Now have Diagnosis - Aspergers

[fallgyrl]

At the end of what seems like a very long road, we now have confirmation that J has Aspergers. I knew that this would be the outcome but still wasnt prepared to feel so low. Now off for an early night.

 

Vicky

[NickyB]

Hello Vicky

 

I doesn't matter how prepared you are for the dx, it still comes as a shock. Take some time to let it all sink in, and look after yourself.

 

Nicky <'>

[lisa35]

Hi Vicky, we had diagnosis, April this year, aftera hard battle

I too felt awful, even tho was what we wanted, in fact to some extent I worried Id "made" them diagnosis him, as it was our second assessment I almost "tailored" our parental evidence to make them see

But now, I so know we were right, and he deffos is aspergerish! It becomes more obvious ashe gets older, and you settle into it all

Our son is 13 now, you really need the diagnosis to get support, since we have it, he has a statement, and we re moving him to a school with specialist provision, it has been positive for us

just at first its all a bit weird xxx

[bikemad]

<'>

[Enid]

funny old time, takes some gtting used to <'> <'> <'> Enid

[Retreat]

At the end of what seems like a very long road, we now have confirmation that J has Aspergers. I knew that this would be the outcome but still wasnt prepared to feel so low. Now off for an early night.

 

Vicky

 

 

hi there,

I am new here, but I want to say that to some extent I know what you feel, I have neither a diagnosis for myself or my son, only an informal assessment of myself so far. I know, the more that I read about it all I don't need an assessment for myself. I thought I would feel relieved but it has come as a shock to me too. Especially as I am 53 years of age. I went through with this assessment because I was getting no where with the local Camhs. I feel I need a diagnosis for my son who is housebound and becoming more withdrawn as time moves on. Life, to say the least has been very difficult for me. I have two grown up children both with mental health issues. I wish that we had known about this when they were young, I swear that they are on the spectrum too. I want to say now, to begin with try to embrace what you know. It is surely better than not knowing. Also, I was wondering, does J know about this diagnosis? I don't mean to be nosey, but at some point I might have to tell my son and I am just wondering how on earth I am going to do this. We are only at the very beginning of that road with our son so any advice would be much welcomed. Take each day as it comes, that's what I am doing at present. Best Wishes and good luck in the future. ~ Retreat

[sandyn]

Hi, someone described the feeling of a diagnosis as a bit like the stages of grieving

 

. shock/denial

. anger

. depression

. acceptance.

 

The whole thing is a roller coaster ride of emotions and I guess that's how I felt a little bit when R was dx'd, despite me really knowing that R had Aspergers.

 

Take your time to absorb it all. Things will seem much clearer in a few days/weeks. xxx

[alisonatt]

<'> <'> hi vicky, always here if you need a chat or a moan i have big shoulders, <'>

 

[Clare63]

<'> <'> <'> <'>

 

Can empathise, its a weird time with lots of up's and down's

 

Clare x x x

[Karen A]

<'> <'> We got a Dx AS for Ben three weeks ago.We were also expecting it but still feel all over the place.Dad and I have felt very sad at times.Karen.

[fallgyrl]

Thanks everyone for all your kind words. I know that this is nothing new and so many others must have already gone through this and come through with sanity almost intact After initial doubts and hoping against hope that J would just 'grow out of it' - as if!, I've accepted for a long while now that he has Aspergers. In fact I would have been extremely peed off if the assessment team hadnt had the gumption to at long last make the diagnosis.

Im feeling much brighter and positive today (hope it lasts!) , not normally so maudlin. I think whats really hit me is that I normally confide everything in my Mum but she's just had a stroke and still in hospital, so got other worries to contend with.

On the positive side, J had another really good day at school today, nearly finalised the statement with school and LEA and so tribunal now pulled, Mum feeling a bit better, my DH has just come in with a glass of wine and dark chocolate bounty - my favourite... Off to enjoy

 

Vicky