restrained&ive had to go collect him.he forgets things all the time&he has to get dressed a certain way&wont wear certain clothes that'prick/hurt' him.he is easily distracted by sounds around,such as someone coughing,he also hears small sounds I cant,he says when the skybox is turned on it makes a loud squealing noise&it makes him cringe,HV said something about hypersensitivity/sensory overload/meltdowns.he was assessed for ADHD lasr year&fell just under the line for dx.I was told case closed&sent on my way.

school havent helped much over the last 2 years,Ive been told'hes copying his brother/its his age/hes attention seeking&choosing to behave like this,theres nothing wrong'HV wasnt impressed when I told her!so if its his age,every kid in his class would be jumping out of the window to avoid putting chair on table&they would all be sent to the quiet room!

he was re-referred to CAMHS by GP when I explained his dangerous behaviour,he will go for knives/scissors etc during an 'episode' sometimes after a major 'do' he will fall to sleep.I was so happy yest when he had his apt at CAMHS(only waited 7 wks which is brill considering they told me up to 8mths!)

he was seen by a psyc&had to do some building with blocks/patterns&describe meanings of things etc.we have to go back in 2 weeks for the second part of the psychometric testing,he will then be seen by the head psyc.Ive written all his little 'ways' down for the CAMHS team.I notice he bumps into people/things a lot,yet he hates people coming close to him,say in a shopping centre,if anyone gets too close this will trigger a meltdown,he will refuse to walk,spit and shout random swear words to random people walking by

Id be grateful if anyone has/is going through this to give me any advice,many thanks

lolly x

[justine1]

Hi

welcome to the forum <'> I got four boys,my six(almost seven) year old got a diagnosis of ASD/AS last December,he has been doing part time since January after being excluded twice,since being excluded two more times since then we are awaiting his statement(due August) he is going to a new school next week with an ASD unit.

 

My four yr old is also waiting for assessment suspected HFA.

 

The education tab on here is brilliant will give you advice on where you stand as it is not right he is doing part time.Everyone here is fab

[lollypopz]

Hi Justine1,

thats good news about your little one my son bin excluded twice too but the school have been abit underhand and on occasions asked me to take him home for'time out' and said "we wont make it an official exclusion as it wont look good on his record"

I since found out from Parent Partnership they cannot make unofficial exclusions,it either is one or it isnt.they werent too happy the next time he was excluded cos I told them"MAKE IT OFFICIAL!they ummed&ahhed a bit&threw in the"wont look good" bit.more like it wont look good on them for being a high excluding school!

he has a helper at school now(dont know how long for tho!)&she is brill with him,knows when a kickoff is coming so takes him away from the situation,even if its to do a job,or throw a ball.wish school had listend&believed me sooner about his probs when I went to them and asked for help 26mths ago!they tell me he is stressed and even put his behaviour down to not eating breakfast one day..

[JsMum]

Hello Lolly and a warm welcome,

 

your post was very familair to my own sons behaviour he too uses objects similair to what you described in rages, we often have to do a house sweep of any impliments/objects and ensure there all out of reach so if he does go into a rage then he can not harm others,

 

so my first tip would be do a house safety check, my son has smashed our windows and doors at around 9yrs old, in the past his behaviour has resulted in the police and emergency services been summened only to be appauled at the level of support we recieve, and then on odd accasions the police where less then unhelpful so I stopped requesting support and dealt with it on my own which led us both at risk of danger,

 

my son was also in part time education, he has extreame anxieties mainly resulting in sensory overload, and I have to recommend The Out Of Syncs Child Recogonising and coping with Sensory Processing Disorder, something J was assessed as having at a child developmental centre and I started to put in place stratagies that supported his sensory issues, we continue with those stratagies,

 

so another thing I would recommend is a chill out area in your home where he can go to when he is overloaded, beanbags, relaxing music, easy play toys such as kenex, lego, drawing equiptment, and low sensory enviorment, at the same time we started to address his sensory needs we fighted for a specialist school as he required a Residential school which was a long drawn out fight and the LEA pushing my son into a mainstream secondary then a Moderate learning difficulties school, which wouldnt meet his Intelligence.

 

The test your son is having sounds like an intelligence test that investigates his abilities and weeknesses, when my son showed uneven profile we where able to prove he needed a spersific school as he has a range of disorders from ADHD to ASD needs and he started his school 18 months ago, he is progressing and doing very well but there are still concerns over his behaviour and violence, he is now been referred to Great Ormand Street Hospital Specialist Autism Service so if you do not get anywhere with your local services and they say your son is fine nothing wrong, request a second opinion at GOSH they will definately understand your sons sensory issues, look into sensory processing disorder in the mean time and let me know what you think.

 

Your son sounds incredibly like my son, the issues your son has I can certainly relate to, we are now going throw transition plans and J is starting to attend a specialist residential respite childrens unit in the holidays a few days a week as Js needs are too much for me to take on with the amount of supervision and the need to keep him safe is too much for me to deal with alone and I have already safe proofed the house, provided a sensory room, given him symbol routines and when he is violent or a danger to himself and others I have to call the emergency services, so Im still struggling, his school he has access to a high level theraputic services and 1-1 support yet at home Im left to deal with it on my own 24-7, hence we need support now and after a lengthy fight were getting there with support.

 

you are right your school are totally pussy footing around the issues your son has and not following the guidelines to exclusions, and support, and like you say your son has access to a TA for now, but for how long, and how long will he be there part time, we tried to get J into mainstream school full time but his anxieties where too high it failed.

 

When he has been expelled, what was he expelled for, what led to the behaviour/action, could the school of provided any provisions to reduce his actions, what stratagies have the school put in place now and what would they do if you refused to collect him?

 

Its a fight Im afriad to get what you want your son to access, it isnt easy, but you have no real choice, many of Js behaviours in the past social services tried to blame the issues on the fact J was an only child, so didnt learn to share, take turns ect.... nothing at all to do with the fact he had friends to play and he just couldnt share, we had to resort to buying two sets of the same toy, he was very aggressive and violent even as a toddler, now in your case there saying he is copying his brother, it seems we cant win can we.

 

What is clear is many of your sons behaviours are not due to copying his brother or that he is attention seeking bla bla bla, he has complex needs that need a proper investigation, which is why you may need to get more assessments done in the near future.

 

There are parent support groups for parents with ASD children, and as you already have a son with ADHD there are parent groups for children with ADHD so I would look at attending these for further support.

 

Contact a family are good for information on Education and social care needs.

 

Can I reasure you also that if the Tests come back that your son is intelligent there is nothing wrong, he there fore cant have complex needs, because he still can have complex needs, there is many intelligent children out thier, including mine, who are intelligent but have significant needs in behavioural, emotional, social, communication, sensory and very challenging behaviours.

 

So do not let them fob you off with his results, which for many on the ASD/SID they are uneven, very able in certain tasks, average in others to the impaired, to severely impaired in other tasks, it is common to have a spikey profile.

 

If it is your son is intelligent then he will need a very spersific specialised learning enviroment so he can show his potential so essential you dont walk away if they say again, nar, no problems with his intelligence, must be parenting, brotherly ADHD ect.....

 

Anyway hope that you find some of the stuff Ive posted helpful, you know you can come back once you have the results of the test for more advice or before that if you need it, basically your welcome any time.

 

JsMuMX

 

Edited June 29, 2010 by JsMum

[lollypopz]

Hello Lolly and a warm welcome,

 

your post was very familair to my own sons behaviour he too uses objects similair to what you described in rages, we often have to do a house sweep of any impliments/objects and ensure there all out of reach so if he does go into a rage then he can not harm others,

 

so my first tip would be do a house safety check, my son has smashed our windows and doors at around 9yrs old, in the past his behaviour has resulted in the police and emergency services been summened only to be appauled at the level of support we recieve, and then on odd accasions the police where less then unhelpful so I stopped requesting support and dealt with it on my own which led us both at risk of danger,

 

my son was also in part time education, he has extreame anxieties mainly resulting in sensory overload, and I have to recommend The Out Of Syncs Child Recogonising and coping with Sensory Processing Disorder, something J was assessed as having at a child developmental centre and I started to put in place stratagies that supported his sensory issues, we continue with those stratagies,

 

so another thing I would recommend is a chill out area in your home where he can go to when he is overloaded, beanbags, relaxing music, easy play toys such as kenex, lego, drawing equiptment, and low sensory enviorment, at the same time we started to address his sensory needs we fighted for a specialist school as he required a Residential school which was a long drawn out fight and the LEA pushing my son into a mainstream secondary then a Moderate learning difficulties school, which wouldnt meet his Intelligence.

 

The test your son is having sounds like an intelligence test that investigates his abilities and weeknesses, when my son showed uneven profile we where able to prove he needed a spersific school as he has a range of disorders from ADHD to ASD needs and he started his school 18 months ago, he is progressing and doing very well but there are still concerns over his behaviour and violence, he is now been referred to Great Ormand Street Hospital Specialist Autism Service so if you do not get anywhere with your local services and they say your son is fine nothing wrong, request a second opinion at GOSH they will definately understand your sons sensory issues, look into sensory processing disorder in the mean time and let me know what you think.

 

Your son sounds incredibly like my son, the issues your son has I can certainly relate to, we are now going throw transition plans and J is starting to attend a specialist residential respite childrens unit in the holidays a few days a week as Js needs are too much for me to take on with the amount of supervision and the need to keep him safe is too much for me to deal with alone and I have already safe proofed the house, provided a sensory room, given him symbol routines and when he is violent or a danger to himself and others I have to call the emergency services, so Im still struggling, his school he has access to a high level theraputic services and 1-1 support yet at home Im left to deal with it on my own 24-7, hence we need support now and after a lengthy fight were getting there with support.

 

you are right your school are totally pussy footing around the issues your son has and not following the guidelines to exclusions, and support, and like you say your son has access to a TA for now, but for how long, and how long will he be there part time, we tried to get J into mainstream school full time but his anxieties where too high it failed.

 

When he has been expelled, what was he expelled for, what led to the behaviour/action, could the school of provided any provisions to reduce his actions, what stratagies have the school put in place now and what would they do if you refused to collect him?

 

Its a fight Im afriad to get what you want your son to access, it isnt easy, but you have no real choice, many of Js behaviours in the past social services tried to blame the issues on the fact J was an only child, so didnt learn to share, take turns ect.... nothing at all to do with the fact he had friends to play and he just couldnt share, we had to resort to buying two sets of the same toy, he was very aggressive and violent even as a toddler, now in your case there saying he is copying his brother, it seems we cant win can we.

 

What is clear is many of your sons behaviours are not due to copying his brother or that he is attention seeking bla bla bla, he has complex needs that need a proper investigation, which is why you may need to get more assessments done in the near future.

 

There are parent support groups for parents with ASD children, and as you already have a son with ADHD there are parent groups for children with ADHD so I would look at attending these for further support.

 

Contact a family are good for information on Education and social care needs.

 

Can I reasure you also that if the Tests come back that your son is intelligent there is nothing wrong, he there fore cant have complex needs, because he still can have complex needs, there is many intelligent children out thier, including mine, who are intelligent but have significant needs in behavioural, emotional, social, communication, sensory and very challenging behaviours.

 

So do not let them fob you off with his results, which for many on the ASD/SID they are uneven, very able in certain tasks, average in others to the impaired, to severely impaired in other tasks, it is common to have a spikey profile.

 

If it is your son is intelligent then he will need a very spersific specialised learning enviroment so he can show his potential so essential you dont walk away if they say again, nar, no problems with his intelligence, must be parenting, brotherly ADHD ect.....

 

Anyway hope that you find some of the stuff Ive posted helpful, you know you can come back once you have the results of the test for more advice or before that if you need it, basically your welcome any time.

 

JsMuMX

Hi JsMuMX

many thanks for the reply

I have been told by HV that when ds goes for knives and threatens to stab his brother I have to call the police,but by the time they would get here,the incident would be over and I would have dealt with it myself again,dont want to be seen as wasting their time,especially as they would come to a calmed down boy lol.

when a tantrum starts and is gonna escalate really bad,i take him to his room(plain white) and hardly anything in it,sit with him on his bed and this seems to help.

with regards to school,they tell me because he is bright and clever at maths(doing year 6+ algebra 80%score)he doesnt have problems.I ve told them he takes things literally eg.one day the class were asked to put their hand up really high if they had played football.bless him,he stood on his chair so his hand was really high&got sent out for being silly.I asked him to go get the coat hangers to put some ironing on..he brought me all 37!bless.

I got a call one day to collect him as a boy had called him a name&he totally flipped,I got there to him swinging off the window sill,screaming/growling/swearing while locked in the calm down room with a Ta.I was told"well sorry but the reaction far outweighs the insult" charming! Ive told them u can look at him wrong&its enough to trigger him!

he likes certain sounds such as me chopping an onion or the sound of gravel.he also has to do the first scoop of ice cream or spread of butter from the new tub because he like the soft feel and will only wear certain texture clothes.sometimes instead of asking for things he will point at it and/or use 'baby talk' ive mentioned it to school aswell&I got"oh yes he tries that here&we just IGNORE it,he's going to HAVE TO change!if I ask him to stop doing something he repeats back to me exactly what I said but doesnt make eye contact

 

when he has these melt downs its like looking into a empty shell&often he doesnt realise what he has done,he forgets.it can go from screaming rage-me calming&2 mins later 'please can I have a drink' as though nothing at all has happened.

we went to butlins a bit bak&his brother got some magic bubbles which dont pop when u touch them,he was happily playing yet a few floated over to were ds was with no top on,they started to stick to him..oh dear,I didnt expect a meltdown from that but he was going crazy as if they were hot or something!i had to shower him!

if school say he is choosing to behave like this(psyc,doesnt think so!)then to me THATS a problem in itself!

I just hope camhs can give me some answers soon,thankyou very much for your help&im gonna have a go at making a sensory space for him

he been excluded for persistent disruptive behaviour.cant they see he isnt going to change!

I only live 5 mins from school so have never refused to go collect him even tho ive threatend it many times,cos I know that my child is going to be in such a distressed state/restrained/trashing classroom&shut in a room so its easier for me to go and resolve the situation.ive told them restraining/shutting him in makes him worse because he has to get away from the situation.Ive said let him go..burn it off in the playground/kick a ball so long as he doesnt pose danger to other children/himself.but it hasnt sunk in yet!maybe,il get there one day,school were same with his brother before he got dx told me nothing wrong&he can sit still for 20 mins so doesnt have ADHD.how wrong were they!Id never said he couldnt sit still lol he was dx with combined type ADHD.so we set up a support group at school but it fell through after a year as no1 seemed interested.

once again thanks&sorry for blathering on

 

[trekster]

Hi there

Im new too, im mum to 2 boys,eldest 12 with dx of ADHD. Ds 9 has behavioural probs, he doesn't 'do' change,eg,I visited a shop which I hadn't mentioned and that was it,shoes came off and he stood in the road giving vsign to cars.he has major tantrums & will throw things, headbutt/kick/punch the walls and on occasion bite me if I try to gently hold him to calm him which he swears Im hurting him!

 

Welcome to the boards, there are some ADHDers on the list and some parents of ADHDers on the list as well. His behaviour is out of fear because something new and frightening has suddenly happened, he doesn't know how to react and his panic is what you see. i realise you cannot plan for all changes. There is a form of ADHD with oppositional behaviour but since he is opposing the changes i can fully understand why you have come here.

 

i don't have ADHD but i have gotten hyper and defiant on cheap squash and anything with benzoates in. Im only like this when a benzoate goes into my body or through my skin (like in toiletries for example). It is much easier to reason with me when im not ingesting or using benzoates.

 

ive heard of cases of ADHD with SID (sensory integration disorder) which can include sensory seeking or sensory avoidance behaviours. i wasn't able to go into certain shops and supermarkets due to the lighting in them until after i got my colorimeter lenses (which i don't need anymore). Does he have this reaction with the school hall? either for assembly or mealtimes or any other reason. Does he avoid the kitchen (if you have strip lighting in it)? Would he go in any forewarned shops if there was strip lighting in them? ive noticed he has hypersensitive hearing as well, that improved with the colorimeter lenses.

ADHD is often diagnosed when dyslexia would be a better diagnosis (a dyslexia tutor told me about this) at least in our area.

 

i agree your son seems to exhibit more behaviours than "just adhd".

he only does part time school because of behaviour and many times he's had to be restrained & ive had to go collect him.

 

What sort of behaviour? Sensory avoidance behaviour?

he forgets things all the time & he has to get dressed a certain way&wont wear certain clothes that'prick/hurt' him. he is easily distracted by sounds around, such as someone coughing, he also hears small sounds I cant, he says when the skybox is turned on it makes a loud squealing noise & it makes him cringe, HV said something about hypersensitivity/sensory overload/meltdowns. he was assessed for ADHD last year & fell just under the line for dx. I was told case closed & sent on my way.

 

A number of things have improved my memory, avoiding dairy, taking natural anti anxiety stuff such as chamomile tea, taking b6/mag/cal and taking taurine. If you need more information feel free to ask in the "interventions section" under "dietary". Feingold diet has had some success with ADHD.

 

i think you have a right to a second opinion from a different doctor. i can hear a sound coming out of the sky + box, the trains from 2 miles away, the pc, the fridge, the typing hurts my ears as well. Also i have gagged in the past to the smell of black coffee and been unable to eat slimy foods such as marge or garden peas (i can now eat garden peas).

school haven't helped much over the last 2 years,Ive been told hes copying his brother/its his age/hes attention seeking & choosing to behave like this, theres nothing wrong HV wasnt impressed when I told her! so if its his age, every kid in his class would be jumping out of the window to avoid putting chair on table & they would all be sent to the quiet room!

 

Grrr, hes avoiding putting the chair on the table as the sound of it makes him cringe. Have you compared the diagnostic criterion of ADHD and autism to see which behaviours seem to fit him more?

he was re-referred to CAMHS by GP when I explained his dangerous behaviour, he will go for knives/scissors etc during an 'episode' sometimes after a major 'do' he will fall to sleep.

 

Ah yes the post meltdown sleep sounds autistic to me. Not all autistics who have meltdowns sleep but some do.

I was so happy yest when he had his apt at CAMHS (only waited 7 wks which is brill considering they told me up to 8mths!)

he was seen by a psyc & had to do some building with blocks/patterns & describe meanings of things etc. we have to go back in 2 weeks for the second part of the psychometric testing, he will then be seen by the head psyc. Ive written all his little 'ways' down for the CAMHS team. I notice he bumps into people/things a lot, yet he hates people coming close to him, say in a shopping centre, if anyone gets too close this will trigger a meltdown, he will refuse to walk, spit and shout random swear words to random people walking by

Id be grateful if anyone has/is going through this to give me any advice, many thanks

lolly x

 

When he bumps into you it's to an extent under his control so it's also expected for him. Someone else coming too close to him could cause a range of issues from claustrophobia to them being too loud (their breathing could be heavy) or too smelly (their perfume, cigarette smoke, body odour). He could also have social phobia which causes his behaviour to be due to being literally scared of other people. He sounds like my friends son.

 

HTH

 

 

 

[lollypopz]

Welcome to the boards, there are some ADHDers on the list and some parents of ADHDers on the list as well. His behaviour is out of fear because something new and frightening has suddenly happened, he doesn't know how to react and his panic is what you see. i realise you cannot plan for all changes. There is a form of ADHD with oppositional behaviour but since he is opposing the changes i can fully understand why you have come here.

 

i don't have ADHD but i have gotten hyper and defiant on cheap squash and anything with benzoates in. Im only like this when a benzoate goes into my body or through my skin (like in toiletries for example). It is much easier to reason with me when im not ingesting or using benzoates.

 

ive heard of cases of ADHD with SID (sensory integration disorder) which can include sensory seeking or sensory avoidance behaviours. i wasn't able to go into certain shops and supermarkets due to the lighting in them until after i got my colorimeter lenses (which i don't need anymore). Does he have this reaction with the school hall? either for assembly or mealtimes or any other reason. Does he avoid the kitchen (if you have strip lighting in it)? Would he go in any forewarned shops if there was strip lighting in them? ive noticed he has hypersensitive hearing as well, that improved with the colorimeter lenses.

ADHD is often diagnosed when dyslexia would be a better diagnosis (a dyslexia tutor told me about this) at least in our area.

 

i agree your son seems to exhibit more behaviours than "just adhd".

 

What sort of behaviour? Sensory avoidance behaviour?

 

A number of things have improved my memory, avoiding dairy, taking natural anti anxiety stuff such as chamomile tea, taking b6/mag/cal and taking taurine. If you need more information feel free to ask in the "interventions section" under "dietary". Feingold diet has had some success with ADHD.

 

i think you have a right to a second opinion from a different doctor. i can hear a sound coming out of the sky + box, the trains from 2 miles away, the pc, the fridge, the typing hurts my ears as well. Also i have gagged in the past to the smell of black coffee and been unable to eat slimy foods such as marge or garden peas (i can now eat garden peas).

 

Grrr, hes avoiding putting the chair on the table as the sound of it makes him cringe. Have you compared the diagnostic criterion of ADHD and autism to see which behaviours seem to fit him more?

 

Ah yes the post meltdown sleep sounds autistic to me. Not all autistics who have meltdowns sleep but some do.

 

When he bumps into you it's to an extent under his control so it's also expected for him. Someone else coming too close to him could cause a range of issues from claustrophobia to them being too loud (their breathing could be heavy) or too smelly (their perfume, cigarette smoke, body odour). He could also have social phobia which causes his behaviour to be due to being literally scared of other people. He sounds like my friends son.

 

HTH

Hi Trekster,thanks for4 the reply,I feel like im learning loads today lol

ds doesnt react in anyway to light apart from being able to hear the kitchen strip light 'flicker' when it gets switched on.

meant to mention,if he is made to jump he can literally fall to the floor,i thought he was messing but he gets really scared,there's a dog nxt door but 3 which barks when u walk past, even tho i warn him about the dog it still makes him jump,IF he hasn't put his hands over his hears 10 miles before lol

He cant have cherryade or blue lollies from icecream man as this leads to him literally bouncing off the walls&swinging of the banisters.

quiet humming/singing drives him mad too(does it bug you?) and he puts his fingers in his ears when i hoover OR he walks round in a room away from it shouting LALALA&clapping his hands,like hes trying to drown the sound out but doesn't mind being noisy himself!??

connor reports were done&he scored just under the line so consultant refused to dx.I asked if it could be just ADD/ODD and was told nothing wrong case closed.

he seems to have bits of behaviour of adhd/add/odd/autism but maybe it IS just the way he is!

he forgets everyday things but can tell me bits of what he did on holiday when he was 19mths old!(scary)

if anyone gets too close,the fists clench,teeth come out&so does the language usually" f*s can that fat b*****d gets any closer etc and he doesnt care how loud he says it either

thanks for your advice I really appreciate it

[trekster]

Hi Justine1,

thats good news about your little one my son bin excluded twice too but the school have been a bit underhand and on occasions asked me to take him home for 'time out' and said "we wont make it an official exclusion as it wont look good on his record"

I since found out from Parent Partnership they cannot make unofficial exclusions,it either is one or it isnt. they weren't too happy the next time he was excluded cos I told them"MAKE IT OFFICIAL!they ummed & ahhed a bit & threw in the"wont look good" bit. more like it wont look good on them for being a high excluding school!

he has a helper at school now (dont know how long for tho!) & she is brill with him, knows when a kick-off is coming so takes him away from the situation, even if its to do a job, or throw a ball. wish school had listened & believed me sooner about his probs when I went to them and asked for help 26mths ago! they tell me he is stressed and even put his behaviour down to not eating breakfast one day..

 

Well done for getting a helper for your son and im pleased someone else is fighting his corner. Could you get her to write a supporting statement to show CAHMS about his behaviour?

[trekster]

Hi Trekster,thanks for4 the reply,I feel like im learning loads today lol

ds doesnt react in anyway to light apart from being able to hear the kitchen strip light 'flicker' when it gets switched on.

 

That can be an indication that colorimeter lenses could help him as well as the light issue.

meant to mention,if he is made to jump he can literally fall to the floor,i thought he was messing but he gets really scared,there's a dog nxt door but 3 which barks when u walk past, even tho i warn him about the dog it still makes him jump,IF he hasn't put his hands over his hears 10 miles before lol

 

Exaggerated startle response, seems like hes always on edge which is why he jumps out of his skin.

He cant have cherryade or blue lollies from icecream man as this leads to him literally bouncing off the walls&swinging of the banisters.

 

Sounds like me on benzoates.

quiet humming/singing drives him mad too(does it bug you?) and he puts his fingers in his ears when i hoover OR he walks round in a room away from it shouting LALALA&clapping his hands,like hes trying to drown the sound out but doesn't mind being noisy himself!??

 

If its the same repetitive song or one that annoys me because i dont like the song singer, then yes. He is trying to drown out upsetting sounds but due to being able to control when and where the sound comes out of his mouth makes it appear paradoxical. It can also be a sign of neurological developmental delay which brain gym and similar stuff has been known to help.

Connor reports were done&he scored just under the line so consultant refused to dx.I asked if it could be just ADD/ODD and was told nothing wrong case closed.

he seems to have bits of behaviour of adhd/add/odd/autism but maybe it IS just the way he is!

 

It is possible to have all 3 i know of at least 1 person with all of those issues. A friends son.

he forgets everyday things but can tell me bits of what he did on holiday when he was 19mths old!(scary)

if anyone gets too close,the fists clench,teeth come out&so does the language usually" f*s can that fat b*****d gets any closer etc and he doesn't care how loud he says it either

thanks for your advice I really appreciate it

 

Problems accessing short term memory unless you mention the key word? i was trying to describe on paper why i need my hair tight but i couldn't think of the term to use. Mum had no idea either i think i used snugly tight in the end, but it still doesnt make sense.

 

NP i just hope you are able to help this guys life become more bearable.

 

[lollypopz]

Well done for getting a helper for your son and im pleased someone else is fighting his corner. Could you get her to write a supporting statement to show CAHMS about his behaviour?

The school know exactly how he be haves&it annoys me cos they said at his review"oh we definatly need to re-refer to camhs" 2wks later I asked if the referal had been made&the HEAD told me"well its just pot luck with schools,camhs dont always listen to us&be best if you took him back to the docs" told them its worth a try,they just seem like,they made their minds up he doesnt have problems&hope I forget about it.camhs told me its not 'pot luck'&school dont sound very helpful&rolled their eyes when I told them what school he goes to!

they make a big deal about him getting this help as the Ta is in that class to help ALL the kids&Im made to feel like they 'doing him a favour' and he gets told"while your behaving like this all the other children miss out" I also know comments have been made such as 'you dont have problems,your just naughty'I spoke to school about this but I get'OH THATS NEVER BEEN SAID!

3psycs have got details of his behaviours he has seen two and yet to see the head one EPBST are involved and so was the health visitor and a support worker.one of the psycs saw a behaviour during testing the other day we were in a room&u could just hear a door slightly creak outside&his head did a 360&was totally distracted&forgot what he was doing,she asked him if the door made him look he said yes,that was noted down too&I was told thats on MY list of behaviours too.

when I mention things like that to school IM fobbed off with 'oh yes my son does that too' or my daughter doesnt like certain sounds

[lollypopz]

Well done for getting a helper for your son and im pleased someone else is fighting his corner. Could you get her to write a supporting statement to show CAHMS about his behaviour?

The school know exactly how he be haves&it annoys me cos they said at his review"oh we definatly need to re-refer to camhs" 2wks later I asked if the referal had been made&the HEAD told me"well its just pot luck with schools,camhs dont always listen to us&be best if you took him back to the docs" told them its worth a try,they just seem like,they made their minds up he doesnt have problems&hope I forget about it.camhs told me its not 'pot luck'&school dont sound very helpful&rolled their eyes when I told them what school he goes to!

they make a big deal about him getting this help as the Ta is in that class to help ALL the kids&Im made to feel like they 'doing him a favour' and he gets told"while your behaving like this all the other children miss out" I also know comments have been made such as 'you dont have problems,your just naughty'I spoke to school about this but I get'OH THATS NEVER BEEN SAID!

3psycs have got details of his behaviours he has seen two and yet to see the head one EPBST are involved and so was the health visitor and a support worker.one of the psycs saw a behaviour during testing the other day we were in a room&u could just hear a door slightly creak outside&his head did a 360&was totally distracted&forgot what he was doing,she asked him if the door made him look he said yes,that was noted down too&I was told thats on MY list of behaviours too.

when I mention things like that to school IM fobbed off with 'oh yes my son does that too' or my daughter doesnt like certain sounds

[lollypopz]

sorry dont know what Ive done there,my reply gone twice

[lollypopz]

Hello Lolly and a warm welcome,

 

[/look into sensory processing disorder in the mean time and let me know what you thinkquote

Hi Jsmum,I have had a look at the above&hmmmm he fits a few things there,especially the teeth brushing,he point blank refuses to do it so I have to try do it for him,also the motion bit 'extreme scary rides at the fair' he LOVES these and has no fears whatsoever about going on them,then the issues with sounds thats really annoy him!

[trekster]

The school know exactly how he be haves & it annoys me cos they said at his review "oh we defiantly need to re-refer to camhs" 2wks later I asked if the referral had been made & the HEAD told me "well its just pot luck with schools, camhs don't always listen to us & be best if you took him back to the docs" told them its worth a try, they just seem like, they made their minds up he doesn't have problems & hope I forget about it. camhs told me its not 'pot luck' & school don't sound very helpful & rolled their eyes when I told them what school he goes to!

 

Hopefully when he gets an autism diagnosis the school will listen. If not then your local NAS branch should know which are the more helpful schools in the area. i know there is a branch in Halifax.

they make a big deal about him getting this help as the Ta is in that class to help ALL the kids & Im made to feel like they 'doing him a favour'

 

Grrrrr sounds like all the kids are missing out due to lack of support not your sons actions.

and he gets told "while your behaving like this all the other children miss out" I also know comments have been made such as 'you don't have problems, your just naughty' I spoke to school about this but I get 'OH THATS NEVER BEEN SAID!

 

i was bullied by my teacher who asked me who i thought i was then told me off for answering her question. At the time i wasn't aware of rhetorical (stupid as i call them) questions. This was in response to her taking my school book off me in secondary school and me shouting "give it back". i wasn't going to watch another vulnerable person get beaten up and she took that as me being wilfully defiant. It still upsets me years later and she's upset other kids due to "coming down hard on them to make up for failing her daughter" (her words to my carer at the time). i was undiagnosed, confused, frightened and self harming (which she called "getting attention").

3psycs have got details of his behaviours he has seen two and yet to see the head one EPBST are involved and so was the health visitor and a support worker. one of the psycs saw a behaviour during testing the other day we were in a room & u could just hear a door slightly creak outside & his head did a 360 & was totally distracted & forgot what he was doing, she asked him if the door made him look he said yes, that was noted down too & I was told thats on MY list of behaviours too.

when I mention things like that to school IM fobbed off with 'oh yes my son does that too' or my daughter doesnt like certain sounds

 

Sounds like this psych knows her stuff. Also that the other kids could have sensory stuff, the difference being your sons reaction is more extreme than an NTs. They dont seem to get that at all.

 

[lollypopz]

Hopefully when he gets an autism diagnosis the school will listen. If not then your local NAS branch should know which are the more helpful schools in the area. i know there is a branch in Halifax.

 

Grrrrr sounds like all the kids are missing out due to lack of support not your sons actions.

 

i was bullied by my teacher who asked me who i thought i was then told me off for answering her question. At the time i wasn't aware of rhetorical (stupid as i call them) questions. This was in response to her taking my school book off me in secondary school and me shouting "give it back". i wasn't going to watch another vulnerable person get beaten up and she took that as me being wilfully defiant. It still upsets me years later and she's upset other kids due to "coming down hard on them to make up for failing her daughter" (her words to my carer at the time). i was undiagnosed, confused, frightened and self harming (which she called "getting attention").

 

Sounds like this psych knows her stuff. Also that the other kids could have sensory stuff, the difference being your sons reaction is more extreme than an NTs. They dont seem to get that at all.

Aww thats awful how u were treated,it really upsets me does that,thats why i really feel for my little one:(

[lollypopz]

Hi Trekster,thanks for4 the reply,I feel like im learning loads today lol

ds doesnt react in anyway to light apart from being able to hear the kitchen strip light 'flicker' when it gets switched on.

meant to mention,if he is made to jump he can literally fall to the floor,i thought he was messing but he gets really scared,there's a dog nxt door but 3 which barks when u walk past, even tho i warn him about the dog it still makes him jump,IF he hasn't put his hands over his hears 10 miles before lol

He cant have cherryade or blue lollies from icecream man as this leads to him literally bouncing off the walls&swinging of the banisters.

quiet humming/singing drives him mad too(does it bug you?) and he puts his fingers in his ears when i hoover OR he walks round in a room away from it shouting LALALA&clapping his hands,like hes trying to drown the sound out but doesn't mind being noisy himself!??

connor reports were done&he scored just under the line so consultant refused to dx.I asked if it could be just ADD/ODD and was told nothing wrong case closed.

he seems to have bits of behaviour of adhd/add/odd/autism but maybe it IS just the way he is!

he forgets everyday things but can tell me bits of what he did on holiday when he was 19mths old!(scary)

if anyone gets too close,the fists clench,teeth come out&so does the language "can they get any closer etc and he doesnt care how loud he says it either

thanks for your advice I really appreciate it

Edited June 30, 2010 by lollypopz