Jump to content

pleasehelp

Members
  • Content Count

    42
  • Joined

  • Last visited

Everything posted by pleasehelp

  1. Evening Primrose Oil!!!! I am AS and have temper/anger management issues at times but without fail they are at their absolute WORST when I'm suffering with PMS (its recognised as a Syndrome now hence the S not the T for tension). Evening Primrose Oil has been my saving grace without shadow of a doubt and I would recommend it to any woman ASD or not who has these type of problems if there appears to be any kind of link to hormones at all. The change in me has been unbelievable-I no longer feel like my blood is boiling for no apparent reason for a week solid each month and like Im an erupting volcano if something does upset me, so long as I remember to keep the EPO in stock and take it as soon as I get any feelings of tetchiness, the problems are kept to a minimum.
  2. Hiya, yes we can really appreciate what people are saying about the trauma of holidays-our oldest is dx but youngest not. Oldest while a handful LOVEs the holiday experience but as for youngest well we can't get him to go NEAR the beach because he's so terrified of the sea amongst other things I have a new(ish) bf who has 2 kids as well-oldest of which who also has his 'set of difficulties' and which I have been trying to help bf to understand and get to the bottom of (I think theres every chance he's an aspie but dont know him well enough to make proper judgements yet). We are all going to Blackpool for the day on Saturday so it's going to be complete chaos but we'll do our best to enjoy ourselves no matter what. Klou if you are looking for a nice family oriented holiday that involves going on a ferry you could do a LOT worse than the Isle of Wight-it's lovely and so many different places to go and things to do there that'll keep the kids entertained so you wouldnt find yourselves getting bored or fed up too readily. Took oldest ds when he was only 2 and he absolutely loved it as did we-I can thoroughly recommend it
  3. Hi Tally. Sadly, reporting things to the police round here as with so many other areas does very little as they just arent interested in doing anything. The estate where I think this lad came from is very rough and there are LOTs of them known to the police but they just get away with this kind of thing all the time. A friend of mine had a son who she had to withdraw from the compo some of them attend because he was stabbed and no action was taken-it's like the police are too scared to do anything even when they're handed names addresses and all the evidence you could ever need on a plate I'm really glad we did get the bike back but at the same time really upset because now my boys confidence which he'd taken so long to gain has now been shattered again and he's too afraid to leave the confines of our garden-probably not such a bad thing in light of todays events but a truly sad indictment of where society is going if a 10 yr old boy with a disability cant play outside his own home in safety too.
  4. I'm still fuming as I type this because of what's just happened which just goes to reitterate what has been discussed before about some of our kids and just how vulnerable they really are. Ironically I only replied to a similar posting on the pitfalls of letting them out to play just yesterday and today this R goes out to play only in our street and the next one which is literally only a few yards away through an entryway and where I like to think I can keep a reasonably close eye on him. Less than an hour ago, he came running crying and screaming in in a real state of distress because he'd fallen off his bike and as he'd done so some *!$!** several years his senior and a good foot taller had run up, stolen the bike and ridden off on it up the main road. Well I'm sorry to say I just saw red, bundled both kids in car, youngest with nothing on his feet and screaming in protest at the fact and not before falling backwards unceremoniously into huge bush by my front door ripping my leg to shreds for all neighbours to stare agog at because I guess I must have looked like a woman possessed (s'ppose I was really). Raced up said main road in direction of nearest 'roughneck estate' where I thought the little sh*t would be headed but no sign so i went sort of further than i thought he could have reached by a block or so before doubling back to try and catch the culprit. Lo and behold we spotted the ~deep breathe~ 'person' on the bike peddling like the clappers towards the estate so I spun car round caught him up and cut him up-believe me at this point I did not give a ~bleep~ if I knocked him off. He jumped off the bike and ran back up the road and down some entries so I still chased him in the car-I shouted at 2 lads walking down the street to watch the bike and think they could gather what was going on and they gave me a . Well i didnt catch him but think i scared the living cr*p out of him chasing him Sweeney style down the entries in my car so I dont think he'll be stupid enough to show his face round here again and gotta say I was relieved the 2 lads I asked to watch the bike hadnt decided to run off other way with it I'm so glad we got Rs bike back and if I hadnt raced out after the toerag like a looney doubt very much if we would have, but it just goes to show how quickly these things can happen. I think it could probably have happened just as easily whether R had been ASD or not, but cant help thinking that he just 'looks' like an easy target before he even opens his mouth or anything else so think it made it more of a likelihood. Until now R has enjoyed going to the really close by convenience shop as an errand and because I think it helps him learn to do these things for himself and up until today every time I asked him to go he would pester me to let him take his bike but I always said no in case it got pinched-dont think he'll pester any more poor lad Its just made me so annoyed that things like this can happen so easily to our kids and in a big way I am actually glad I didnt get hold of the ~bleep~ that took it because I'd probably be in a lot of trouble myself by now if I had because I hate to think what I'd have done to him, totally enraged as I was by the whole thing Lots of deep breathing and a big cup of tea in order to try an calm down a bit-sorry to ramble but had to share folks, Caz
  5. Hi Blue, I'm in a similar position only not quite so drastic. I do let my oldest dx play out but only very close to home within calling in and referreeing distance to try to stop things getting out of hand. I do know not everyone has had fantastic experiences of social services input but it has to be worth a try to maybe get him a trained 'play partner' who has experience of his difficulties or some other kind of help to allow him to do some activities during holidays and things at least. The service you get will vary from place to place but I'm at the point of asking for help during holidays because altho my oldest is at residential I still cant take on a proper job because we are still over a barrel during holidays in particular-he's not the sort of child you could expect the average childminder to cope with whatsoever you see-the point is they should be able to provide you with some help even if its only some respite tho i realise not nearly enough is being offered to enough families in our situations if we dont ask we definitely wont get.
  6. Hiya guys-in answer to the original question...is there really any doubt about it??? I dont think there can be lol. What I REALLY love and admire about Eugene tho' is that inspite of other people at times quite obvs taking the pee out of him and the fact he does seem to be well aware of his differences, he is so totally comfortable with himself and who he is and makes no apology for it-people can take him as he is or lump it if they dont like it. Fair play to him I say PS I've still got one and its gettin worse as I get older lol
  7. Umm, well I'm on the Spectrum and about as tomboyish as ever a girl could have been. I didnt do dollies and pink-preferred to catch newts and climb trees every time lol On that note as an adolescent, the fact the punk scene was experiencing a revival was PERFECT for me cos I could be as different, strange and eccentric as I liked without so much as turning a hair amongst my mates cos in hindsight most of us were society 'misfits' of one sort or another anyways so was accepted more readily by miles and being girly just aint punk rock is it
  8. Hi folks i thought i should report on our experiences with Cranial Osteopathy so far. The first and most important thing i feel i should point out is that Cranial Osteopathy should NOT be confused with any other treatments such as Reiki which are not hands on because they are something quite different indeed. Osteopathy actually has to be hands on because it involves the physical manipulation of the seperate parts of the skull to alleviate birth stresses and areas causing pressure on the brain. As mentioned in another posting my son appeared to be experiencing what could only be described as discomfort when he lay down and at certain other times too from a very early age coupled with quite severe speech, language and cognitive delays. He is now 5 so we are at the higher end of the 'window of opportunity' to gain the maximum benefit from this therapy but went for broke and got him booked in. He has so far had 5 treatments each lasting around 20 minutes-I was not expecting to see a huge amount of change in my son being the eternal sceptic that i am but have got to say I have been nothing short of overwhelmed by the change in my son in such a very short space of time. He has acquired verbal and communicative skills he just did not have before and seems to be able to make much better sense of the world around him already after a very short space of time. He now increasingly makes appropriate verbal responses and can even comment on situations 'off his own bat' now which is a welcome replacement for the very challenging range of behavioural outbursts which previously constituted his main means of expression and communication especially emotional response. A fantastic example: sitting at dinner table I asked him last week to have a go at eating some of his (still quite limited in range) dinner. Fully expecting the usual array of noises, leaping off chair and general antics which constituted anything but a 'normal' verbal response, instead a quite indignant little voice pipes up '~sigh~I'm TRYING to mummy' :D:D That might sound quite a cheeky thing to say by any ordinary parents standards, but in our case it was nothing short of a complete breakthrough for K because there's no way he could've even found the words or expression that way as short a time ago as a couple of months. I realise that this therapy probably won't solve all his problems and I am prepared for the fact he may still have some lifelong differences/difficulties but I cannot dispute the fact that he has gained such huge benefit from it and that it cannot be dismissed as coincidence or development that would have happpened anyway. I also understand that this particular therapy won't benefit all children displaying autistic traits but for those who do fit the 'criteria' for benefitting I would say to parents that you have very little to lose and the potential for so much to gain from giving it a try.
  9. Hi, my son who is STILL undiagnosed went through the exact same thing from a VERY early age. I can only urge any parent of a young toddler experiencing this to at the very least explore Cranial Osteopathy. We are almost at the end of a short run of uninvasive and inexpensive treatments which are having very definite and positive effects certainly on K's speech and language and a very big indicator that it may benefit them is the headbanging behaviour. Certainly in our case I am sure that it was not merely down to tantrums because it started at such an early age but a very definite case that he seemed to be in discomfort particularly when he lay down to sleep at night but also it seems at other times too. This link which i think appears elsewhere on this forum too will help explain the thinking behind the treatment and I for one having been through the upset of seeing my own son go through this can very definitely recommend it as an avenue to at least explore further. Hope this is helpful to you: Cranial Osteopathy
  10. Poor James lol. For those who aren't sure what it means, well it's a therapy where certain chemicals are administered which allow heavy metals to pass through the blood/brain barrier attached ionically to the administered chemicals and be excreted where they could not have been otherwise apparently. It is claimed that the poisoning effects of the heavy metals therefore will then be alleviated. Negative points I've spotted so far that concern me are the claim that there is risk of kidney damage from all this stuff suddenly being passed through them and also that other essential trace elements are forced to be excreted also and it is not clear whether replacing them with supplements are enough. I have only really read negatives/doubting reports over it's efficacy in the alleviation of arterial plaque and some coronary conditions but I have not read anything as yet which disputes its efficacy in removing heavy metals-if anyone's got an article/research to post to this effect it would be good to read up some more.
  11. It's good to read everyones opinions regarding this whether for or against. The more information from both points of view posted here especially with links for people to look at is all good because it gives a balanced array of information for people to make an informed choice. I do agree though that as with anything like this when looking at info on the net especially with regards to 'alternative' therapies for want of a better expression that it is just as important to evaluate the quality and credibility of the source of the info as much as the info itself.
  12. Minxygal, I think you'll find the blob of paint isn't so the farmer knows which sheep are his but which ones have been, err, 'graffitied' by the ram whos belly the paintblobber is strapped too I can always rely on my kids to be the first to let me know if I'm having a bad hair day or my bum looks fat in something. In fact the youngest (5) now thinks it's SUPER funny to call me 'Bummy' and usually over and over again really loud round the frozen food aisles at Asda
  13. Great idea Jaded I'll be interested to see the results and find out more info about this too.
  14. Sorry for my late reply. I know I didn't make it very clear on here what I was asking (mostly because my befuddled old brain couldn't remember many details). It wasn't on this site but I did manage to find a note I'd made about this at the time it was mentioned to me and yes it does relate to the education act only the older one and the report is the Warnock Report. It does say something about the parent of a child with special needs having (in theory at least) the right to choose which school suits their childs needs best regardless of where it is and so on. Thanks to those who replied and to those who were just plain wondering what on EARTH I was going on about, well now you know If I can find a useful link on this info I shall paste it on here a little later, Thanks to those of you who replied <'>
  15. I was sure I did see a link or a posting a while back on this forum-tho' I might be just having one of my famous 'senior moments' and be wrong-regarding some guideline issued by Lord someone or other regarding children being allowed to attend the school of parental choice even if it isn't in the local catchment area. Does that make sense and does anybody know the thing I mean and could anybody please point me in the right direction of a source for this info. for which I will as always be MOST grateful. Thanks to all, I really don't know where we'd be now if it werent' for this forum <'>
  16. To cut a very long and depressing story short, we may have to move after all the fighting and eventual success getting our LEA to fund an independent residential school place from here-it's named on his current statement but I know a new LEA are meant to reassess within 6 weeks I believe. I am REALLY worried the new LEA won't continue the funding and short of forewarning them and approaching them directly I can't seem to find much info on the policies locally and generally how easy or difficult it is to get such places funded there. Soooo anyone with personal experience or info that they can share with me in this respect please PLEASE PM or mail me to share as soon as you can, thanks.
  17. Hi elaine1 I'm also looking into this definitely with my younger son and I'm also in the West Mids. Here's a link to all your local osteos so you can find out exactly what each charges and anything else you may need to know. cranial osteopaths
×
×
  • Create New...