fly62 Report post Posted October 8, 2005 Hi has any one else heard that there can be a link between ASD and Ehlers-Danlos syndrome. I have 3 children 2 who are hypermobile and 1 has just been diagnosed as having Asperger traits. Her elder brother has a full diagnosis of aspergers ( but is not hypermobile) the other is very hypermobile but has no ASD. The specialist we saw thinks they could all have Ehlers-Danlos syndrome which has a high incidence of ASD anyone else heard of this ???????? Quote Share this post Link to post Share on other sites
Tensing Report post Posted October 8, 2005 My Son has Aspergers and is hypermobile, I always assussmed he had just inherited that from me. Quote Share this post Link to post Share on other sites
jayjay Report post Posted October 8, 2005 I am waiting for a diagnosis for my son think he has aspergers but already confirmed that he has double jointed fingers sorry cant be of any help Quote Share this post Link to post Share on other sites
Kathryn Report post Posted October 8, 2005 Yes there seems to be a lot of anecdotal evidence of a link, and I am looking out for research into it - haven't found anything yet. There has been another thread on this - not Ehlers Danlos specifically but other people on the forum have mentioned lax joints as a link with ASD. I only heard about Ehlers Danlos by chance as a good friend of mine has it in a fairly severe form. My daughter (16) is hypermobile, suffers from very painful joints and skin which bruises and wounds easily, (also a symptom of ehlers danlos). At a recemt physio assessment she scored the maximum 9 on the Beighton scale of hypermobility. We have an appointment with a rheumatologist in December who will be able to confirm whether or not she has this syndrome. Everyone thought her pain was a syptom of the depression she was going through - she was getting angry because her physical problems were not being taken seriously. It is baffling that her joints have only started to bother her in the last year or so but apparently puberty can make this condition worse. There is supposed to be a genetic link but neither I or her dad have anything like this. Quote Share this post Link to post Share on other sites
smallworld Report post Posted October 8, 2005 Hi fly62, Sorry, am coming late to this thread, I had to read the giggle ones first tonight, I was desperately in need of a laugh. Both my sons(as/asd) like me, are hypermobile, 1 has double-jointed thumbs and fingers,the other only fingers) My NT daughter is like her dad and totally inflexible in every sense of the word !!! My youngest has recently seen a dermatologist who said that he has very thin skin, we have to go back when he actually has a wound/insect bite etc. that won't heal. I have noticed that his toe joints are betting increasingly large, he looks like he's got bunions ! I am very interested to hear that your specialist mentioned a link between EDS and autism. I am struggling to find any research on this link. I'm very interested in this topic as I too have poor skin healing, and relatives with similar conditions. If you can point me in the right direction to find research on this link, I'd be very grateful. Our GP seems to take his lead from what I tell him re. co-morbids, so I would like to direct him to this link if I can back it up... wac Quote Share this post Link to post Share on other sites
Lucas Report post Posted October 9, 2005 I've heard of this and like Landeu-Kleffner, Angelman, Rett's, Williams, Childhood Degenerative Disorder and (yes) Mercury Poisoning, the evidence linking them and Ehlers-Danlos to Autism is ancedotal. To date, only Down's syndrome has evidence to support a link with Autism and that's epidemical(another field of 'science' which is merely an ideology in a lab coat). Quote Share this post Link to post Share on other sites
