dannyyoung Report post Posted June 1, 2011 Our son has recently had a spate of health care issues which we are having difficulty managing and have not been given a clear overview of what his availability to helpful resources is. We have been told he has Aspergers. He has also been diagnosed with developmental coordination disorder which affects his ability to ride bikes, tie shoelaces etc. To compound the situation, after having a scan due to possible appendicitis, it turns out that he only has 1 kidney which is not functioning as well as it should be. His creatinine level is over 100. The doctors say his kidney is working but is under strain and so should be looked after. The main thing we have read is that he should be keeping fit and active but he can’t do contact sports and the gym at his high school is only for 15 years and above. We thought there might be some kind of grant or scheme that may be able to help him but we don’t know where to start. We had a meeting at his school with SENCO and the CHAMS doctor that diagnosed him with Aspergers and we asked what kind of extra help is available. The reply was to take him for runs. I pointed out that he has oversized joints and loose ligaments which makes running very painful (this was also another diagnosis from local health authority) If anyone can help clarify where we might be able to start, we would be very grateful as asking any of the public sector professionals is like trying to get blood out of a stone! Many thanks Quote Share this post Link to post Share on other sites
oxgirl Report post Posted June 1, 2011 Does your lad want to be active, is he keen to have a go at things? I only ask, because my own lad is nearly 18 and it is terribly hard to get any action out of him or get him moving at all! He won't take part in any 'sports', never has. How about taking your lad swimming? I taught my son to swim two years ago, before that he was unable to cope with following instructions and was very low on motivation, but he was ready (and finally willing!) to have a go a couple of years ago. He did learn to swim and was enjoying it for a while, enjoyed his achievement, but suddenly went off it and refused to continue going, so that was that! What about going for walks, having a brisk walk for an hour is very beneficial and is low-impact, as is swimming. I'm lucky in that I can actually get my lad to go out for a walk, but that is all I can do to get him moving, he refuses to run, even for a bus, as his gait is so awkward and laboured. Gardening is also good exercise, I did get my lad outside for an hour today to do a bit of digging, which he enjoyed. Good luck with getting him moving, it doesn't always have to be organized sport. Of course, the biggest hurdle he has is his willingness to get out and give things a go. ~ Mel ~ Quote Share this post Link to post Share on other sites
flappyfish Report post Posted June 1, 2011 I'd go with swimming. Find out when the pool is quiet and go then. Good all round exercise and not too much social pressure. Quote Share this post Link to post Share on other sites
