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Everything posted by TylersMum

  1. Hi Caroline, Tyler did this for about 2 years; drove me mental. It stopped when he grasped what each sentence meant and now we are able to say things to him we know he understands. Echolalis for me was the first step to conversation
  2. Klou, Understand your point. I earn a good salary - enough for us to buy a fairly large house and dh doesn't have to work so stays home with the kids, so finance isn't even part of the issue, which is fortunate. The issue really is just around 3 kids, 2 with ASD (potentially) !
  3. Thanks Viper. I'm not really asking what I should do, more just seeking alternative opinions really! I totally agree with you that normal is different for every family. The other thing that worries me is that I am neurotic at the best of times but know how much it would drive me mad to be watching for the first few years for any sign that he/she might be ASD/AS/PDD whatever. If we DO have another, by natural selection/medical selection/accident or otherwise, then it won't be for a few years anyway!
  4. I agree, there is something strange about it, and if Tyler were NT as Emma is, I wouldn't mind what sex the next one was, but I don't want to make our lives even harder by having another child with ASD and on the face of it, a girl would be less likely to be affected. Although it is by no means a guarantee.....we may have another boy naturally who is NT or a girl by selection who has ASD!
  5. Before I start, I expect this thread to be a little controversial but I genuinely want to bounce this off people who know what its like to be a parent to a child with ASD. In my opinion, theres no better place than this. Dh and I always wanted a big family. I'm the youngest of 14 and whilst we weren't quite THAT ambitious, we thought 3 or 4 would be perfect for us. Tyler was born and I immediately knew there would be another pretty quickly. It took 4 years to fall pregnant with Tyler so at only 5 months old, his baby sister Emma was conceived. We were delighted to be having another baby and ecstatic when we realised it was a girl and we would have one of each. Cut a long story short, we BOTH want another baby, possibly 2, but we are so worried about any difficulties that baby might have. With any pregnancy you worry that the baby will be OK, and there are far worse things than ASD, I know, BUT the fact still remains that we have one child with high functioning ASD. If we had another child are the odds much higher now of having another with ASD, potentially low functioning? If another baby came along by accident and was severely autistic, we would love that child as any parent would, but our lives are difficult, I work full time and we have 2 gorgeous kids. I don't think anyone on here would argue that raising a child with ASD is harder than raising a child without (and if anyone does think that, I'm sorry) so do we stick with 2 kids and consider ourselves blessed? (I know we are) There is another idea that has been battering round my brain. We have had 1 NT daughter and 1 ASD son and I know ASD is more common in boys than girls, so should we consider gender selection and ensure we have a girl? Told you it might be a bit controversial..........but I DO value your views. <'> <'> <'> <'>
  6. Thats so cool! Individual style has made some people a LOT of money!!!!! Reminds me of the time Tyler decided he wanted to wear Emmas (2 sizes too small) lilac blackberry stitch cardigan - very swish! Also reminds me of other incident, not related to ASD but equally amusing. My Dad had Alzheimers Disease and there were instances early on when you laughed or cried. One morning he came downstairs, chest puffed out, proud as you like, wearing my Mums new flowery cardigan, done up to the top and said "found a new pullover in my wardrobe, fits a treat" and wore it for the rest of the day. The mental image should clear when I explain my Mum is 4'11" and 7 stone, whilst Dad was 6'1" and about 13 stone. I laughed till I couldn't laugh anymore, not at him, but at the situation!
  7. Oh Viper, I don't know what to say <'> Poor Ben, and poor you. Not sure I've got an constructive advice to give you but I was terrified the same thing would happen when Tyler started school yesterday. Is there an option to 'befriend' one of the other kids outside of school so Ben might be more inclined to go there, if only to meet his new friend? Is there anything he particularly likes, a special toy or something that he could take with him, or maybe get him some school things (pencils etc) with his favourite character on, but make it clear he can only have them at school? These ideas are probably worthless but if Tyler had hated school then I may well have tried them. Could you stay with him for a while, maybe an hour, then leave him alone for an hour, then each day gradually reduce the time you are there? I know with my kids they would play up if I was there and within seconds of me leaving the room would be playing nicely and behaving beautifully. School ultimately makes them more independent, and they need that to grow as people. You are doing the right thing, taking him back there, but imagine its breaking your heart too. Keep your chin up, and do what you have to do. <'> <'> <'> <'> <'> <'> <'> <'> <'>
  8. He has got a School to Home book, and according to his teacher, he had a great day and is going horseriding next Thursday (and every Thurs thereafter) and swimming every Wednesday. He was WIRED this evening, couldn't keep still at trampolining!!!!!!
  9. Thanks thanks thanks!!! I am at work all day anyway and lasted until lunchtime. He was fine. He has just got home and dh rang to say he was home so I spoke to Tyler and he bowled me over - he said "Hello Mummy, theres a letter in my lunchbox for you" - I was gobsmacked!!!!! Glad day 1 is over!! Thanks for the support! <'> <'> <'> <'>
  10. DS started school this morning, got on the coach happily and waved Daddy goodbye. Dh said he didn't bat an eyelid, was happy to go with the escort, Pauline, and sat next to Aiden (anothger new boy starting today who is 9 months older) on the bus, started off by asking him his name - GREAT start! I am desperately trying to keep busy and NOT ring the school to see how he is. They said I could ring if I wanted to but hes only been there an hour and a half so I guess its a bit too soon.
  11. Thanks guys. I've been doing a bit of digging with the school he starts on Monday and the transport company, and there will be only 2 other kids on the coach with Tyler, both are in his class at his new school and both are similar ages. So, thinking that as he LOVES bouncy castles, might invite 3 or 4 from the new school plus a couple of current friends of the same age, that he sees regularly because their parents are our friends, if that makes sense! Total kids will be about 10 (manageable) plus castle will be c�30. Not too expensive either Praying for good weather............
  12. Thought I'd add what he did last night. I had been shopping and bought a tub of those soft cookies from sainburys that are freshly baked - he loves them and had 2 when I got in. Then I started to cook dinner and he wanted more so asked me by saying "Tyler cookie please Mummy" but I said no, so he asked Daddy, then my sister Maria, then finally he came back to me and said "Mummy, I NEED a cookie please". I had to give him another one after that impressive display of manipulation
  13. Scary indeed but I read in a newspaper a while ago that they are all multi millionaires now from doing that show - there's money is being silly........ The other australian kids gang, Hi-5 were voted number 1 TV show in Australia too. The mind boggles
  14. I need some help with ds birthday party. He LOVES parties, especially the cake and singing (and even more if there is a bouncy castle) but hates any games i.e. pass the parcel. He turns 5 on 26th September but has left pre-school so can't invite the handful of friends he had there, but doesn't start big school till Monday so I assume he won't have enough friends there to invite within 3 weeks. I want to make a big fuss for him but don't know whether to invite any new kids from school, kids from his ASD trampolining class or just our friends who have kids, and get a bouncy castle in the garden........!! I was also considering a party at the local soft play area, its huge and ds LOVES it there but it costs about �8 per child and again, who do I invite???!!!!!!!
  15. Working is tough. Dh is a stay at home dad and I go out to work because I eanr more - wish it was the other way round but its not
  16. Sorry Tyler is ASD Emma is NT
  17. Both my kids had reflux as babies. Tyler went blue when he was 2 weeks old because he 'refluxed' in his sleep, Emma just screamed for about 6 hours straight at the same age. I had powdered gaviscon on prescription for both of them and used to collect it in a huge carrier bag from the pharmacy - must have looked well dodgy! Did the trick though and neither of them needed it after they stopped having milk in bottles. Apparently it can be hereditary, hubby has a weak oesophagus (had to spell check that first!!!).
  18. Ok, opening up a can of worms here but tried Zelda on N64 a long time ago and could not understand it I know the theory but I much prefer logical sequence games, not ones where you have to look for things. Favourite ever is Mario Kart or Mario 64. Sad but true. Waiting for fallout..............
  19. Ditto what everyone else has said. Most of us on here have taken our kids through the diagnosis, which means we have to speak on their behalf, at least you can be very specific in response to any questions they may ask. More and more people are becoming aware of autism, a diagnosis might just make life easier for you. Try not to worry, I;m sure it will be fine - keep us posted. <'> <'> <'> <'>
  20. Its the days like that which make such a difference, isn't it? When we go anywhere, dd makes friends instantly, she doesn't care who they are, she asks complete strangers what their name is etc etc (a bit worrying sometimes!) but if Tyler makes a friend, it makes me swell with pride because I know how hard he finds it. Fingers crossed he makes a friend on Monday - first day at school.......
  21. How fabulous!! ds is also into trains - we took ds and dd (nt) on an old fashioned steam train on holiday and ds (nearly 5 years ASD) decided we were on 'Annie' and 'Clarabel' from Thomas the Tank Engine, and no-one could convince him otherwise Glad they had a good time - money well spent
  22. I've told my friend about this site but they are very raw still. They only told me about his dx because I told them about Tyler first. They really haven't come to terms with it yet. The other sad thing is that this boy will be going to the same senior school as I went to, and if you are different in any way at all, you go through hell. I was lucky is some respects because I'm quite loud and confident so one fight stopped anyone else picking on me (sad but true) but her ds will have a terrible time, I just know it. One thing is for sure, my ds will NOT be attending this particular school. On a separate note, I have just been invited to a support group in Swindon for parents of children with AS, ASD and PDD. Its run from members houses once a month during term time, which I think is great - will keep everyone posted on how it goes.
  23. Wicked good letter Annie x My ds (aged 4) has ASD but a friend of mine, her son is 11 and has only been diagnosed with AS in the last 6 months, and gets an unbelievable TWENTY MINUTES extra help in the classroom per day. So thats just about long enough to take off their coat, sit down, open and book then be getting ready to leave again - probably makes the situation worse, not better. Well done for making them listen
  24. Madmooch, Mine are too - if you find they are, can you let me know?
  25. dd (nt) is 3 now and won the easter card competition at preschool that both go to. I was so proud Well done to R!
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