ellisisamazing

Hi Bren Welcome! Lisa x

Hello Kel, Welcome! I hope you find some answers and Good Luck getting a dx! Tell that Doc what for! Lisa xx

Pearl, I couldn't think of a better place to be to get some support <'> .......and a drinking problem! I hope Sarah finds some solutions and answers here! Lisa xx

PreciousAlfie! Hi, I am so dozy at times! It's Lisa from DS, I sent you the PM about this place, you'd posted about Alfie in the DS Aspie/ASD thread! Hope you are ok, and I'm so glad you got yourself in here! <'> Welcome Again! If you need a chat, you know where I am! Lisa xx

Good Luck and Welcome!

Thanks Pearl! That's my fave piccy of Ellis....cheeky, cute and the most gawjussest boy I've ever seen!

Hello Tanya! <'>

Pathetically grateful.....hahahahahahaha! Good Lord Woman!

Hev, That's brilliant! I am so pleased for you....You are obviously a lovely mum and it's so nice to hear that you and Steve are getting along so well and that he is getting on with his changes in a positive way.... See you've braved the storm and now it's your turn for a nice bit of calm! Good Work Mrs! <'> Lisa x

I love that, Pearl! Ellis is still riding every tuesday and he love its! I would love to hear him talk so much! He is babbling such a lot, but I haven't clue what it's about!

Thanks for all the replies!

Hi Jadensmum, Yep, I will look forward that and would love to chat more with you...thanks! Lisa x

Hi Lynne, El is quite similar as your Lynden then, no words at all! I once thought he called me Daddy (I must have been having a rough day!), but as time goes on and he makes more grunts and babbles I am more convinced it was something that sounds like Daddy and maybe I was living in hope too much (he still makes this particular sound and it varies in his tone so it's more soundlike than wordlike!).....he is quite noisy and 'sings' alot, very tuneful, repetitive and I haven't clue what it means! But very entertaining, accompanied by totally rhythmless dad dancing!

Ellis is 6 in July and still non verbal, also still in nappies and using a baby bottle. Just curious to know if any of you are parents to a 'gobbledeegooker'? ( I mean that phrase as a term of endearment, before I upset anybody!) Also if your child was nv and is now verbal, when did they start chattering? Ellis had several words up to the 18 month point which disappeared just after his MMR vaccination (I am not blaming that either, but you never know!)

Excellent, Science Geek! My three year old DD always says that Ellis is 'OZZYTISTIC'.......I always picture Ozzy Osbourne shouting,"SHAAAAAAAAAAARRRRONNNNNNNNNNN!!!!!"

Oooh,ok thanks Tally.....I knew about Hans but I just hadn't thought of it being anglocised! My friends son has AS and he likes to tell anybody who will listen that he has ARRSE BURGERS, cue much hilarity from a teenage aspie!

Watching the new season of America's Next Top Model this evening, they have a beautiful contestant called Heather Kuzmich with AS featured, but she and the others all stated she has AsBergers Syndrome!?!?! Just confused as to why is it pronounced differently? Oh, and some of them girls are soooo rude, one of them said Heather was on a "three second delay" when it came to taking things in!!! And all in front of the poor girl who was obviously having a hard time adjusting....why are people soooo nasty?!

Yep, that's exactly what I mean, but couldn't say so eloquently! I am probably gonna have a meltdown of my own tonight....Hubby better run for cover!

I just think they shouldn't make assumptions especially when they are aware of the stresses that you already have! What are they trying to achieve? It just ends up another worry for you to deal with! Lisa xx

Hev, Sorry for my rant above on your thread! We have been stuck in the house since Friday and I am just a bit fraught! Lisa xx

Should your nursery be diagnosing?! I would see what your Son's consultant says first,I had do gooders telling me and they were way off the mark! Lisa xx

Hev, I know exactly how you feel....we are having a bad time right now with El, I feel as though we have gone back in time, to a really bad place. Romy was invited to a party a couple of weeks ago and it is actually taking place right now. We have had a dreadful weekend full of El weeping, screaming,meltdowns, not eating and dragging a blanket around everywhere and barely any sleep! Today I have kept El at home and Ro only went into nursery after lunch as her sleep is also affected, I was planning on letting her miss the party (it is at a fun factory type thing on the banks of the River Mersey),as I was worried El would attract sympathisers and the usual stares....I can do without them right now! But I then decided I can't let El's SN's always rule us and I have let her go with her classmate and her Mum, it's the first time I've let a non relative take her anywhere without me or DH and I am nervous as anything but I can't let her miss out....I am fed up of having to miss out socially! I love him so much, but sometimes I feel like screaming and I crave a little 'normality'...I hate how ASD rules us! I know he can't help it, but why is everything so hard?!

Rocketgob <'> It's so bliddy hard sometimes, we suffer PERMANENTLY with the sleep issues......and you're right it affects the whole family! As a result we constantly play musical beds in our house in the hope of landing somewhere and catching a few minutes of shut eye! Our 3 year old DS has suffered terribly because of El's nightime activities and she is now also a terrible sleeper! My DH is also suffering Long Term Depression and he works very long hours, so if he doesn't get a decent sleep, he ends up trying to start an argument with me about it.....You'd think I was a fan of no sleep the way he sees it! We use Melatonin and El has been prescribed that for three years, but he can only take it for around a week then he builds up an immunity to it and then it stops working again, so we stop that and suffer again for a while! We have tried soooo much sleep meds, but they simply don't work on our boy...he basically has tooo much natural energy! Even his consultant was shocked, she put him on a pre-op sedative once on quite a high dosage and assured me he would succumb to it quickly.......That was a long night, he eventually dosed off about 4am! I understand exactly how you feel....it's a brain killer! And you're right...writing it down makes you feel better! Good Luck...I will think of you in the wee small hours! Lisa xx

Sallya <'> Sometimes you have to let it out....you'll feel better for it! Lisa xx

Your daughter is NORMAL, it's others who have the issues/problems! Good for you! <'>