karin

hi all as you know ive been trying to have the twins diagnosed as i think they might have autism in november we went to a clinic arranged by cahms they did 3 test on each twin the 1st was the eye test where they had 30 pair of eyes and had to tell what each one was the 2ns test was 3 peices of text which they read to them and asked them to answer questions on this the 3rd piece was 3 pictures which they had to describe what was in each picture this took 45 mins for each twin the specialist meet us last week and said these 3 tests where the core criteria to discovering if they had autism they passed all tests so they dont have it when i suggested that how come they still have osbessions and timekeeping issues plus rigid routines he suggested speech and language theraphy eh! i dont get that he said they may have a congnitive ability as twin 1 likes things described better in pictues as he understands it better and twin 2 has to touch an feel everything including his food as we know a lot of his senses are in his fingers they are still behind at school and will never achieve the grade they are supposed to for a year 6 i think its grade 4 but am not sure would welcome advice on this please where do i go from here all adivce would be greatfully appreciated luv karin

so sorry to hear of phasmids passing i know he will be sorely missed on this forum he was a great help to all on here my condolences go to his wife and family karin

carolj that was absolutley beautiful what you wrote about your son and i agree with you i am exactly as you described yourself as what is normal and what is not but having read this i will try everyday to let my twins be who they really are instead of what society expects them to be

hi all ive popped in now and again but am back online now well after all the tragedy i had last year the council finally housed us in a 3 bedroomed masionette in november its not brilliant but it will do so coming up to xmas i invited my mum over from spain as i didnt want her to spend her first xmas alone we had a quiet xmas an new year i felt we needed it after everything that happened to us last year (my dad dying an my brother dying in the space of 8 months) in between the move the twins had to go to a clinic near us with camhs they were each given a test to do with eye recongnition 4 peices of text were read to them and they had to decide the story and then 3 pictures where presented to them they were told to explain what was going on in the picture the results were they are not on the asd spectrum and they dont feel any need to pursue this any further me an hubby both have an appointment to see the specialist in feb what do you think i should do go or not? is it worth it im just fed up banging my head against a brick wall an getting nowhere what is the point after 3 tests they have already made their mind up about the twins have i been wrong all these years about them? please give me advice i so desperatley need it yours karin

amanda word will never express what you are going through i send my condolences to you and your family at this very difficult time and take care of each other

hi pippin just read your news im sending you my condolences on the loss of your mum its never easy take care of yourself an all your family hope all goes well sending you lots of these <'> <'> <'> <'> <'> <'> <'> <'> <'> <'>

hi allfirst chance ihave had to be online in ages and am doing this at my local library well the situation with the house is this in august this year my brother died he was only 46 he had a heart problem brought on by his diabetes what a shock it was for us all he was my big brother and my only brother i miss him every day and probably will till the day i die me my mum an hubby went to scotland for his funeral he was very well liked as there was 600 people there obviously the house move was put on hold to allow us time to grieve,but to make matters worse to this horrible year we have had a little boy who attends school with my twins died he was friends with both of them so in grief myself i had to try an comfort them as best i could its not been easy and to put the icing on this horrible year they cancelled the twins's first appointment for their assessment i was so angry i rang the specialist up to complain they duly sent an appointment for them they both to attend next month the house is moving on and hopefully by the end of novemeber i shall have moved out ive provisionally been given a 3 bedroom maisonette when all repairs are done to it ive not told anybody not even my kids for fear of something going wrong but heres hoping we can end this year on a high note hope i dont sound to maudlin its just been a very difficult year for me and one im not likley to forget in a hurry but all keep smilin hope to be backonline within the next month so can catch up with you all luv karin

hi all just to let you know this is my last day on the forum my internet is due to be switched off tomorrow i am still hanging in the balance concerning a house have been to local paper an am just about to phone them back was 3rd in line for a 3 bed masionette in a certain area but have been told all 3 are under repair yet a friend of mines daughter has been given a 3 bed masionette in another area which is still under repair it makes me sick there are houses all over the area i have picked empty yet they expect me to go to homeless accomodation they cant even temporarily house me in an empty house i know of one which has been empty for 3 years they havent went near it to repair it oh but if i get my moving date it will give me more points what goods that if they cant give me a house in the area i want which is half of the town i want sorry not to be able to let you know how i get on but hopefully will be online soon with a new address an tell you how it all went take care everyone karin

thanks everyone for your replies some answers for you i have not contacted shelter i have been on their website an got some information off of it which has pointed me in some directions i.e.citizen advice,my mum will help out with a deposit for us trouble is getting private housing is getting impossible no offence to anyone on this site but we have an influx of eastern europeans in our area who have taken up most of the private housing out of 30 calls i have made 1 is available an it might be ready in 4 weeks which takes me to my next answer yes it looks like we may have to split up as a family to share with other family never mind onwards an upwards ho hum karin

well we had our meeting yesterday with homeless officer and head of council what a waste of timne when the head of council decided to turn up 15mins late she had been swimming an had obviously forgotten great council workers we have sorry just fizzing as far as im concerned the council could not give a rats toss what happens to us when we mentioned 2 maisionettes in town which were empty they said oh yes your 3rd on the list if there had been 3 empty would we have been fourth then the head of council suggests a private rent a guy she knows he has one near us but will not be ready for 4 weeks plus he asking too much money as it only a 3 bedroomed house we dont think we will qualify for much rent as oldest son is working and just had our adjustement for this house an they taking of quite a lot a month as he works dont know where to turn to next 3 weeks an we will be totally homeless at my wits end with worry i could take a house other end of town but full of alkies an junkies not a snob but dont want my kids brought up in that environment an once you get there you cant get out as know one wants to move there hence the low uptake of housing in these areas any suggestions would be gratefully appreciated karin

thanks wilson but im afraid in my area if you choose to go with housing associations you loose your place on the housing register an are taken off it as far as their concerned you are housed so they dont worry bout you any more an anyway im not a snob or anything but our housing associations are either full of junkies or alkies they tend to put them all in the same area thanks anyway all adivce greatly received just a quick update on my situation i made such a hoo hah this morning to the chief execs secretary hubby an i have a meeting next tuesday with the head of council (whom ive met before) and the homeless officer not expecting miracles but at least i will get my questions answered instead of being mumbled to every time i ask something keep smilin luv karin

hi everyone thanks for all your replies and encouraging help loulou i filled a housing form in over a year ago we have just been sent a renewal form asking us if we still want a house although they just sent us a letter last week about our meeting with the homeless officer doh im sorry to say this but in a recent national poll our council came out as one of the worst in britain for housing needs in the 90's they dont know how many houses they actually own as my mum received a letter from her solicitor last week to say there would be a 2-3 week delay in selling her house because when he sent the deeds to the land registry they phoned back to say our council still owned the land although mum an dad have owned the house for 27 years an shes not the first person its happened too he has had 8 in the last 2 weeks and a total of 15 in the last month what chance have we of getting a house if they dont know who owns what ho hum,but i didnt phone head of council today went to welfare rights who couldnt see me till next week full all this week she gave me a new list of private landlords an also a number to phone about a new project called accomodation who may help us fingers crossed oh and i also got the twins specialist to write them a letter to say they were on the autistic spectrum disorder (they are both going for tests in september to see how far along the spectrum they are so not actually diagnosed yet)when i enquired bout this to the homeless officer she said she didnt know if she had received the letter as she hadnt got our file with her although it was her department who phoned us up to come an fill a homeless form in ho hum never mind keep smilin luv karin

hi everyone sorry i havent replied to you all nothing has happened since i last posted im still here in the same situation although tomorrow im going to phone the chief executive of the council he is my last hope to help me get a house if not its the papers for me nothing else for it our local mp is useless he doesnt even live in the same town as us and only cares about things that get his photo in the paper keep smilin luv karin

i know a lot of you know me on this site although i dont come on very often but im at the end of my tether as you all know in jan this year my father died in spain my mum came home in june to sell the house we live in she sold it in 2 weeks which is good for her but not so good for us we have been to housing a dozen or so times to be told there is no house for us and we should private rent as we have 4 sons me hubby an a dog and both of us dont work no one is interested in taking us (bad risk or something i think) although dhss will pay our rent to the landlord anyway bout 2 weeks ago i went up on a saturday as our council have a one stop shop whereby councillors have surgeries well it just happened to be the leader of the council who was there that day with another councillor expained everything to her an also put in a complaint that a 60year old couple were given a 4 bedroomed house in our area which i thought wasnt fair,last week we received a phone call from housing to have a meeting with homeless officer an all they could offer us was homeless accomodation which is a horrible place you have to share bathroom,kitchen and living room with other people an they charge you 100.00 per week to store your furniture i refused it an asked why people coming into our town could not have this instead of all the houses she said find private rent when i mentioned a house down road from us which had been empty for 7 months all i got was theres something wrong with it,its been excuse after excuse an im sick of it,i have also got my twins's football manager involved in it he's a social worker well he rung me yesterday to say it was looking hopefull i was to go up every day to see them but when i rung them this afternoon i was again told whats the point coming every day theres nothing we can do for you get private rent im going round an round in circles an to top it all we only have 3 weeks at the most in this house please help me im out of my mind with worry thinking we will all end up in the street karin

jen rose i once was watching the news when the guy who owns mocrosoft (cant remember his name at the mom) and looked at his fingers they tended to curl in at an odd shape and then i realised my twins fingers do the same sort of thing probably nothing to do with why they photographed your fingers but just thought id mention it i was interested in the protein in the blood thing as i myself carry too much protein in my body and had a lot of it in my urine when i was pregnant with the twins wonder if i passed it on to them just another thought i have had dealings with cambridge i sent away for the cast test for the twins and this came back as high i e-mail one of their research assistants who has helped me from time to time would love to go there and see it although its only for adults glad you enjoyed your time there keep smilin luv karin

hi hev i could not believe it when i read your story my 2 are obsessed with eastenders and the bill its all they ever talk about, i took them for a trip around our local police station a while ago unfortunatley due to someone being arrested they could not go into the custody suite so they want to go back all i can say is stick with it and maybe he will grow out of it my 2 haven't yet but never mind there are worse things they could be osbessed about keep smilin luv karin

hi av16 well done to your lad i know how proud you must feel my twins have been playing since they were 6 at times i was ready to give up and so where they but them and i persevered and im glad to say they have come through,they still have their moments with other players but all in all they enjoy it and its good for them once again well done to you son keep smiling luv karin

hi everyone seems like ages since i spoke to you all dont come on very ofter well here goes we have saw a specialist in march with the twins who told us after 1 1/2 hours that they are on the autistic spectrum somewhere yeah haw at last someone who believes us they now have to undergo tests at a centre (dont know what can anyone enlighten me) then they will consult with each other then we will meet him again and hopefully we will have a final diagnosis.as you know my father died in january of this year well we have been to spain to scatter some of his ashes it was nice to see my mum as well,she has now come home to sell the house that we live in and we have been told by the council we will have to wait 8 years for a house we now have to register as homeless when the house is sold my mums solicitor has to write to the council giving me 28days notice then we have to fill in a homeless form and be considered for a homeless shelter ho hum karin x

i debated for moths on buying the twins a mobile each so last year for their 10th birthday my husband decided we would get them one im glad we did theirs has a datebook in it where they can store all the importants stuff they have to remember it comes up with a reminder on the day of what they have stores eg dentis or doctors appts you could also buy him a neck hanger so he could wear round his neck and would not loose it,the twins wanted to constantly phone us but we pointed out it was cheaper to send a txt to us this went on for a while but they soon became bored with having to txt all the time,im really glad i brought them one as when we are in town and they decide they want to go to another shop than the one im in but not too far from me i can txt them to ask if they are ok,and i do not let them take them to school as our school has a no policy of mobile phones which i think is a good thing hope this helps keep smilin karin

last year i told you all my doctor had written to a neurologist at john radcliffe hospital to have the twins seen by him,well it turns out he wants 2 seperate reports. i saw a doctor in feb who after talking with her for about an hour asked me what i wanted for the twins when i told her i wanted them to be diagnosed she said there was nothing wrong with them,well on wednesday last week we received a letter asking us to attend an appointment at our local clinic to see this new doctor as the one we saw 2 years ago had retired,we had to fill a form out for him and we went along to see him we were with him for about 1 1/2 hours and he also asked us to fill another form in while we were there,he was a nice doctor and did not talk down to us he asked us for our history on the twins then also spoke to them about their interests,obsessions,friends,being bullied at school at the end he said they were somewhere on the spectrum but he did not think we would get a diagnosis he wants to look at all the data he has collected from us,would like to find out if their psychologists could do some theory of mind tests on the twins do you think we could be on our way to proving them all wrong or am i barking up the wrong tree again i hope not for our sake or the twins's this really is the end of the road for me i dont think we as a family can go through anymore visits to anyone else if this comes back as no diagnosis thats it im finished i dont think i could put myself through it anymore im too tired fighting with everyone luv karin

congratulations on the birth of your little girl what lovely news hope you and baby are doing well look after yourself <'> <'> <'> <'>

we are back from spain a week ago when we went we missed our flight at 8:00am because of a crash on the M1 then the airline company (wont mention any names) had a blooming cheek to charge us 210:00 to transfer to another airport then another 50:00 to get a bus there it was a nightmare for the twins who were flapping the whole day we finally got to spain at 9:25pm that night after being up since 3:30am that morning that was the nightmare,it was nice to see my mum i finally got to scatter some of my dads ashes me,my oldest and 3 youngest went on the beach and said goodbye to my dad it was lovely it was nice to have a week away from britain but next time if there ever is one i will go into a hotel no more self catering for me it was like being at home cooking cleaning and washing oh well never mind now i have to start to look for a private rent house no council houses available theres a 7 years waiting list in our area that should be fun oh well must go keep smilin luv karin

hi all just wanted to let you know im off to spain on tuesday im going to say goodbye to my dad as you all know he died in january this year and could not make the funeral when my mum came home she told me her and my dad had paid for the six of us to go out there for a week they had paid our airfares and accomadation i cried so its only right when we arrive we will have a little service of our own to say goodbye to my dad,when we come home we have to look for a new house as my mum is selling hers and we live in it,it will have to be private accomadation as the council list in our area is seven long years but i dont mind its my mums privelege to sell it,it is after all her house now wish me luck in spain i will need it i know it will be hard but im really looking forward to going with hubby an the kids they have never been abroad before (only the oldest one and thats when he was 9) we havent even told the little ones yet we are keeping it as a surprise for them will wait till last minute wish me luck keep smilin luv karin

lisa i feel like you ive been trying to get my 2 diagnosed for 61/2 years i recently saw another specialist who said they have traits of aspergers but not enough for a diagnosis although i went armed with school reports (way behind in reading and writing nearly same results as their younger brother who was in yr2 then) also a diary of the number of times they had been bullied at school sometimes severely we were there 2 hours also discussed familys history their obsessions (latest one is the bill) and finally she asked what did i want out of this i said people to realise what they are like,some respite from them and a diagnosis she said they were somewhere along the spectrum but not sure where i said without diagnosis i dont get any financial help for them dla have turned us down as no doctor would help us in applying for it,its not that im doing it for the money (as one doctor thought thats all i was doing it for) i only live on income support and family allowance without a diagnosis the local authority dont have to do anything to help you i know how you feel but like me keep plugging away and hopeful one day we will get our diagnosis in writing keep smilin karin <'> <'> <'>

thank you so much for all your replies it does help me an yes when we go to spain i will have a little service for my dad my mum is coming to stay with us on saturday for 2 weeks she has to sort her house out this is the one i live in so i guess i will be moving but thats no bother i knew it would come to this one day thanks again for all your lovely replies xxx