claire33

Hi all Just wanted to get something off my chest and maybe get some very much appreciated advice should anyone want to give any!!! Well as some of you may be aware from some of my earlier posts my k started Attending support centre in another scholl after xmas which was going really well had a few teething problems but, overall he really enjoys it and says he likes his new school better than his old school and wishes he could go there all the time. However k went swimming with his new school yesterday (which he throughtly enjoyed) and whilst he was there i went to see his head mistress k had told me the previous evening about his teachers son in his usuak school hitting him so i went to have a word. When k came out of school he told me again of this other boy hitting him well a you can imagine i was fuming especially as i had just been to the school, so when we arrived home i called the school to speak to her again she was in a meeting (what a surprise) she was ment to cll me back and im still waitng. Now k has a home school diary from the new school he attends, and they report what he has done hat day and how he has behaved and i do the same, so i decided to have a look as usual. The teacher from his usual school had wrote a comment in it which said : K ad a bad afternoon was hitting and pushing in playground and lst his playground point. In classroo k refused to stop shouting and making noises, he then refused to put on his apron for painting, he was sent to the head mistress and promised to be good the rest of the afternoon. When i read this i was absolutely outraged, for a start it was me who had been to the school complaining about her son and as for the shouting and making noises i wrote a comment the day before saying that i didnt think he was coping very well with the changes and the fact that they aren't putting any of the stratergies in place that are at the support centre which he finds a real help ie PECS etc. The appron thing i thought wasn't dealt with properly at all they never even thought to ask why he didnt want to put it on, i dont think they have any idea how to deal with a child with k's problems more understanding and patience is all it would of took there just not interested and cant be bothered, i reall want to go to tha school and throttle her Other than doing this can anyone else suggest what i might do????? I seem to go over and over thye same things all the time Help Please

Hi My k has been on both equesym and ritalin neither of which made a great difference however hes now on dexamfetamine sulphate and they seem to be doing the trick.

Hi stressedmumto2 Hes 6 yrs old and yes its a specialist suppoort centre he'll only attend on a morning then back to mainstream after lunch

Hi all Just wanted to let you know ive tryed explaining the best i can to k about him attending a new school on a morning after xmas, and to be quite honest it went well. Where going to visit on wednesday so ill let you know how it goes!!!!! i actually think he is quite looking forward to it and is telling anyone who will listen. So im really pleased i think its more me who is worrying but time will tell

v1971 exactly thats how i feel they are absolutely useless, i actually did expect them to say he would need help from them, which i knowm he does however apparently i'm wrong

Hi ultramum I filled in a questionnaire about 6 mths ago sensory profile it was called whats it all about i found some of the questions really odd, however some of them i hadnt noticed he dpne before i had this to fill in. Still havent heard anything back about it though

Hi mel i feel like they are useless too. As you say about pencil grip and holding cutlery i have to cut up his food still i wouldnt trust him with a knife you say your lads 13 now god u must find it hard, is it the case with you aswell that you tell him how to do it each time he eats yet it still has to be repeated the following meal????

Hi butterfingersbimbo Sorry didnt explain myself there very well What i meant was you start to see more things i never noticed before , when he was jumping around all the time

Hi all What does anyone else think my k has been on meds for adhd for approx7 mths and its only since then that others problems have started to show up. Has anyone else found this????????

Hi all i think about it constantly, more so when i see other kids having a conversation and playing outside together, i think if you let it could quite easily drive you insane. What i would give to have a conversation without having to explain what i mean all the time or just nip out to the shop without pre warning him 5 times. I would really like something or someone to blame for it so i could take out my frustrations on them even though thats not going to happen. I think i will always feel this way as long as my boy has difficultys which i cant do anything about. i think the hardest thing for me is accepting it and im not ready to do that yet.

Hi reuby what school does your son go to ? My k was doing something at his school called pindoras box too maybe there at the same one!!

Hi reuby So im not alone then my k wont stop using his fingers either .the same as soon as you turn away hes at it again, saying that i dont give him a knife he'd probably put his eye out or something or hurt some one else. Saying that he does struggle with cutlery anyway though

Hi mark My k does this alot too he will come out with some odd things sometimes

Hi jsmum/ultramum Thanx for that i wasnt to sure what thay actually did however i do feel that if hes having these difficultys they cant just right him off and hope it goes away i know i cant. i do feel like alot of the assesments k has had are just bits of paper with things wrote on which i have kept but get no help with the things they are describing its about time they did!!!

Hi All Just wanted your opinion, what is it that an occupational therapist does???? As k has had an assesment and although she is saying that he is below well below average for everything he was tested on she is saying that she doesnt feel that any further imput from OT will be necessary as she feels it is more down to his development He has problems with large/fine motor skills ie cant hold pencil, knife and fork properly etc he is very clumsy and although hes almost 7 cant ride a bike. What is it they actually do???? should it not be the case if he is having these problems there should be imput from her?????

Hi dooday My k has trouble finding the words he needs it mostly ends up with him saying or nothing it doesnt matter, getting something out of him is a real struggle, and he makes up his own words, if i asked him something like why he wants something or why does he do that he says costoo it used to drive me round the bend because i didnt know what it meant i've worked out now its because he wants to or doesnt want to Do any of yours make up there own words?????

Hi Keepng me sane Just wanted to say i sympathise with you deeply, as i know how hard it can be. My son k is 6 now and from being really small he used to do all the things you have just mentioned, however with a few things added in. He used to be an absolute nightmare, tantrums were constant and from what i could tell for no reason most of the time and to be honest because i didnt know anything about the problems he had (below) at that time i took it as it just being part of his personality. He developed really slowly not crawling at all didnt walk till about 2yr 4 mths and his speech really worried me although when it did start it all came at once. He didnt and still doesnt interact with others well he makes up his own words for things and he was fascinated with thomas the tank engine to the point were the track stayed built up on my living room floor for approx 8 mth if it was moved all hell broke loose. taking him out was challenging to say the least shouting ,screaming ,running away not to mention the tantrums. He has very limited eye contact and has done all the time, if he looks at you its only when hes asked and its only maybe for about 10 secs if im lucky. He shys away from people, and spends his time alone in the playground reinacting films and computer games whilst waving around his hands (thats when there not in his mouth) and hes not good with change. I dont know if this was what you were after hopefully its helped luv claire

Hi mark just wanted to say that what you have just said above has gave me quite an insight into how my k must feel (son age 6 yrs) although it was short you made a really good point which has helped me to understand that little bit more. my k has ADHD and is waiting asses asd along with other problems yet because hes only 6 i find it hard to understand what he must go through even thoogh ive looked up so many things to do with as and other things, as hes not very good at holding a conversation or explaining things to me most of the time i have to guess which i find most of the time i am usually wrong , however i suppose you learn from your mistakes so anyway just wanted to say thanx!!!

Hi Kathryn Yes hes going to be going everyday but just till lunch time then back to his usual school, for the afternoon. Just wish they had given him a placement so hes there all the time but i suppose its a step in the right direction, ill just have to see what happens.

Hi All As you will no if you have read my last post k has been offered a place at the learning suppoort centre I was just wondering if anyone could tell me what differences theres is to a mainstream school appart from smaller group sizes and one on one tuition???????? what kind of things do they actually do???? Im visiting next week but just wanted a bit of an insight!!! Oh and there are alot if things i want to ask when i visit but what kind of things do you think i should be asking because im not to sure?????? Your opinions would be really appreciated!!!!

Hi All Just thought id share this with everyone. Got a letter yesterday saying that k has been offered a place at the learning support centre it doesnt start till after the christmas and hes only there on a morning and then back into mainstream but at least he might get some of the help he needs now. I'm going with k next week to visit before he has to start going, im looking forward to seeing what happens and what they actually do thats different. A step in the right direction i think????

Thanx paula its good to know it doesnt last forever it just seems like it at the minute though

Hi all I know ive probably said this before but, I just keep thinking what if the answers i get are'nt the answers i want????? if you know what i mean I just dont seem to be getting any further forward with getting a dx for k except his adhd, i keep thinking to myself what if im wrong and he doesnt have asd, i was positive he did but now im not so sure!!!!! I have looked it up in so many places and i know im not a doctor, but i can see alot of the traits of aspergers in him, or i thought i could i'm not sure if im just convincing myself??????? What does anyone think, i am really confused and dont know what to do next????

Hi All Just wanted to let you know what happened with the boys club k went to on wednesday, on his lunch break in school. Well i dont know if he enjoyed it or not he just hasnt mentioned it, however on wednesday night i couldn't get him to bed at all had real fight. Then on the morning he wasn't putting his uniform on for love nor money it took 40 mins which don't get me wrong im used to that but i had just made him some cards were he does the task then pops it in the box and he was doing this really well until like i say wednesday. Anyway homelink worker phoned on thursday to see how he'd been and i told her what had happened, she just said "well he seemed to like it but i see what you mean about him focusing on 1 thing" So after that i thought well i'll keep him at it as if he gets used to it you never know!!! However she phoned today and said that it wont be on this week as she has to be out of the school this wednesday did i think she should tell k i would i like to Iam so angry i knew it was only till xmas but i did stress that he didn't cope with change well and now she goes and says this I might aswell of been talking to the plant for an hour for all the( "�$$$%$$)swear word good it done Why wont they listen to me???????

Hi stephanie How do you coax them out scooby doo drives me insane 3 yrs now