trance Report post Posted April 17, 2006 Hello everyone I am new and have a 7yr old who is dx adhd. He has been on meds for the last 10 months but have noticed some behaviour which I thought was down to his adhd but after reading some info on asd it sounds like him to a tee. He doesnt understand jokes and sarcasm, cant put himself in anyone elses shoes, everything has to be done in his order like milk on cereal first then sugar or he goes mad. He hates loud noises and is scared of fireworks etc. Yesterday he wouldnt play in the garden unless he had his favourite ball which was in the car. Today he wouldnt eat his icecream until he had put his seatbelt on in the car even tho we werent going anywhere just sheltering from the rain. He gets very frustrated if things dont go his way and throws tantrums. His behaviour this holidays has been awful and his speech has deterioated as well (he has SALt) but has been stammering not on letters but on the first word of the sentence. I could go on but i wont as this is my first post, just wondered what you thought of this and any advice. thanks Quote Share this post Link to post Share on other sites
justamom Report post Posted April 17, 2006 Hi trance,and a warm welcome to the forum... its great here everyone is so nice and you really do get alot of good advice. All I can really say to you ,if you have concerns you need to see your GP and ask for a referral. Explain your concerns and hopeful it should start the ball rolling from there. Hope all goes ok Justamom Quote Share this post Link to post Share on other sites
trance Report post Posted April 17, 2006 (edited) hi thanks for the quick reply, I have emailed his pead and am waiting for a reply, she doesnt like 'labeling' children so waiting to see what she says. I know there is more than his adhd but it seems like you have to do everything yourself. Not giving up tho... Edited April 17, 2006 by trance Quote Share this post Link to post Share on other sites
justamom Report post Posted April 17, 2006 Yeah, trance thats the general feeling here you have to fight for a dx... if you believe that your child is showing signs of ASD then dont be fobbed off and fight for what you believe is right for your child.... We have all been there, some have found it easier and others like myself have been through the mill and its taken years to get a dx, my son was dx at the age of 10. You said that your pead does not like labelling children, i came across a SENCO like that but in my opinion labelling helps access certain services or even help at school that you would otherwise not receive without a label. Justamom Quote Share this post Link to post Share on other sites
phasmid Report post Posted April 17, 2006 Hi Trance, welcome to the forum. ...she doesnt like 'labeling' children... Grrr! Why do so many so-called professionals come out with this rubbish? If a child was partial hearing (as one of mine is) the 'label' makes a lot of difference. It means his teachers know he has to sit up at the front so he can hear clearly what is being said. This knowledge means he gets his hearing taken into account. Why should it be different because the 'label' is for an ASD? If it were her child I am sure she would want any difficulties addressed by those comming into contact with them. Why shouldn't your child be given the same courtesy? ps, love the signature. Quote Share this post Link to post Share on other sites
LizK Report post Posted April 17, 2006 Hello Trance QUOTE ...she doesnt like 'labeling' children... Grrr! Why do so many so-called professionals come out with this rubbish? Aside from the financial implications of giving a diagnosis and the avoidance of some parties to do so for such reasons there is a genuine belief amongst some professionals that diagnosing = labelling and can be 'harmful' Disability rights advocates now have an increasingly bigger input into the undergraduate and postgraduate teaching of medics and other health care professionals and one of the strongly held beliefs from the disability groups has been that HCPs must avoid the stigma of labelling children with conditions which from a sociological perspective are not conditions at all but variants of 'normal'. Autism is perceived as one of these 'stigmatising labels'. My husband attends some of these meetings and has been pretty surprised at the strength of feeling expressed and how these views have been generalised across many conditons and taken out fo context but implemented as policy to teach HCP s. As I said in the post below some HCPs seem to naively believe that if they don't call a child autistic it will somehow make them less autistic . Like the Emperors New Clothes in reverse. I also suspect there is the erroneous belief too that a child's does not need a diagnosis as services they receive will be purely needs-driven something most of us know is a pile of bovine poo! Liz x Quote Share this post Link to post Share on other sites
Guest hallyscomet Report post Posted April 18, 2006 Welcome Trance <'> <'> <'> Lots of lovely caring people on this forum, as you will find. Keep posting any thing that is worrying you.... don't forget yourself, you may have lots of worries and need support too. Its not easy some days and just feel like having a rant..... well we are here for that too Hailey. Quote Share this post Link to post Share on other sites
mr.ediebee Report post Posted April 18, 2006 she doesnt like 'labeling' children Hi Trance We have a son with ADHD/ASD (Aspergers) and it has taken approx. 3 years to get that written down on paper. He's statemented but it isn't mentioned yet, but will be!!! We, me and Ediebee, have known what our son's difficulties are for such a long time but you can go around in circles with 'professionals' with their 'we don't want to label him' stance. We did have a wonderful Behavourial Support Worker -early years, who would speak normally to us once our son moved out of her remit. (reception) Labels are good! And don't let anyone tell you otherwise! They open doors, create contacts, help networking (Sh*t, I sound like a management seminar, sorry). I'mcertain that they don't want to give you a 'label' because that would involve 'funding' and in a world of budgets / targets / criteria, we and our children do not fit, the neuro typical 'local councillors' do not want to pay because there is always something more important, such as, digging up your perfectly good flagging and tarmac in your village centre, and replacing it block paving, herringbone style. Mr.Ediebee Quote Share this post Link to post Share on other sites
JsMum Report post Posted April 18, 2006 Hi trance and a big huge welcome, I didnt think my son was ASD in the beginning because J has a bond with me and can look me in the eye especially the evils so I cancelled it out plus he spent time in a cahms unit and they diagnosed ADHD ODD and Speech and Language Difficulties so I thought if he had ASD then that would of been picked up, I have defenitly seen more and more Autistic traits since he has been treated for ADHD and he has always had sensory issues like doesnt like noise or textures but no one really said anything but he has left the unit over a year and I have read about Autistic Spectrum Disorder/ Conditions and I know that they are what Js behaviours are, when I read it, it was like someone put the light on in my head! I have already put into place statagies for children with ASD and I am understanding J under a new light, education dont see ADHD symptoms and I am sure they dont spot ASD as well but more and more of the professionals that see J are suggesting ASD so I am getting there and we are been referred to a specialist in Autisim. J is nine years old now too, so all this time and only now am I suspecting ASD because I also thought most of his behaviours where down to his ADHD, ODD and Speech which put emmence stress on J and me. There is a better, clearer information on ASD and now I understand it, If it comes out that J does have ASD then I have learnt to understand his anxieties and fears and his ways more and that I feel I have given J the benefit of my inner feelings that something is just not right, do you understand that. I have gained great information here and the people here are really helpful and someone somewhere has gone throw similair situations. Look throw the forums in Education and help and advice and you will see that your not just imagining it all and that there is always a reason why your Son reacts to different issues so differently to other children. When I started to understand I stopped been so hard on my own parenting and stopped over punishing J becuase at the end of the day he needs understanding and support and ways to learn how to cope with given situations that cause J the most distress. Since I have done that I am better equipt to sort things out, wether he has ASD or not it has given me a different persceptive and more positive for the both of us. I am sure he has ASD but it looks like it might take time for that to add to his other difficutlies. I am also learning that many children grow up with ASD and its only later they are diagnosed it, all those years where they must of been made to conform in world they didnt understand, all those years the parents put there head in there palms and said I just dont know what to do! Well not anymore, hope to see you very soon. JsMum Quote Share this post Link to post Share on other sites
LKS Report post Posted April 18, 2006 Hello Trance. Agree with everyone here. The not wanting to 'label' is very frustrating. Some wise person on this forum said it is sign-posts, not labels. If all of our children received the help and education they were entitled to, tailored to their own difficulties, straight away, well perhaps we wouldn't have to fight for the label. Quote Share this post Link to post Share on other sites
loulou Report post Posted April 18, 2006 Hi Trance, Welcome to the forum, it's a great place (i'm sure i would have cracked up without it!). I have a 7 year old son with ADHD and ASD. Like your son, i really noticed his ASD traits once he was medicated for his ADHD. Initially i thought it was a reaction to the drugs, but then it became clear that it just highlighted what was already there. Speaking to other parents, this is not uncommon. Speak to your GP and ask for a referral. Loulou x Quote Share this post Link to post Share on other sites
trance Report post Posted April 19, 2006 Have back from my paed and she agrees its worth looking into further, however I have to wait for an appointment from CAFS who she has referred me to so might be in for a long wait!! Quote Share this post Link to post Share on other sites
mr.ediebee Report post Posted April 20, 2006 said it is sign- Hi Everyone That is exactly what the Educational Psychologist said to us, and it is very true!! Mr.Ediebee Quote Share this post Link to post Share on other sites
