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melly

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Everything posted by melly

  1. Hi I have one girl (NT) who is four and at f/t school. And one boy who is ASD, he is 3yrs and at a special nursery. He isn't due to start school 'till sept 07. Melly
  2. We paid for the urine test for my son (now 3), when my doctor received the info she asked if I expected her to keep it all as there seemed no point in making his file so big! My doctor is very funny with us, sometimes she is nice to the point of helpful, other times i may as well talk to the receptionist! As for the diet have you seen the Marylin Le Breton book? Its a great source of info and recipies, I brought mine from Amazon online.
  3. The only way I have found so far of hiding food is in the burgers. We brought one of those burger maker gadgets which squashes the burgers to look like shop brought ones! I got a copy of the dietician referal this morning, so at least I know thats going thro as well.
  4. Thanks looks like its back to the kitchen for me! Mel
  5. I see you are a hampshire person, I am in surrey, can you tell me the name of the school? I gather you might have to do a personal message to give me that info Thanks Melly
  6. I keep trying to do a food diet - I have no stamina for these things tho! I will start again for our dieticians referal otherwise I can see the first appt being a complete waste of time! As for protein, he will only eat processed foods - chicken nuggets, fish fingers, sausages and burgers. The only home made thing he will eat is the burgers. Its not too bad a list I know, but he'll only get one of the above once a day, and if for another reason he decides not to eat thats it! Rice milk, soya milk of all makes and styles have been systematically rejected as well!
  7. My son is 3 n a bit. He has been on the whole gf/cf diet for 4months now, (inc no aspartame and msg). We have tried playing around with it a bit, but are very unsure of how to properly record it, so am now waiting for a dietician referal to get some assistance. Which brings me to my main point, I am worried about the lack of protein in his diet, the restrictive diet plus his own restrictions means very little protein gets through his lips. We are waiting, and waiting and waiting to see this dietician. But i wondered if any one has had this problem and what you've done about it Thanks Melly
  8. might be an old one, but good story anyway Lancelot!
  9. I am quite new to this, my son has only reciently got a final diagnosis and is only 3yrs. As such I think part of my problem with situations like this is that part of me still hasn't asdjusted to what is and what the future possibly will and wont hold. As such, when choices for schools come up in conversation I seem to be paying an awful lot of attention to the ceiling! Mind you he is making serious progress with the pecs system which we've only just started, so I might just have to learn how to boast louder than everyone else!
  10. Hi My little 'un also confuses the 'powers that be', he was seen pretending to drink from a cup with a tea set, but had learnt that from his big sister. He does have some great hide and seek type games, only on the hundredth time of doing them you can start to see that they may be repetitive! But sometimes, I do see things that make me think there is a spark of imagination, even if it is very delayed. He too, has great eye contact at times (which always leaves people with limited knowledge of ASD thinking he is either very high functioning or I am making the whole thing up!!!). But hey, its nice to be a bit different!
  11. My daughter is older than my ASD son, she is 4 1/2 and he's 3. She is vey responsible (when she feels like it!) and they can play some great games together, she does teach him a lot through this. However, we too worry about the responsibility in later life, but what can we do. Hopefully by the time we disappear sociaty will be a little more understanding and better placed to manage our little ones. We can always live in hope!!! Melly
  12. melly

    Introductions!!

    Hi, Thought I ought to introduce myself, I've been reaing a lot on this site reciently, its a great source of info and helps me to know that we a re not the only family that isn't quite 'normal'! My son was given an offical diagnosis of ASD last nov, although we had been expecting it for the year prior to that. He is 3yrs and attends a specialist nursery in surrey. We are sooooooooo lucky to have got that placement for him, he seems to enjoy it and they seem to know what they are talking about! I have a daughter who is 4 3/4yrs, who loves her brother to bits and is just realising he is a bit different. She gets a pretty rough deal sometimes - expected to be the sensible one when we are out etc. My hubby is very supportive, but its good for me to read this to know that there are others in the same boat. Its also great to pick up some tips for managing things at home. I have so many q's I could write postings for the next week without stopping! I keep getting reminded that our little chap is going to b around for a long time and things aren't going to change so I have plenty of time for all of my q's! Mel
  13. Baddad Hmm interesting. We saw xxxx (name removed by moderator) (Surrey specialist) who thought that our small person had a very small chance of reacting positively to the diet, and as such he suggested onlt three months before reintroducing the c and g. The sunderland uni analysis came back with a mixed view, seeming to state that he reacted to gluten, but possibly not caesin. To be honest, we are not quite ready to start messing around atm, as he seems to have decided to quit sleeping which is affecting his behaviour (strange that!). But I am keen to see if he has a tolerence level so that if we are out and in dire staits we can make an informed decision on feeding him something not strictly on the diet. Is it right then that many children can tolerate a certain amount of c and g? And by 'small' what do you mean?!? Are you following the msg and aspartamine free too? Thanks for the info, look forward to more!
  14. We are looking at reintroducing some foods, after doing this for 4 months we were advised to challenge it. But i have no idea of the quantities i should be using to see a result. N e ideas?
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