trekster

Hello and Welcome i hope you manage to get the diagnosis and support your son needs. i had to wait until i was 16 before i got diagnosed. Now im living in my own place in a supported housing scheme. Its good but not as autistic friendly as i would like it to be. i hope to help the housing association to learn more about autism and how verbal autism such as mine often hides difficulties they cannot see. Alexis

Welcome im an aspie

That reminds me i must investigate the colorimeter contact lenses. i was hoping my DSA would pay for them, they said yes but i didn't manage it last year.

Hello i was wondering if we could have local areas of the UK to discuss things like "local services" meeting up with each other, social groups, parents groups etc. Is this possible? alexis

Hello I'm easily angered at the moment. In my case it's my depression and at times my inability to get the words out properly. Not being understood causes a lot of anger in me. Benzoates also cause problems with me as well. Sudden changes i cannot understand or control or peoples reactions to my words or behaviour cause a lot of angry reactions in me. i wish i could cry when im upset instead of shouting and raging! i try and channel my anger into giving talks and probably sounded a bit angry at the beginning of my advocacy talk recently. Also acting out my angry situations with my playmobils in front of understanding support people helps because we both end up finding the situation hilarious. Getting angry due to being rushed is because it causes panic in us. We then cant remember what we're doing or meant to be doing and our brain freezes. The last distraction that precipitated this brain freeze ends up getting the blame. Emotional control and regulation is an executive function that autistics often have problems with. If i laugh for example i really laugh rarely is it a chuckle. Who rushes him? Wouldn't 5 or 10 minute warnings help him transition to the next activity? what about social stories about what good friends are and why we need to share our friends. Alexis

Welcome i was 30 recently and diagnosed 14 years ago. i am still getting used to it and discovering more about myself and the world today. Alexis

Hi my son 12 is not great at football but he likes it, only problem is he gets very angry when rules are not followed. I know the school still used to encourage him to play and they must hope that in time he would adjust or accept that it does not always go his way or the the rules followed whistle.gif I think the course is a great idea and maybe once your son goes he will enjoy it. Comments can be hurtful but not always true treksters reply How about your son does the referring of the match? Or he is helped to find some friends that will follow the rules.

Is there some alternative activity he can do with his friends? Have you tried exploring peer awareness in the class to try and help him? It was mentioned in this edition of Communication magazine. It was mentioned at our local parents group (im on the committee and the only non parent. Once kids began to understand the young lads autism a lot changed at least in the classroom for him. One friend phoned him up the night before to say he couldnt go to school the next day so his young asperger friend wouldnt worry. Now that is progress! She should meet me and then say whether my autism has got worse as ive gotten older! i am really offended by her attitude. Since when is living in my own place unsupervised with 10 hours support a week "autism getting worse"? Also im a university graduate as well and ive got one year and a bit left on my dissertation. Apart from peer awareness or trying and find a buddy for your son that can help with the football. Yes the differences can become more pronounced but it depends on the child and whether they become a "social imitator of other positive social skills" or end up with a reactive depression to being different. i have been through those stages and also "escaped into imagination" and "arrogance and denial" (the later only happens during a meltdown). HTH Alexis

Agreed Billy X. At the moment i am suffering with my asperger syndrome. A few months later i could be any other aspie getting on with life. Alexis

Hello i am a member of 2 php type bulletin boards. In fact im a moderator and nearly a moderator on them both. Every time i click on a reply to subject i get the login screen. i fill in the details click submit and get offered a chance to return to the topic. Problem is it goes back to a blank login screen. i am unable to login into either site im on and im worried as im a volunteer on one of them and moderator on the other. Ive texted the techie on the moderator site but no reply yet. Any idea what to do or whats causing this? Alexis

Im reading a number of books at the moment.... my life in my hands by alison lapper a stitch in time by Andrew Robinson (DS9 book) later on i will have 8 autism books to read for my CB module eeefk

i feel the same, it defeats the object of libraries. If you can get to the birkenhead tunnel on saturdays (wirral side) i know of an adult asperger social group your 19 year old might want to join? alexis

We saw a spanish band, a bjork soundalike, a reggae/rap band and a few others. They are breaking out onto the scene so to speak so im guessing they were local bristol bands. Alexis

hello imposter i forgot to mention my employment history all but one job has been unpaid and ive had various issues getting and keeping voluntary work. i dont think im dysgraphic but when ive got loads of ideas i just stream them out. They are normally worries. However there are things that would prevent me from doing this so i dont think i have a compulsion to write. Pleased you decided to face your addictions, i know how hard that can be with giving up the gluten and milk. Ah so you are interested in is a life of adventure? lol My fav sci fi comedy is red dwarf. im also a trekkie fan hence the user name. i cant really get my head around literature, i think my english teacher put me off that subject. However i did like jane austen recreations (also lost in austen) on tv. im a big university challenge fan and like to see if i can get a) questions right the others didnt and more questions right than one of the teams. You could say it was easier for me since i can pick and choose what to answer but i honestly think of an answer to all the questions. i think of it as a way to keep my mind active when i cannot get out. Also to me it is fun. The only indie music im into Afaik is Keane. i saw them in liverpool with my bro in March. ive had rabbits in the past :robbie: (love that smiley) but we had to get rid of them since my parents were unable to teach me what they meant by "look after the rabbits". By gaydar do you mean you try and chat up gay fellas by mistake? ive done this as well. My bi male aspie mate is trying to get a date as well. i loved your last sentence. "I basically so much want to be in the world and to experience it all, " im the same i like a challenge! Alexis

Thats cool its just they deny that their behaviour can and how it affects other people. To them other people have the problem not them. They wont accept any help whatsoever and think people have to change for them. During my meltdown/rage moments i am like this but i try to emulate others social skills or daydream to cope with my AS. Alexis

Just because it has never happened before doesnt mean its very clear. Also why would i go to a forum if i didnt know it existed? i dont check all the forums to find out what they do. It might be clear to you (or others just didnt say what they thought like i do) but it doesnt mean it cannot be taken literally by someone else. How much time will it take to get to know you folk? i have taken some time but sometimes my brain fog means i dont recognise someones post even with their avartar next to their name. i havent heard of any other smilies being used to indicate jokes. As for the asking if it is a joke that isnt easy if it has offended someone. Your original post stated: A 'possibility for some' and complete self-denial are entirely different things. I didn't read Bid's post as saying no-one suffers (in fact I think she was actively saying it was up to individuals to decide on their believes - prerogative means choice).

That was my point as well, thanks for putting it more clearly as i did. Alexis

I understand why we had the change and I also fully accept that part of me not liking it is simply not liking change. I don't think there should be a rule as such to introduce yourself but sometimes it is helpful to know who you are addressing - if they don't tell you how old their kids are (baby/child/teenager/adult) and then get stroppy if the advice doesn't fit, that's a bit unfair, if you don't know if they have a dx (don't start the 'well everyone should be treated the same...') you can't offer tailored advice on services (some of which will require a formal dx) etc. Alexis' comments It wasnt the issue of not liking change though, it was the fact it wasnt literal. All the other forums are literal eg behaviour, family, education are all clear to me as they say exactly whats on the tin. if there isnt a rule to introduce myself then generally i dont introduce myself since its hard to do this without giving the wrong impression. i do treat everyone as my equal and i dont have an issue with that. i do also make reasonable adjustments based on disability and autism diagnosed or not happens to be one of those cases. Sounds good and the "please introduce yourself and tell us about yourself here" is a good idea. We have a "rants and raves" thread for bad autistic days, provided we dont rant at or about people on that list it is permitted.

Not sure how to edit my posts? This is difficult knowing what to say. i am about 30 years old and i have a brother 19 (i think hes ND) and a sister 25 (was ND). Our family know mums aspergers (but she wont accept it). My sister is engaged and has a 2.5 year old son (appears NT atm). i have fallen arches, fibromyalgia (caused by fallen arches), aspergers, IBS, relapsing remitting depression and anxiety (mostly remitting atm), insomnia, fear of not being believed by people (so i appear aggressive when i speak), very mild longsightedness, raynauds, larger left atrium (so blood oxygenates quicker), mild scotopic sensitivity syndrome, overbite and my eczema in remission. Those are diagnosed but the undiagnosed ones are OCD (hoarding/spending and fear of not being believed), acrophobia (height fear), moderate claustrophobia, PTSD (95% recovered), leaky gut, addiction to milk and gluten, allergies to benzoates and strawberries, right hypermobile ankle, dyslexia and dyspraxia. i recovered from ME, self harm and migraines sometime ago. i got confirmed as not having hypochondria a few months ago. My hobbies include computers, disability rights (especially autism related ones), star trek, medical dramas, playmobil, cross stitching, stamp collecting, Liverpool fc, various types of music, families and learning about autism and others disabilities. A red dwarf mate of mine told me about this site and im pleased to be in an autistic friendly environment. What do you like to do? Alexis

Hello i am Alexis and i am an aspie. i have been told by other members on this site that i should introduce myself. Due to this section being called "just arrived" it reminded me of going on holiday (instead of "new member") i will say more about myself at a later date, out to see a gig in bristol tonight. Alexis

Didnt see any lol or joke or anything to indicate that was the case so it wasnt obvious. Good idea something to consider "please note this is not a site for political campaigning and members who use it for this sole purpose will be asked to leave".

Ah in that case i entirely agree with you, those folk should be redirected to a political/campaigning type of site. Alexis

Read the post again please, it says "those who dont think aspergers can be suffers" are in denial ie those who are closed to the idea that it is a possibility for some. i prefer not to be accused of having bad manners or not being friendly and i resent that implication. It wasnt clear what it meant by "just arrived" if it had mentioned the term "new member" i would have immediately known to post there. Alexis

i guess you have tried standard and non standard treatments for his depression? 5htp worked for me as did going gluten and dairy free. i have been there in fact i had depression from age 10 to only recently. i havent self harmed since feb 2005 and i know how hard the urge is to just give up. Curiosity of whats going to happen next and my nephew keep me going. i tend to get depressed during the summer and around xmas but this is temporary and i hope i am getting better at dealing with it these days. i wish your son and all ACs with associated mental health conditions good luck on their journey of recovery. Personally i think those that dont think aspergers can be suffers are in complete denial of how their autism really affects them. It's not always another persons fault or failing when things go wrong but some aspergers are too in denial to accept this. Alexis

Are all members who join this site aware of that rule at the time of joining?